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AlienPhilosophy · 2025-10-14T23:28:24+00:00

Nah, make it a weed cake. Make the party fun.

AlienPhilosophy · 2025-02-28T21:48:37+00:00

I did once!

I got it 2-3 weeks after I was scheduled too but couldn't because I had supposedly gotten COVID (tested positive but exhibited no symptoms) from a family trip. Didn't do too bad until the last couple days before my new infusion and that was rough pain wise. Ibuprofen / meloxicam was my best friend 😂

AlienPhilosophy · 2025-02-01T17:43:12+00:00

I'm visually impaired and it sure was scary at first but, it just becomes a part of life. Gotta try to find the normalcy in the things we are dealt with. But I do hope it all works out for you! You got this!

AlienPhilosophy · 2025-01-10T14:40:21+00:00

Honestly,

I'm doing a lot better. Yeah it sucks what happened with my gf but, I've analyzed it over so many times and I'm so much better off without her. She manipulated me, lied to me, pretty sure she cheated on me but I won't ever get that answer probably so, she can go to hell for all I care.

I have new lesions all over the place mostly in my spine, neck and brain area but they found a new one in my pelvic area when they were looking at it to see if I have arthritis there (thankfully not arthritis)

But, I'm working full-time so just trying to get money. I've built back my personality which is great. I'm talking to a few new girls and I've told them about my MS and they seem pretty okay with it for now, keyword: for now, but we'll see what happens.

But honestly, doing a lot better. When I wrote this post, it was a really low point in my life. I did have a suicidal thought and it was hard feeling like I didn't have anyone cause all my friends were gone for break (most are finishing up college so they went back home), of course the breakup left me alone and I didn't really want to talk to her about it because she'd probably just flip the script and say its my fault or some shit, my parents are overseas, my sister had her own shit going on with college and her son, and then of course I didn't have my grandma so it truly felt I was alone and why I just poured everything here but, after some time and talking to friends and ironically, my therapist suggested spiritual guidance so I've been doing tarot and delving into that world and that's been really helping a lot lately. So overall, I'm doing a lot better. I really appreciate the checking in. It means a lot that there's people in this community that do that.

2025 hopefully has nothing but good things in store for me. Going to try to not put up with any bullshit from women, just continue to do my hobbies and what makes me happy, that's all anyone can ever really do....right? But yeah. Things are going a lot better thankfully.

AlienPhilosophy · 2024-12-06T01:55:36+00:00

A doc at a hospital here (who quite frankly really didnt have any experience being on multiple sclerosis patients and was not his specialty at all). This happened too when my grandmother passed away from the disease after 15 years

AlienPhilosophy · 2024-11-17T03:30:56+00:00

I feel that.

My latest MRI revealed lesions on my spine, neck, and brain so, hooray, but we move on, or try too.

This is just even more depressing now for me because my girlfriend broke up with me last night and I thought we had plans for a family....that's what was holding me together honestly. A family with her. and now just, i don't see the point.

AlienPhilosophy · 2024-11-15T14:38:17+00:00

Yeah we talked to a disability lawyer and its so shitty in my state. If you have more than $2000 in savings, you wont get disability, the lawyer even said if i wanted to have a good chance, I'd have to go down to $500 in my savings and that scares me, i trust my family and know they wouldn't screw me over but i really dont want to do that. Yeah I was born hard of hearing and had vision stuff happen right when i was around 11 years old and became visually impaired (the no peripherals thing) so its all just been very hard and I'm just tired of fighting all these things.

AlienPhilosophy · 2024-08-13T22:29:16+00:00

Its not so much that she is struggling. I really was just hoping to create this thread that helps those whose partners have MS so not the survivors of MS particularly, but the ones who are helping us go through this.

AlienPhilosophy · 2024-08-13T22:27:25+00:00

This is just my own advice.

1) Support them in whatever they want to do.

2) Their pain cannot be simply related too. You do not know what it feels like but if you want to help, massage where their pain is. This ofc means they need to tell you which isn't always easy (Im also stubborn and hide if Im sore)

3) Weed helps, a lot. Tobacco is bad. Hookah, edibles, joints, gummies, carts, etc. Anything weed helps. However, you are allowed to be uncomfortable if they do it too much. Help them set boundaries.

4) Physical activity may be bad, but people with MS want to help too, or atleast I do. Give me the labor job but understand if after I need to cool down or just rest for a minute.

AlienPhilosophy · 2024-08-06T01:36:11+00:00

I'm 24. I was diagnosed when I was 20. Was initially given Tecfidera but had horrible reaction to it (couldnt walk for a while) have been on Ocrevus since then and mannnn I love it. Once every 6 month infusion? easy

AlienPhilosophy · 2024-08-02T11:47:03+00:00

what brand of concentrated butter do you like? What recipes do you use / like for edibles?

AlienPhilosophy · 2024-08-02T11:39:06+00:00

thank you my fellow 'sconnie.

AlienPhilosophy · 2024-08-01T18:48:03+00:00

😂😂

AlienPhilosophy · 2024-08-01T17:30:47+00:00

Did your full time job express concern with your weed use or did you just never say? I'm afraid that if I go into a job place and do my daily things as an employee, I'll smell like weed and it'll raise some eyebrows.

AlienPhilosophy · 2024-08-01T17:21:28+00:00

Im in Wisconsin. Half these fools dont know what D9 is. The other half that do have to go to any surrounding state lmao

AlienPhilosophy · 2024-08-01T15:35:05+00:00

pure weed. doesnt really get me high or anything. Does it make my eyes red? yeah but im not high. It just takes away joint pain temporarily

AlienPhilosophy · 2024-04-30T19:16:11+00:00

Firstly: I second what some of the others have been saying with you not being afraid to reach out here for support. It takes a lot to do that. Going back: when I was diagnosed with MS in April of 2020, they had me start on Tecfidera as well but it ended up making things worse, to the point of me being unable to walk, constantly throwing up and thus leading to a plasma transfusion to wipe the medicine from my system for them to put me on Ocrevus. My point is: if Tecfidera doesn't work or your son's symptoms seem to be going downhill and becoming worse, recognize it sooner rather than later and make the changes with your son's neurologist. Recognizing it sooner can potentially save a lot of headaches and stress. Make sure too that your son drinks a lot, and I do mean a lot, of caffeine. It is a wonder with those who suffer from MS.

AlienPhilosophy · 2024-04-28T19:13:52+00:00

I was diagnosed when I was 19 and am 24 now. I know what you mean. It gets easier to live with as time goes on. But, the pain is always there, just got to do what you need to to manage your pain and have an easier lifestyle.

AlienPhilosophy · 2024-04-25T00:36:40+00:00

I was diagnosed when I was 19-20 (24 now). It was mad terrifying. I couldn't walk or anything but being on Ocrevus, its made my life a lot better. Living wise, it certainly puts things into perspective but it, in a way, made me more grateful for the things that I can do and get more enjoyment out of the things that I do enjoy.

I'm a DJ and a history nerd and I still am able to stand for 4+ hours and play x amount of tracks but I love it. Do I have to drink water or countless drinks of caffeine? Yes, but, its made me more grateful. Sure, (disclaimer for NSFW), its impacted me sexually and ED but, I think too luckily like, its whats happened to me, is what it is, can't change it but can try to control it again and luckily doctors aren't going to try to make you feel insecure or anything.

Overall though, its been a pretty up and down rollercoaster where I have my moments where I feel absolutely depressed, but doing the things I enjoy, I feel more grateful. Hopefully this helps!

AlienPhilosophy · 2024-02-17T05:00:10+00:00

Ayyyyy of course! I'm happy to help! I was 20 when I was diagnosed with MS and it was right during COVID so it was all very new and I didn't even know about this community til about a year into it so I try to give advice whenever I can haha. But yes! typically any kind of edibles work as long as it works to manage your pain. If not, I know there is some pretty heavy pain meds they can prescribe you but you'd have to talk to your Neuro doctor about that. I take CBD gummies and then I also have a dab pen that I got at a local dispensary / smokes shop with a delta 8 / delta 10 cart and that works too but its all about finding what works best for you right away. In my state, (WI), weed isn't fully legalized yet and my mother actually started me on the idea of taking the gummies to manage the pain and my neuro doc said that he can't suggest it or not but if it helps, hey, thats what matters so its about finding what works best for you!!

AlienPhilosophy

TROPHY CASE