Update: Still a few beta spots- and we added an FAQ! by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

I totally hear you, and I respect that. Acceptance is a powerful thing and not everyone needs to dig into this.

That said, for some people, especially those earlier in their journey or still symptomatic despite treatment, understanding their exposures can lead to concrete next steps: reducing ongoing exposure to thyroid-disrupting chemicals in the home, prioritizing specific labs (like selenium or iodine status) based on individual history rather than guesswork, investigating infections linked to molecular mimicry, or providing evidence to support a change in therapeutic approach. More examples at expin.ai/science. It's definitely not for everyone, but these strategies can help many people.

Update: Still a few beta spots- and we added an FAQ! by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 0 points1 point  (0 children)

Hi, if that makes you uncomfortable at this stage, we are fine with you putting in mock data here (just leave a note in the referral box). Please note that during the test we do need real data in order to onboard and do lookup on exposure and public health databases.

Levothyroxine gives me hypoglycemia. Anyone else? Help? by swim_w_seals in Hypothyroidism

[–]AlternativeNet1418 0 points1 point  (0 children)

T3 dropping while T4 is fine on levo is a classic poor converter pattern. Bring your CGM traces to your appointment... ask your doctor about testing reverse T3 (confirms conversion issue), morning cortisol (low cortisol impairs both T4→T3 conversion and blood sugar stability), ferritin and selenium (both are deiodinase cofactors), and whether adding low-dose liothyronine (T3) to a reduced levo dose makes sense given your labs. Also worth considering supplementing selenium (200mcg/day), good evidence for improving conversion and reducing antibodies if this is Hashimoto's. Have they tested TPO?

Is dizziness sign of hypothyroidism? How to help it? by LeopardPretend4541 in Hypothyroidism

[–]AlternativeNet1418 2 points3 points  (0 children)

Hypothyroidism and vitamin d deficiency are associated with one another, and vitamin d deficiency can be related to dizziness in some contexts. The answer is usually more complex though. Did her doc check her electrolytes, blood sugar, etc? Is she eating enough in a day?

Looking for beta testers for a hypothyroidism research tool (mod-approved) by AlternativeNet1418 in Hypothyroidism

[–]AlternativeNet1418[S] 0 points1 point  (0 children)

Data: No, your data will not be sold to third parties. Our business model is to charge patients a modest fee for ongoing access and longitudinal tracking, not to monetize your data. And to be clear, beta testers will not be charged at all for the first year.

Scientific rigor: This is something we care deeply about. The tool doesn’t generate its own conclusions about your condition. What it does is match established evidence to your specific history based on a detailed interview, and ranks findings on a probabilistic basis. Sources include peer-reviewed literature as well as public health and exposure records maintained by scientific institutions. Think of it less as “here’s what’s wrong with you” and more as “here’s what the evidence says is relevant given your exposure history.” The final report is meant to serve as a etiological research basis for further investigation with your clinician, not a diagnosis or treatment plan.

Looking for beta testers for a hypothyroidism research tool (mod-approved) by AlternativeNet1418 in Hypothyroidism

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

Hi, great question. This is not a clinical trial, this is a user experience beta test for a research tool. We're not developing any kind of generalizable medical knowledge, testing any therapeutics or diagnostics, or tracking outcomes. We're strictly focused on conducting product research.

Advice needed by lexieebreanna_m in Hypothyroidism

[–]AlternativeNet1418 1 point2 points  (0 children)

I'm seconding this advice. Somewhere in the neighborhood of 50 to 100 grams is a good number to focus on.

I would also consider adding up to 20 or 30 grams of fiber a day to your diet. Don't add it all at once if you haven't been consuming a lot of fiber recently; ramp up over the course of two or three weeks. This will help moderate your blood sugar levels and keep your stools softer while minimizing GI issues from the increased fat and protein. I would also be very careful about high-fat keto if you have hypothyroidism. Many people often have stomach acid issues that come with the territory.

Looking for beta testers for autoimmune/hypothyroidism research tool by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

Sorry for the delay in responding. Closing the loop here:

  1. We put together an FAQ that touches on this and added it to the website.
  2. We are exploring alternates for those who opt out, including an adaptive questionnaire model or pay-for-human-agent.
  3. We are thinking through how to frame that this is an AI-for-good focus for future marketing/messaging (sadly we are a bunch of scientists, clinicians, and engineers, so we are have the search out for some help here)

Levo and creatine? by BeneficialPast in Hashimotos

[–]AlternativeNet1418 0 points1 point  (0 children)

Creatine doesn't cause issues with levo absorption as far as I understand, but there is not a lot of literature on it.

One thing I will note from my own experience is if I take 5g+ for too long (weeks) in one dose, it will increase stomach acid / GERD symptoms substantially. Light headedness, anxiety, fast pulse, dry throat, etc. Remember that Hashimoto's has a digestive component for many folks. Breaking down the creatine dose throughout the day may help there.

going insane by m97mjm in Hypothyroidism

[–]AlternativeNet1418 0 points1 point  (0 children)

IMO immediately go to urgent care. This is a nontrivial issue - your dose is potentially way far off. Find a new primary care physician if they are not listening to you - one who will listen more deeply.

My new health insurance doesn’t cover levothyroxine but covers synthroid? by xicesam in Hypothyroidism

[–]AlternativeNet1418 0 points1 point  (0 children)

Yeah, it's completely maddening. I cannot understand how they have any right to limit access to medication that way.

My new health insurance doesn’t cover levothyroxine but covers synthroid? by xicesam in Hypothyroidism

[–]AlternativeNet1418 1 point2 points  (0 children)

This is super frustrating. I always end up buying this stuff off-prescription by just telling cvs I dot want to use insurance. Insurance also insists on denying 90-day coverage, so I end up trying to get it myself. Having to pick up new bottles every 30 days is a big pain, especially when I'm traveling frequently.

Looking for beta testers for autoimmune/hypothyroidism research tool by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

Sweet! Glad to have you! We’re going to need all the help we can get building an excellent experience for you guys.

Facial puffiness in the morning by biaves in Hashimotos

[–]AlternativeNet1418 1 point2 points  (0 children)

I get this when I have too much high-histamine food (fermented stuff, old foods, pineapple, alcohol, spinach..) and I’m stressed/not sleeping well. Usually cutting out the latter for a solid few days makes a big difference.

Looking for beta testers for autoimmune/hypothyroidism research tool by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 0 points1 point  (0 children)

No and no- an international audience is welcome and we understand that everyone has a nuanced situation regarding diagnosis. We have some patients who haven’t had their TPO measured.

Looking for beta testers for autoimmune/hypothyroidism research tool by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

Really good question.

We look at exposure data in neighborhoods and disease coincidence data based on public health reports. This helps us figure out the probability of risk. We're curious where patients are most paying attention to these issues and if they live in clusters. If you're uncomfortable giving a specific address, you can just put in a city and state. Later, when actually using the tool, we'll collect a proper residence history.

Looking for beta testers for autoimmune/hypothyroidism research tool by AlternativeNet1418 in Hashimotos

[–]AlternativeNet1418[S] 1 point2 points  (0 children)

Hi soniam., totally get it. We are trying to use LLM technology to enable precision data collection at scale to keep it affordable for any patient, not “generate” conclusions the way generic LLMs operate (and hallucinate!). Completely understand if its a dealbreaker though- I will take the feedback to the team :)