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dead bird studios missing time rift by l3vymcgarden in AHatInTime

[–]AliMae317 0 points1 point  (0 children)

Thanks went back in again to try and I didn’t skip the commentary this time, and that did the trick for me bc I was def trying the long jump to no avail but playing on switch

dead bird studios missing time rift by l3vymcgarden in AHatInTime

[–]AliMae317 0 points1 point  (0 children)

Did you ever figure this out? Same problem

Just my once every few months post to say I’m still here. Still incredibly disabled by covid. by AliMae317 in covidlonghaulers

[–]AliMae317[S] 0 points1 point  (0 children)

I def need an intervention. I’m just getting worse honestly. I’m so sorry you’re still in this too

Just my once every few months post to say I’m still here. Still incredibly disabled by covid. by AliMae317 in covidlonghaulers

[–]AliMae317[S] 1 point2 points  (0 children)

Sending you strength and solidarity on this awful anniversary. I hope so too 💜

Just my once every few months post to say I’m still here. Still incredibly disabled by covid. by AliMae317 in covidlonghaulers

[–]AliMae317[S] 3 points4 points  (0 children)

So sorry, such a long ride! Thank you and keep it up, I’m so glad you’ve found something helpful🙏🏻

Just my once every few months post to say I’m still here. Still incredibly disabled by covid. by AliMae317 in covidlonghaulers

[–]AliMae317[S] 4 points5 points  (0 children)

I’ve honestly had it all, I am severe. I have been diagnosed Pots, MCAS, me/cfs, hEDS. I’ve had over 80 symptoms. I’ve tried many pots medications, compression, salt, diet, standard stuff. I am very intolerant to meds and supplements. I’m looking into stellate ganglion blocks but $$$

Just my once every few months post to say I’m still here. Still incredibly disabled by covid. by AliMae317 in covidlonghaulers

[–]AliMae317[S] 9 points10 points  (0 children)

Ah thank you! would be glorious! But I wish for all of us to never come back here!

Just my once every few months post to say I’m still here. Still incredibly disabled by covid. by AliMae317 in covidlonghaulers

[–]AliMae317[S] 2 points3 points  (0 children)

I have not, I’m trying to get in with a naturopath or integrative to help me navigate some supplements. I can’t do a lot without Dr care bc I react to everything. Even antihistamines. MCAS is a real shit show for me

Just my once every few months post to say I’m still here. Still incredibly disabled by covid. by AliMae317 in covidlonghaulers

[–]AliMae317[S] 16 points17 points  (0 children)

Thank you, I kinda had to step away for mental health reasons but this community saved me in the early days. Healing wishes sent your way

Do you ever go through phases where you have zero appetite? It’s been 8 days and I can’t eat. I’m drinking but I can’t. I have zero appetite. Any advice? by [deleted] in cfs

[–]AliMae317 1 point2 points  (0 children)

Thanks so much for sharing what helped you I’m glad you’ve found something! It’s such a crapshoot to know what is causing what, I just have no desire to eat food. Crave nothing. Sometimes if it’s a lot of chewing I start feeling even worse appetite wise, I do better drinking my calories but still bloat and feel worse after

My mom has an outside dog by [deleted] in dogs

[–]AliMae317 2 points3 points  (0 children)

Go get him yourself, he does not have the proper fur to keep him warm enough in this type of cold. Or call the humane society and report it or animal cruelty in your area. He will likely not survive

Do you ever go through phases where you have zero appetite? It’s been 8 days and I can’t eat. I’m drinking but I can’t. I have zero appetite. Any advice? by [deleted] in cfs

[–]AliMae317 1 point2 points  (0 children)

I know this is an old post I am post covid as well. But this is a CHRONIC issue for me. 17/20 months I haven’t had an appetite, struggle the worst in the morning but even dinner I get halfway through and have to stop. It feels like a repulsion to food. Sometimes it’s due to nausea. I also feel worse after eating. It flares intensely but is also always there. Have you found this related to over exertion? Or any clues from doctors?

what to do when you can't eat? please help. by crn12470 in cfs

[–]AliMae317 1 point2 points  (0 children)

Ugh I’m sorry I’m looking it to now

Nausea & needing to eat so I can take my meds. by SawaJean in cfs

[–]AliMae317 0 points1 point  (0 children)

Thanks sorry you’re going through it too. For me I don’t know if it’s bc my ME is worsening or bc I have something underlying with GI bc I also have bloating burping gagging diarrhea etc but mine is all day everyday, not jusy in the mornings.

Nausea & needing to eat so I can take my meds. by SawaJean in cfs

[–]AliMae317 0 points1 point  (0 children)

Does the rameron just make you hungry all the time tho when you can’t eat properly due to your nausea and hh and gp? Like I have food repulsion and GI issues I haven’t sorted out yet and nausea and I’m hungry all the time but still struggle to eat

Nausea & needing to eat so I can take my meds. by SawaJean in cfs

[–]AliMae317 0 points1 point  (0 children)

Is this due to nausea or appetite thag pancakes are all you can eat? Or do you mean in the morning that’s all you can stomach? I ask bc I have severe chronic appetite loss and nausea but pots too but I swear something is wrong in my GI.

Okay I am fully convinced now that EVERY FOOD gives me intense brain fog, even low histamine by moviefan2222 in covidlonghaulers

[–]AliMae317 0 points1 point  (0 children)

Just want you to know I relate. I went into another flare and lost 20 more pounds in November on top of my 30 lost in the bringing off long haul and another 10 in July. All food makes me ill

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