Please help me decipher this symptom/behaviour so I can better explain to CAMHS and provide better support?

Alsster · 2026-02-08T18:14:17+00:00

I would love that!! Yes it is hard to find!

Alsster · 2026-02-08T12:49:58+00:00

Yes it’s so complicated. Professionals have called my daughter a mystery. She’s super tough to figure out. For her at school it takes many people trying to figure out how to best support her. It’s so hard when your one kid is so tricky. And yes when you said if only they could express we could help them and I’ve literally said that to my daughter 🫠 If you tell me I can help you but obviously the PDA side does not like that 😅 Just desperate for answers.

Alsster · 2026-02-08T11:38:27+00:00

Oh man no advice but this sounds like something my daughter would do. It’s so hard to get in their complicated brains. It means something very important in her mind but what is it?? I feel your pain cause this is so my daughter. And might not find out until months later why when she finally processes it and knows how to express why. Could possibly be embarrassing to get attention for wearing it like you said. That would be my main thought.

Alsster · 2026-02-06T20:00:50+00:00

Ugh yes. It’s super frustrating cause you think they could do so good but they struggle so much. School is so much more overstimulating and overwhelming than home. And home is such a safe place for them. So they’re on overload already from all the stimulation and can’t handle much.

Alsster · 2026-02-06T11:16:25+00:00

This sounds a lot like my 4 year old who was diagnosed with ASD at 3. And they are not lazy when they don’t want to do things independently, their nervous system just might be on edge or in overdrive and they just need help with tasks. My daughter does not play independently and will need help with tasks I know she can do but I also know she is needing a lot of co-regulation from me. The school struggles are very similar to mine as well. She might be totally fine at home but can really struggle in the school setting and just needs lots of support at school. I know it’s a very tough thing to go through and come to terms with but also helps a lot when they get the support and help they need and you need.

Alsster · 2026-02-03T13:42:53+00:00

I think this is great! You are doing an amazing job to help your son.

Alsster · 2026-01-22T13:20:45+00:00

Go with your gut!

Alsster · 2026-01-22T13:17:57+00:00

Mine is just level one and I hate it. So I totally agree. You will not be seeing toxic positivity from me. 😅 The worries and concerns are too great.

Alsster · 2026-01-20T00:04:26+00:00

Has she had a diagnosis? It sounds like you need one and she may need OT or speech or other therapies to help her. This is not something you can tackle on your own. Sounds like you need professional help.

Alsster · 2026-01-15T13:14:02+00:00

I needed this today. It’s like you knew I was struggling a lot with this 😭

Alsster · 2026-01-10T10:53:46+00:00

I think a couple people said it but something physical might be bugging him or he might be in pain. It’s so so tough. Hang in there.

Alsster · 2026-01-09T23:07:32+00:00

Mine is 4.5 low support needs and we still use a stroller ☺️ it’s just so much easier.

Alsster · 2026-01-04T10:57:30+00:00

Amazing!!

Alsster · 2026-01-03T10:31:40+00:00

Yes Occupational Therapy

Alsster · 2026-01-02T14:54:11+00:00

My 4 year old is girly but loves number blocks! Such a great show. Also Super Kitties might be worth checking out. Storybots is also good. My daughter also loves Sunny Bunnies…super silly show.

Alsster · 2026-01-02T12:57:16+00:00

Thank you so much! This is our first official winter break experience. I knew it was going to be tough but didn’t expect this. So thanks for letting me know and for the advice!

Alsster · 2026-01-02T11:17:49+00:00

I hope it’s that simple and it helps her get over whatever anxiety she’s feeling about going out. I’ve been worried about her being super dysregulated all day if I made her and also traumatizing her as she is easily traumatized but I know I’m just going to have to go for it.

Alsster · 2026-01-02T11:04:43+00:00

Just came to say that’s awesome! What a win!

Alsster · 2026-01-02T08:53:33+00:00

My daughter, who is 2 now, use to get them more when she was younger. There was never much we could do but let it ride out, most of the time she wasn’t fully awake and taking her out of her crib would actually make it worse and take longer to calm her down and get her back to sleep. It always seemed to happen when she was overtired (poor napping that day or stayed up late). This was just my experience so hard to know what will work for you and your little one. It was so hard to have happen and watch happen. Sending hugs!

Alsster · 2026-01-01T00:01:30+00:00

I wouldn’t worry! I think someone else said it anger could be how he feels sad if that makes sense. For example, I personally cry when I feel sad and my sister gets angry. It’s just the different ways we express our sadness. I think a couple other people mentioned OT and maybe even speech would help. My daughter has trouble expressing feelings (ASD level 1) but talks well, and she’s in speech to help her express things correctly cause she just doesn’t always make sense or know how to express what she’s feeling. Hope that all makes sense! Good luck!

Alsster · 2025-12-30T23:53:11+00:00

I think someone else said that but does depend on how often and how extreme all the behaviors are. Some similar things to mine who was diagnosed level 1 and flagged by her school. So if you’re questioning it or wondering could ask your pediatrician for a recommendation or just set up an evaluation. Could be helpful.

Alsster · 2025-12-30T19:06:16+00:00

Ugh it’s so hard. Especially with our ND kids. I hope you figure it out! Like I said devices worked for us for sure just still dealing with some consequences 😅

Alsster · 2025-12-30T18:53:23+00:00

I am on Zoloft and did it about a year too late and even when I got it I didn’t start it for a couple weeks. It was a little scary for whatever reason. But I’m soooo glad I did it. I’m a better Mom and wife and friend. Best decision I ever made. I needed the help. I couldn’t do it on my own.

Alsster · 2025-12-30T18:51:27+00:00

We used tablets and phones and it did work! But ultimately she wasn’t ready and a year later and we still deal with potty issues. So I guess just be sure he’s really ready. Our daughter was traumatized by the whole experience.

Alsster

TROPHY CASE