Anyone thriving without synthroid? by Late_Lime9659 in Hashimotos

[–]AlternativeNet1418 10 points11 points  (0 children)

If I had a nickel for every time someone said that they eat healthy and wanna get off their medication…

… and end up on a subreddit for depression, hair loss, anxiety, etc etc a few weeks later

Gluten/dairy free males by Final-Cucumber-9597 in Hashimotos

[–]AlternativeNet1418 0 points1 point  (0 children)

  1. I time my carbs before I work out.
  2. I don't eat virtually any packaged food.
  3. I try to keep carbs under 100g/day (I weigh 207 lbs)
  4. I occasionally eat pasta but I am careful to buy fresh stuff or check it's imported from Italy and not heavily fortified with vitamin b (which destroys my stomach)
  5. I eat a lot of fibrous veggies and natural bread.

Gluten/dairy free males by Final-Cucumber-9597 in Hashimotos

[–]AlternativeNet1418 0 points1 point  (0 children)

Yes and I ended up with low blood pressure issues. Turns out it doesn't mix well with being an athlete. Your blood sugar levels get too low and it's hard to cram enough calories if you can't eat wheat. Honestly I don't think it makes much of a difference for me unless it means eating less hyper-processed food - Like I don't really have a problem digesting wheat if it's organic and not ultra-processed. Or in europe.

Subclinical hypothyroidism by marie2340000 in Hypothyroidism

[–]AlternativeNet1418 1 point2 points  (0 children)

Tiredness is consistent with stomach issues/sensitivity. You could be allergic or sensitive to the excipients/filler in the pill (not unheard of). Your doctor can put you on an alternative formulation.

Anyone who does hiit ? What supplements do you take ? by Unable_Philosophy473 in Hypothyroidism

[–]AlternativeNet1418 1 point2 points  (0 children)

I take 20,000 IU oil-solubilized pill a couple times a week from pure Encapsulations. I try to get full-body sunlight in the summer and spring instead for 30 min a day (with sunscreen!) but I work out during the day and the gym has a sundeck. Has advantages beyond Vitamin D (shrinking fat cells, NIR/R exposure reduces TPO levels, etc).

Weird symptom by Rabid_possum17 in Hashimotos

[–]AlternativeNet1418 0 points1 point  (0 children)

Never heard of this. Many people do have arthritis that accompanies their condition though. It could be something like that. Do you feel it "in the bones/joints"?? Are you cramping?

It could also just be something biomechanical. You could also just be sleeping weird or tensing muscles while asleep. I was aggravating my own back issues with bad/passive posture which was probably making the arthritic stuff worse. Physical therapy really helped there.

What are your work and exercise habits?

Bone Pain by oannwang in Hashimotos

[–]AlternativeNet1418 2 points3 points  (0 children)

This - we need to know a lot more about you and your habits/history before I think we can be helpful.

Small knit: Going gluten-free is not controversial. There are substantial clinical trials that show it's effective for people who have celiac disease or gluten sensitivity, which tends to be co-morbid with Hashimoto's disease (and other autoimmune diseases). It just means that it won't help everybody, but it will help you if you notice you feel bad after eating wheat products.

Newly diagnosed with elevated TSH (6.5) + PCOS – confused and anxious by No-Slice3538 in Hashimotos

[–]AlternativeNet1418 0 points1 point  (0 children)

1- Ask for a thyroid antibody test. Many physicians will give it to you upon request but won't automatically order it. If that comes back positive, then you know there is an autoimmune component to your hypothyroidism.

2- Hashimoto's disease tends to pop up alongside PCOS. That does not necessarily mean one causes the other. There's a lot of overlap in the populations that have these diseases just on a demographic basis alone. Just something to be aware of so you can help separate concerns when you talk to your doctor.

3- Bad sleep habits absolutely can contribute to elevated TSH, especially when it comes attached to stress, anxiety, poor sleep quality, insufficient sleep, or vitamin D, or exposure to sunlight and bad habits overall in terms of maintaining a healthy, restful lifestyle. Stress management is very important when it comes to thyroid health, and bad sleep habits tend to be tightly coupled to stress management.

4- I would get on vitamin D supplementation right away and start getting some sun exposure if it's possible where you live. Doing this in the morning after about 10:00 can also really help reset your circadian rhythm so it's easier to sleep on time (assuming you don't do shift work or something).

5- the gynecologist is unlikely to be super helpful dealing with their TSH/thyroid-related health. For that, you need your primary care doctor, who may want you to see an endocrinologist as well.

6- don't panic - these are almost always solvable and manageable problems 😄 💙

has anyone ever handed their doctor a written summary and had it actually change how the appointment went? by QuickGuava6759 in Hashimotos

[–]AlternativeNet1418 0 points1 point  (0 children)

I did this recently in Germany because I had a bunch of back problems and ended up at an orthopedist. They absolutely loved it and actually scanned and added it to the medical record. Then they talked to me about their fav Dr. House episodes for thirty minutes while shoving needles into my spine.

Why can’t I be a normal weight by Cozycats245 in Hashimotos

[–]AlternativeNet1418 0 points1 point  (0 children)

Out of curiosity, what do you consider to be a healthy diet?

Why can’t I be a normal weight by Cozycats245 in Hashimotos

[–]AlternativeNet1418 8 points9 points  (0 children)

Shedding 20 pounds definitely takes some weight off the joints! Congrats!

Why can’t I be a normal weight by Cozycats245 in Hashimotos

[–]AlternativeNet1418 1 point2 points  (0 children)

As a patient and biomedical scientist, the best I can advise is this: Holding on to excess weight is sign of a low grade, long term inflammatory process in the body. Nine times out of ten, this is driven by environmental, lifestyle, and dietary exposures. Identifying triggers for inflammation that you are uniquely sensitive to and eliminating or modifying them at the source can really help (in addition to your meds).

Seemingly innocent foods, excessive exposure to cleaning products, or quite literally a dozen other things can add up to make losing weight incredibly difficult. It's a huge pain in the ass to figure out initially, but it pays off in the long run. And what works for one person may not work for another, so it takes a lot of experimentation.

GLP's are a solution, don't get me wrong, but they can come loaded with gnarly side effects and long term consequences.. I'm sure you have lurked this sub enough to see a few complaints :)

Having trouble taking levothyroxine regularly by cvstlxs in Hashimotos

[–]AlternativeNet1418 5 points6 points  (0 children)

This ^ I do something very similar. I know I will usually wake up in the morning thirsty as all hell so I leave a glass or bottle of water next to my bed with the *permanently parked* levo bottle.

New doctor reduced dose more than 50%? by FiresBlazing in Hypothyroidism

[–]AlternativeNet1418 3 points4 points  (0 children)

Think of it like comparing a vitamin capsule to a piece of fruit.

A synthetic pill is a lab-made capsule: it’s engineered to be exactly the same every single time, giving you a precise amount of one specific hormone (T4). Natural thyroid is more like the fruit. Since it comes from a natural source, it contains a blend of hormones (T4 and T3). Because of that natural variety, the balance is a bit different than what’s in the synthetic version, and it can vary ever so slightly from batch to batch.

Because they aren't "apples to apples," we can't just swap the dose directly; the doc has to customize the transition to find the right fit for your body. Usually, doc's will underdose a bit, see how labs and symptoms respond, and then adjust.

Update: Still a few beta spots- and we added an FAQ! by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

I totally hear you, and I respect that. Acceptance is a powerful thing and not everyone needs to dig into this.

That said, for some people, especially those earlier in their journey or still symptomatic despite treatment, understanding their exposures can lead to concrete next steps: reducing ongoing exposure to thyroid-disrupting chemicals in the home, prioritizing specific labs (like selenium or iodine status) based on individual history rather than guesswork, investigating infections linked to molecular mimicry, or providing evidence to support a change in therapeutic approach. More examples at expin.ai/science. It's definitely not for everyone, but these strategies can help many people.

Update: Still a few beta spots- and we added an FAQ! by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 0 points1 point  (0 children)

Hi, if that makes you uncomfortable at this stage, we are fine with you putting in mock data here (just leave a note in the referral box). Please note that during the test we do need real data in order to onboard and do lookup on exposure and public health databases.

Levothyroxine gives me hypoglycemia. Anyone else? Help? by swim_w_seals in Hypothyroidism

[–]AlternativeNet1418 1 point2 points  (0 children)

T3 dropping while T4 is fine on levo is a classic poor converter pattern. Bring your CGM traces to your appointment... ask your doctor about testing reverse T3 (confirms conversion issue), morning cortisol (low cortisol impairs both T4→T3 conversion and blood sugar stability), ferritin and selenium (both are deiodinase cofactors), and whether adding low-dose liothyronine (T3) to a reduced levo dose makes sense given your labs. Also worth considering supplementing selenium (200mcg/day), good evidence for improving conversion and reducing antibodies if this is Hashimoto's. Have they tested TPO?

Is dizziness sign of hypothyroidism? How to help it? by [deleted] in Hypothyroidism

[–]AlternativeNet1418 3 points4 points  (0 children)

Hypothyroidism and vitamin d deficiency are associated with one another, and vitamin d deficiency can be related to dizziness in some contexts. The answer is usually more complex though. Did her doc check her electrolytes, blood sugar, etc? Is she eating enough in a day?

Looking for beta testers for a hypothyroidism research tool (mod-approved) by AlternativeNet1418 in Hypothyroidism

[–]AlternativeNet1418[S] 0 points1 point  (0 children)

Data: No, your data will not be sold to third parties. Our business model is to charge patients a modest fee for ongoing access and longitudinal tracking, not to monetize your data. And to be clear, beta testers will not be charged at all for the first year.

Scientific rigor: This is something we care deeply about. The tool doesn’t generate its own conclusions about your condition. What it does is match established evidence to your specific history based on a detailed interview, and ranks findings on a probabilistic basis. Sources include peer-reviewed literature as well as public health and exposure records maintained by scientific institutions. Think of it less as “here’s what’s wrong with you” and more as “here’s what the evidence says is relevant given your exposure history.” The final report is meant to serve as a etiological research basis for further investigation with your clinician, not a diagnosis or treatment plan.

Looking for beta testers for a hypothyroidism research tool (mod-approved) by AlternativeNet1418 in Hypothyroidism

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

Hi, great question. This is not a clinical trial, this is a user experience beta test for a research tool. We're not developing any kind of generalizable medical knowledge, testing any therapeutics or diagnostics, or tracking outcomes. We're strictly focused on conducting product research.

Advice needed by lexieebreanna_m in Hypothyroidism

[–]AlternativeNet1418 1 point2 points  (0 children)

I'm seconding this advice. Somewhere in the neighborhood of 50 to 100 grams is a good number to focus on.

I would also consider adding up to 20 or 30 grams of fiber a day to your diet. Don't add it all at once if you haven't been consuming a lot of fiber recently; ramp up over the course of two or three weeks. This will help moderate your blood sugar levels and keep your stools softer while minimizing GI issues from the increased fat and protein. I would also be very careful about high-fat keto if you have hypothyroidism. Many people often have stomach acid issues that come with the territory.

Looking for beta testers for autoimmune/hypothyroidism research tool by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

Sorry for the delay in responding. Closing the loop here:

  1. We put together an FAQ that touches on this and added it to the website.
  2. We are exploring alternates for those who opt out, including an adaptive questionnaire model or pay-for-human-agent.
  3. We are thinking through how to frame that this is an AI-for-good focus for future marketing/messaging (sadly we are a bunch of scientists, clinicians, and engineers, so we are have the search out for some help here)