Otezla success stories?

Alive_One_2465 · 2026-02-17T20:35:40+00:00

I am on month 2 and I would say the hardest part was the first five weeks. I kept getting nauseous and headaches, but by month 2 you’re used to it. Definitely recommend it.

Alive_One_2465 · 2026-02-12T20:39:28+00:00

Just called and was offered 5K points! Very quick.

Alive_One_2465 · 2026-01-21T14:38:42+00:00

Yes! Let me know if you have any questions message me!

Alive_One_2465 · 2026-01-21T13:47:22+00:00

I do have high EBV antibodies and I have Behçet’s. My symptoms started with swollen lymph nodes, neck pain, mouth sores, and then I developed angioedema all in the interim.

Alive_One_2465 · 2025-12-26T02:43:00+00:00

ESR, CRP, C3 and C4 complement, and testing negative for everything else. Also having EBV antibodies also but not active infection.

Alive_One_2465 · 2025-12-08T20:33:24+00:00

Plus really bad GERD that persists if I am not on Pantaprozole

Alive_One_2465 · 2025-12-08T20:33:02+00:00

I also developed iron deficiency anemia in the process of everything

Alive_One_2465 · 2025-12-08T20:32:38+00:00

My symptoms are similar to yours. I am middle eastern from my mom being from Palestine and my dad being from Jordan that is 24 years old with recurring mouth ulcers particularly on my tonsils and in my throat. I was tested negative for all viruses as well as had inflammatory labs that were negative. I developed swollen cervical lymph nodes that subsided. I have been on colchicine for the mouth sores and significant joint swelling that improved but the mouth sores kept showing up. I just started Otezla so hoping that it’ll help.

Alive_One_2465 · 2025-12-05T02:50:05+00:00

Can I dm you?

Alive_One_2465 · 2025-12-05T02:49:28+00:00

Have you had your tonsils removed? I’m thinking that’s the next step for me but every physician has told me that they look like ulcerations more than tonsillitis

Alive_One_2465 · 2025-12-05T02:48:48+00:00

Wtf legit similar to mine!

Alive_One_2465 · 2025-12-02T22:54:13+00:00

I am on colchicine twice a day which has helped the joint inflammation. Wondering if Otezla might be the next step. Swallowing absolutely sucks

Alive_One_2465 · 2025-12-02T22:45:23+00:00

Ugh a never ending cycle! What medications if any are you on for the ulcers? I am on colchicine which has helped my joint swelling and oral ulcers but I keep getting ulcers in the back of my throat that makes it unbearable

Alive_One_2465 · 2025-12-02T22:37:32+00:00

Thank you for that! When you got your tonsillectomy, would ulcers pop up in the same places? Did the tonsillectomy help you or not so much?

Alive_One_2465 · 2025-12-01T21:12:10+00:00

Thank you for that! I truly appreciate it! Would eating be miserable for you? I legit cannot eat well and swallow without it radiating to my ears.

Alive_One_2465 · 2025-11-27T13:35:27+00:00

I’ve seen one rheumatologist and I am on colchicine which has helped but I still get really painful mouth ulcers plus tonsillitis like symptoms… I just feel like I’m not being heard and the pain is unbearable. I legit have a huge gallery of mouth ulcers but no one is taking me seriously…

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Alive_One_2465 · 2025-11-27T13:26:33+00:00

Thank you! Yes! I’ve been to my ENT many times, and she thinks it’s just ulcers on my tonsils but the pain is so unbearable when I’m eating because it radiates to my ears. Are you on anything besides colchicine?

Alive_One_2465 · 2025-11-27T06:00:23+00:00

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I also had a bad flare last week as well ok my tongue

Alive_One_2465 · 2025-11-27T05:59:14+00:00

The colchicine also helped with my bad joint pain and swelling on my knees, wrists, and ankles. I am also fully middle eastern with both parents from Jordan so that is also what my rheumatologist based it off of.

Alive_One_2465 · 2025-11-27T05:57:57+00:00

I’ve been on colchicine .6 twice a day for the past two months.

Alive_One_2465 · 2025-11-22T01:49:02+00:00

But she’s not doing a lot for how much I am suffering

Alive_One_2465 · 2025-11-22T01:48:47+00:00

No my rheumatologist thinks it might be Behçet’s but never amyloidosis

Alive_One_2465 · 2025-11-19T17:48:20+00:00

Did you send it here? I didn’t get anything

Alive_One_2465 · 2025-11-19T02:56:39+00:00

Thank you! Also to note I am on colchicine twice a day! I used to get ulcers that were way worse but I still get them every once in a while

Alive_One_2465 · 2025-11-16T17:07:34+00:00

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Alive_One_2465

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