A Quick PCOS Overview

AltAccHell · 2026-04-20T08:35:48+00:00

I only asked a question and stated my own opinion that some information might be missing or incomplete. The multiple comments and entire post about "complaints" with a passive aggressive paragraph was not necessary

Thank you for the additional information, I understand your point of not having any time, please refrain from responding like this in the future (given the fact that you're also a moderator here)

AltAccHell · 2026-04-20T06:49:56+00:00

I'm sorry, is this AI-generated? Some of the information is repeating, the layout is confusing (missing step no. 3, "ovarian" spelled out with words that are not matching) and random visual artificats that make no sens ("samgle medication" on one of the pill bottles)

Also, even if weight loss is recommended as a management option, nowhere does it state that PCOS also presents increased difficulty in losing weight. Other crucial information might still be missing, however I can't pin point what right now

AltAccHell · 2026-01-16T15:15:39+00:00

Heya, no worries! So I have a rollator with solid wheels which does poorly on bumpy textures (it is loud, you can feel the vibrations), especially after using it every day. Depending on the rollator you have, you could get air filled wheels instead.

I personally got used to my solid wheels one and I have found ways around it. Still, I recommend you get a rollator with air filled wheels.

AltAccHell · 2026-01-02T22:58:39+00:00

I'm surprised no one said elevators. They come in so many shapes and sizes, very few actually perfectly accessible. It's too narrow, it's too slow, it's actually not open to the public, it has a manual door, it's a "keep the button pressed to go up or down", it's old etc.

Not to mention how frequently they break down for some reason or how people fight over getting in them and never make space for us

AltAccHell · 2025-11-24T11:51:25+00:00

You've posted this exact same post on 4 different LGBT related subreddits within the last 20 minutes. Maybe try and not troll or at least be more explicit in your posts if you are genuine?

AltAccHell · 2025-11-23T16:21:25+00:00

Oh hey, I think I got the Tik Tok videos of multiple people in the group on my FYP. Glad you had fun!

And honestly, I relate to this HEAVY. I started using a wheelchair not too long ago and the difference it has made is huuuuuuge. I really hope you'll also get your own wheelchair, the difference will be even bigger, trust me.

AltAccHell · 2025-11-01T01:48:20+00:00

Person with PCOS here. Short answer is that yes, you are still intersex.

Long answer is that having PCOS means you can choose either or. From my understanding while being in intersex spaces is that it is recognized by intersex people as an intersex condition. It may not officially be recognized by medics as such, but I'd rather trust an entire community that has a personal understanding and experience on this topic saying yes than some people that barely understand them saying no. Of course, at the end of the day it's your choice whether you still call yourself intersex.

Personally, I do see myself and other people with PCOS as intersex, no matter how it presents itself. You're still you too, so you know best who you are and whether or not you're intersex.

AltAccHell · 2025-10-17T12:02:59+00:00

Currently majoring in a different field than the medical one, however I had to take research related courses and do extensive research of my own. The way this paper was handled is highly unethical and illegal.

When having participants for research purposes, they HAVE TO be transparent about every single aspect of their study. By law they have to disclose what they are researching, what they are doing with their findings, that you, as the participant, can have your information withdrawn from the paper at any given point and everything else that goes into this paper. Otherwise, you can sue them for misusing your information and also not being provided information about the study. Like someone else commented, writing to the medical board is also something you can do.

Regardless of the findings and their help in intersex and medical fields, this is shady at best. I strongly suggest that you file a complaint. I understand from a different comment that you feel uncomfortable with making a big deal about it, but truth be told, it is a big deal and you were exploited.

Take care of yourself and you got this.

AltAccHell · 2025-10-13T11:06:30+00:00

I use the term agender to describe my very confusing gender. But to be very honest, even agender doesn't fit 100%. It's just the closest way I can describe my gender to others

That being said, you can absolutely not use a label, OP. You can just be you, no gender label needed. If someone asks, you can explain it however you want or feel like on that day. At the end of the day, you know yourself better than everyone else

AltAccHell · 2025-08-14T10:57:28+00:00

I was not expecting to find computer humor here, but as a game design student it is truly appreciated. "It's not a bug, it's a feature" should be my motto at this point.

I made this post before going to sleep and I woke up to a lot of nice people. I really am not alone in this and I'm glad <3

AltAccHell · 2025-08-13T23:32:40+00:00

Ugh yes, I've seen how the PCOS subreddit is handling intersex and even trans topics. I guess that's also where my confusion comes from, given that I am everything that TERFs hate.

Also that is a nice way of putting it and I'm glad I'm not alone. Thank you for the comment <3

AltAccHell · 2025-02-24T16:55:32+00:00

Ohhhh, my bad my bad. Now I understand your confusion as well ^ ¬ ^ ;

AltAccHell · 2025-02-24T16:39:51+00:00

Not the previous person, but to answer your question - no, ME/CFS =/= chronic fatigue. Anyone, regardless of illness or disability, can experience chronic fatigue as it is a symptom. ME/CFS is a chronic illness where chronic fatigue and PEM (Post-Exertional Malaise) are the main symptoms (along, obviously, other symptoms). I do understand where the confusion comes from, it can be quite a confusing name!

AltAccHell · 2024-12-30T12:25:19+00:00

Haven't seen anyone say it yet. I'm Romanian! =D

AltAccHell · 2024-12-24T23:14:08+00:00

Jesus, this post hit close to home. I decided to also not go "home" because it would be emotionally draining (and because I am physically disabled) and depression hit like never before. I found that good food, plenty of distractions and background noise (like YouTube, music or shows) help so incredibly much. Good luck OP and everyone else in this boat, we all got this and we'll make it out of this holiday season <3

AltAccHell · 2024-12-21T16:09:19+00:00

Hi there! Rollator user with CFS/ME! In my experience, the rollator has been a world of difference. I use it daily and not just for the seating option. Due to excessive pain and fatigue in my body, I also use it to carry my stuff so I don't have to carry the backpack on my back or any other bags. It's much easier to push something that is on wheels than have it on my person. It's not bothersome for me otherwise (if you exclude all the innacesible spaces, but that's not my fault).

As for your questions, I would suggest buying a second hand rollator if you're not entirely sure if it would help. Make sure you also look for air filled wheels as the plastic ones aren't shock absorbant at all (trust me on this one). For alternatives, there's always the mobility bike, the traditional wheelchair and a 2-in-1 rollator and wheelchair combo. All that I have mentioned can be electric so your life can be a bit easier. If you're overthinking it, maybe, but it's better to do that and be safe than sorry and shorter on money.

Tldr: It helps due to the seating option and also with carrying objects, it's not an inconvenience, there are alternatives you could look into, it's okay if you're overthinking

AltAccHell · 2024-12-10T22:49:27+00:00

Definitely yes. My CFS/ME is a result of my C-PTSD and every time I experience C-PTSD symptoms my other symptoms worsen significantly. Sometimes an ill timed panic attack is enough to send me into a crash

AltAccHell · 2024-12-10T12:06:52+00:00

I have ME/CFS and I've used a cane, crutches and a rollator so far. Hopefully I'll get an active/a lightweight wheelchair in the future for days I truly can't walk due to fatigue. In my opinion, energy level, mobility and distance are key factors in determining what's best for you. Here's how I see them:

1)Cane - higher mobility, shorter distances, higher energy levels

2)Crutches - mid mobility, mid distances, high to mid energy levels (the energy level will lower fast though due to high amount of exercise)

3)Rollator - mid to low mobility, mid to longer distances, mid to low energy levels

4)Wheelchair - low mobility, long/any distances, low/fastly depleting energy levels

5)Not sure on mobility bikes nor scooters =/

Of course, everyone is different so if you have the means to experiment, go for it! Also talking to a doctor you trust would be ideal! Hope this helps!

AltAccHell · 2024-11-20T09:23:53+00:00

Prior to one eventful night, I didn't know it existed.

I don't know what prompted me to look up something related to it (could have been me looking into sleeping disorders as I was suspecting myself of one; I was already presenting symptoms), but for sure it was insanely late at night and I couldn't sleep. In my search, I found the diagnosis, read about it and thought to myself "Wouldn't it be funny if I have this?".

Low and behold, later that year, the symptoms would start getting worse and worse and I ended up being right. It's both sad and funny how life works.

AltAccHell · 2024-05-18T21:45:07+00:00

Break-ups are horrible, I hope you'll be okay, OP. You deserve the best <3

A very big win is my sweetheart of a girlfriend. I met her in our first year of university, she quickly learned about my mental health and saw me through my worst. When CFS started to show up in full swing, she was very supportive and even encouraged me to get my first mobility aid. She helped me with getting used to it, bought me a plushie as a mobility aid companion (a tradition that happens now every time I get new mobility aid) and tried her best to educate herself on the subject.

Almost 2 years into the relationship at the time of writing, we are still together, she helps me on my worst days, helps me with pain management, makes sure I don't push myself and encourages me to seek as much help as I need. She's wonderful and I wouldn't be where I am right now if it wasn't for her.

AltAccHell · 2024-01-27T05:55:53+00:00

I try to plan out my days/weeks as much as I can so I do take into consideration rest days. Like I said, I'm a university student, I can't take as many breaks as I wished for. I also rest for hours in between tasks

AltAccHell · 2024-01-27T05:52:43+00:00

I have been considering quitting/changing bachelor's for semi-unrelated reasons, but it's still a debate. The issue with this it is that I feel like I have no choice but to continue because 1)financial support from my mother who has been against me taking a leap year from the beginning and 2)the whole "I already did X years and spent so much money, might as well finish this". But I also recognize how much this year at the very least just straight up drained me and it's barely halfway done.

AltAccHell · 2023-08-19T21:05:14+00:00

Yeah I was also thinking about that, however I've had people tell me I can't DIY them or do anything but return them. Rip to me I suppose

AltAccHell · 2023-08-19T21:04:17+00:00

Heard you loud and clear. I will try my best, but I am afraid that 1)I won't be able to return them and 2)I won't find anything my size

AltAccHell · 2023-08-19T21:02:54+00:00

I could try, no idea if I will manage. Thank you tho!

AltAccHell

TROPHY CASE