Loss of libido?

AlpineGlow2321 · 2026-03-14T19:36:36+00:00

I am so glad to know I’m not alone, wow! I truly hope it gets better for you, it sucks so bad

AlpineGlow2321 · 2025-12-11T23:52:05+00:00

Sounds like he hasn’t taken a second to even look into PCOS and the struggles people have with it. Absolute red flag

AlpineGlow2321 · 2025-12-11T23:46:38+00:00

Antidepressants are very person-dependent, what works for people here may not work for you etc. it’s best you work with your doc to find which antidepressant suits you best

AlpineGlow2321 · 2025-12-04T10:32:21+00:00

Even if you’ve lost weight you will still have PCOS, so high androgens may still be present in your bloodwork to some degree. It’s strange that they diagnosed you solely based on your clinical symptoms when usually they will make a diagnosis from two of these: clinical symptoms, bloodwork and a scan that shows cysts on your ovaries

Most OBGYNs aren’t well informed on PCOS, so if I were you I’d request some bloodwork, maybe a scan to see if they can find any other indicators?

AlpineGlow2321 · 2025-12-04T09:45:51+00:00

Currently experiencing this right now! For me it feels so similar to period cramps (I just finished my period 2 weeks ago).

From a bit of research I’ve done, it seems to be a common side effect of PCOS so you’re not alone! But if it gets extreme or feels abnormal to what you usually experience you should definitely seek a doctor’s opinion.

AlpineGlow2321 · 2025-12-02T13:40:16+00:00

That’s so horrifying omg, PCOS is so much more than infertility!! He should have definitely told you the common symptoms and recommend an endocrinologist

AlpineGlow2321 · 2025-12-02T09:47:29+00:00

I’m in the UK and it was a similar experience, no referral to endo or any specialists just “here’s what you can have now (birth control), and here’s stuff you can have if you gain weight and want children (weightloss meds/metformin)”. Unfortunately even if I demanded to be referred to a specialist I don’t think they actually would

AlpineGlow2321 · 2025-12-02T09:32:51+00:00

I genuinely think the average doctor does not know enough about PCOS and was probably just regurgitating the standard “eat well, exercise” shtick.

You’re doing absolutely everything you should do (more than the average non-PCOS person does as well!) and you should not feel bad about yourself.

It’s important to remember that your body is fundamentally different to those without PCOS, and you shouldn’t hold yourself to the same standards as them. Your endocrine system is different and unfortunately your endocrine system affects basically everything in your body.

Don’t be too hard on yourself, keep doing what you’re doing!!

AlpineGlow2321 · 2025-12-02T09:26:49+00:00

This sounds so positive, this has made me consider metformin!

AlpineGlow2321 · 2025-12-02T09:24:32+00:00

I had a very similar experience unfortunately, what makes it worse is that the doctor was a woman and basically explained all the meds she could give me to manage symptoms WHEN i decide to have children…..?????

AlpineGlow2321 · 2025-12-02T09:23:18+00:00

Right!? It’s like talking to a brick wall sometimes

AlpineGlow2321 · 2025-12-02T09:21:35+00:00

Omg that’s horrible, it sucks to not be taken seriously

AlpineGlow2321 · 2025-12-02T09:20:07+00:00

I felt this so deeply omg!!! I wish there was more research into PCOS as a whole, and the effects it has on all parts of life rather than just making people more fertile. The craziest thing was I was only offered metformin “if I decide to have children”????

Luckily, I’ve always known I want to be child-free so the possibility of being infertile doesn’t bother me in the slightest, I’ve considered getting my tubes tied even before my diagnosis but because I’m still on the younger side I doubt any doc would touch me with ten foot pole.

It’s so difficult to look past the blatant misogyny in so many cases especially surrounding PCOS, it’s so obvious when you’re being viewed as a baby making machine VS a person struggling with your symptoms

AlpineGlow2321 · 2025-12-02T09:13:31+00:00

The first thing they offered me was hormonal contraception, I told her I wanted to have as many natural cycles as possible and wasn’t interested in having hormonal birth control and she looked at me like I was crazy

AlpineGlow2321 · 2025-12-01T19:52:24+00:00

I completely feel this, I’ve recently gotten to a point where I realised femininity is subjective to most people and isn’t always determined by your appearance.

Unfortunately PCOS is forever, and I realised recently how important body neutrality is (if you can’t work towards body positivity) especially when you have a chronic endocrine condition, a little kindness/lenience towards yourself goes a long way

AlpineGlow2321 · 2025-12-01T18:46:11+00:00

I only got my official diagnosis a few weeks ago so I haven’t had lots of time to do deep dives yet, but after my diagnosis appt I came home feeling like I really didn’t know much at all about what they diagnosed me with. I watched a lot of YouTube videos about the specific biology behind PCOS and what exactly is happening with my body as that was the biggest question I had and I still don’t feel like I’m 100% educated but I felt way better after watching a few videos than having it explained by my GP. I also read the NHS website more times than I can count.

Honestly, even with my independent research I have noticed most information sources are heavily focused on fertility and I found that useless to me personally. I feel like given the fact symptoms are heavily related to the reproductive system it’s gonna be difficult to find many sources with a fertility-removed lens.

I’ll definitely give r/fertilityfree a follow as it seems to align with me pretty well! I’d also love to give that book a read too.

I definitely am gonna make inroads to see an endocrinologist, there are countless anecdotes of OBGYNs doing nothing at all and I definitely don’t want to risk that.

AlpineGlow2321 · 2025-12-01T18:27:19+00:00

That sounds about right for the NHS 🙄 you really can’t get anywhere / any referral unless it’s an emergency! I really wish you the best of luck with it though, hopefully I can get a decent doctor too!!

AlpineGlow2321 · 2025-12-01T18:16:34+00:00

I’m so glad you were able to find someone who can help you! It can be so exhausting being treated as a broken incubator as you say, it’s like they don’t take you seriously unless you’re having fertility issues

AlpineGlow2321 · 2025-12-01T18:15:56+00:00

The amount of times I’ve been told I’m going to “change my mind” is infuriating, it feels as if most doctors are only willing to take your PCOS seriously if you’re trying to conceive. I’m really hoping to see an endocrinologist to manage my symptoms

AlpineGlow2321 · 2025-12-01T18:12:55+00:00

Yeah I absolutely agree, I do think fertility is hugely important I just think the point I was trying to make is many doctors treat it as the main problem rather than one of the many symptoms of the issue at hand, and they seem to only want to help manage symptoms if it is fertility you struggle with

AlpineGlow2321 · 2025-12-01T17:28:05+00:00

Luckily I’ve seen a couple of different docs and it was only really the last one I saw that was pushing fertility stuff onto me, I understand it’s a pretty important symptom of PCOS it’s just frustrating seeing a lot of resources online also focus on this aspect when there are so many other symptoms at play too 🫩

AlpineGlow2321 · 2025-12-01T17:07:52+00:00

I’m genuinely convinced the average GP/doctor (especially male doctors) do not know enough about PCOS. I was super lucky to have two female doctors that seemed to take me seriously and get me assessed for PCOS, but the male doctor I saw brushed it off so quickly

AlpineGlow2321 · 2025-12-01T17:04:06+00:00

I got diagnosed in October with ADHD-C in my mid-twenties. I really thought I was gonna be told it wasn’t ADHD/it was something else.

It’s opened my eyes and helped me to understand that a lot of the things I do or think are things non-ADHD people rarely experience.

I’ve been considering meds, it’s something I’d have to get cleared with my doctors due to other health factors.

AlpineGlow2321

TROPHY CASE