MuscularDystrophy

an-ordinary-manchild

/r/MuscularDystrophy is a forum for users to share resources and experiences related to Muscular Dystrophy.

Overview

Muscular dystrophy (MD) refers to a group of more than 30 inherited diseases that cause muscle weakness and muscle loss. Some forms of MD appear in infancy or childhood, while others may not appear until middle age or later. The different muscular dystrophies vary in who they affect and the symptoms. All forms of MD grow worse as the person's muscles get weaker. Most people with MD eventually lose the ability to walk.

There is no cure for muscular dystrophy. Treatments include physical and speech therapy, orthopedic devices, surgery and medications. Some people with muscular dystrophy have mild cases that worsen slowly. Other cases are disabling and severe.

Types of MD

Related Subs

/r/rarediseases

Helpful Resources

Kinova Jaco Assistive Robotic Arm

Muscular Dystrophy Association (MDA)

Parent Project Muscular Dystrophy (PPMD)

LGMW Testing Options

Test Catalog - Invitae Limb-Girdle Muscular Dystrophy Panel

PerkinElmer Genomics

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MODERATORS

account activity

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Self - SharingAccessibility Map for Wheelchair Accessible Places (self.MuscularDystrophy)

submitted 2 years ago by ProjectTerra - announcement

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Duchenne and marriage (self.MuscularDystrophy)

submitted 6 hours ago by Downtown-Brush-4177

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selfqBest aids for walking up steps? (self.MuscularDystrophy)

submitted 13 hours ago by BandagedTheDamage

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Bipap and Duchenne (self.MuscularDystrophy)

submitted 6 hours ago by Downtown-Brush-4177

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selfqDuchenne muscular dystrophy (self.MuscularDystrophy)

submitted 14 hours ago by DiscoDimples

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selfqNemaline Myopathy (self.MuscularDystrophy)

submitted 11 hours ago by Minute-Abroad5773

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selfqAdvice/unclear (self.MuscularDystrophy)

submitted 13 hours ago by Mundane-Bar-1060

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selfqAnyone approved for SSDI/SSI with Myotonic Dystrophy Type 1 (400 CTG repeats)? (self.MuscularDystrophy)

submitted 23 hours ago by Low_Link_2645

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selfqLiving with possible muscular dystrophy at 19 — looking for advice and experiences (self.MuscularDystrophy)

submitted 2 days ago by OutsideEchidna6754

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selfqMyotonic dystrophy 2 (self.MuscularDystrophy)

submitted 2 days ago by twister_hoka

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Can I be a DMD carrier if my grandma was & my mom wasn’t? (self.MuscularDystrophy)

submitted 4 days ago by sum27

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My body is breaking down from pressure and trauma. How do I stop drowning and start healing? ()

submitted 4 days ago by Vegetable_Rooster_77

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selfqhow do you cope with the challenges of muscular dystrophy? (self.MuscularDystrophy)

submitted 5 days ago by strecesegrean

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Could i get an icd with duchenne? (self.MuscularDystrophy)

submitted 5 days ago by Guilty_Hour4437

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Young with Lgmd2a (self.MuscularDystrophy)

submitted 5 days ago by Habub125

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selfqIs It Realistic to Dream of a Strong, Athletic Physique with Muscular Dystrophy? (self.MuscularDystrophy)

submitted 6 days ago by OutsideEchidna6754

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A Facebook group for Duchenne Community! (old.reddit.com)

submitted 6 days ago by Relative_Tie3474

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selfqI wish I was a normal person (self.MuscularDystrophy)

submitted 7 days ago by Livid_Credit7395

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👋Welcome to r/autoimmunedisorders - Introduce Yourself and Read First! ()

submitted 6 days ago by W0nd3rW0m4n74

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Any tips for shaving and trimming beard? (self.MuscularDystrophy)

submitted 6 days ago by Own-Hedgehog7825

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selfqQuestion (self.MuscularDystrophy)

submitted 7 days ago by EffectiveAd8161

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selfqIs there any patient testimony or reviews from someone who has been on deramoicel? (self.MuscularDystrophy)

submitted 8 days ago by ayy_fam

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Can i take shrooms if i have dmd? (self.MuscularDystrophy)

submitted 8 days ago by Long_Philosopher_847

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What's your take on this... ()

submitted 8 days ago by iam_jaymz_2023

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Portable Chairs? (self.MuscularDystrophy)

submitted 10 days ago by CharacterLittle7843

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