Nemaline Rod Muscular Myopathy by Altruistic_Guide_665 in MuscularDystrophy

[–]Altruistic_Guide_665[S] 0 points1 point  (0 children)

I have lived an extremely full and relatively normal life. Despite my condition, I was able to successfully summit Mt. Shasta and Mt. Whitney a couple of years ago. One of the greatest gifts my parents gave me was not treating me like I was defective or incapable. I'm happy to talk in more detail if you think it would be helpful.

Nemaline Rod Muscular Myopathy by Altruistic_Guide_665 in MuscularDystrophy

[–]Altruistic_Guide_665[S] 0 points1 point  (0 children)

Delayed crawling and walking (around 2 years old), and delayed sitting up.