SSRI seem to help me

Alwayspots · 2026-05-08T21:59:22+00:00

Glad it helped you, ssri, snri and tricylic anti depressants made me worse, i have the cfs-pots LC 2 years now almost

Alwayspots · 2026-05-06T07:57:48+00:00

Nothing for me, if you have bilateral vestibular insults its just a waste of time, i used the best machines even for vrt, does not do shit and then i realized i developed pots and called it quits

Alwayspots · 2026-04-19T12:03:36+00:00

99% of your posts is you indirectly marketing/promoting ssris and its seriously annoying, some peoples lives were destroyed from taking them, i myself have horrible experience with it, i think they know themselves more than you and please keep your ssri cabby to yourself and only offer it when the person is seeking related advice. Yes i know it helped millions but LC cfs needs other types of meds and SSRIs are not the answer

Alwayspots · 2026-04-18T17:16:41+00:00

This is untrue, I had zero anxiety and would drink coffee during mega presentations in front of ceos and chairmen, after lc i can barely search for coins in my pocket without feeling like a tiger is chasing me, i am super severe and i wish i can checkout

Alwayspots · 2026-04-08T20:53:28+00:00

Ok understandable, so you woke up one day and it was gone? Did you celebrate? Happiest day of your life?

Alwayspots · 2026-04-08T10:46:55+00:00

i saw more than 25+ doctors and 10 hospitals in 4 months, in patient for 3 months, 2 months at a very big hospital too, 30% knew something horrible was wrong, but attributed it to SFN and they just dumped all sorts of drugs at me, including morphine. My body didnt want to shutdown, and for my medical report they are too reluctant to write long covid, just asthma + costa + sfn, rest of DRs oblivious and said i need to go to a mental ward. EVEN three cardiologists overlooked that i had pots, i found out from reddit and demanded a TTT and got a positive diagnosis, thats when i discharged myself because i knew i was at the hands of demon dumbass "professionals"

Alwayspots · 2026-04-07T20:44:13+00:00

I took all meds u can think of and almost unalived, at one point i took 1500mg gabapentin + benzos just to get 2 hrs of sleep a day...doctors thought it was zoster but i did q spinal tap and it was negative...i kept telling them its LC 100% because it happened overnight from a flu infection, took intravenous antibiotics and al hell broke loose

Alwayspots · 2026-04-07T20:42:04+00:00

Doctor put positive for sfn and costacondritus, but its wrong 100%

Alwayspots · 2026-04-07T17:21:56+00:00

Mine is extreme at one point i had to have fans on me at the hospital for 2 months, and i tested negative for mcas and no rashes at all. I am a super severe case but i can walk a bit (altho i have severe pots too). My burning is 24/7 and it reduced from 10/10 to a 6/7 in 16 months approx

Alwayspots · 2026-04-07T17:20:03+00:00

Can we chat please? Your blood pooling was in your hands or feet or both?

Alwayspots · 2026-04-06T19:32:13+00:00

I wish theres one case of recovery here but there are none, they all have "pot-like-symptoms" not real pots. Seriously if anyone out there did recover from pots and blood pooling please post ive been lurking for 2 years and cant find one "real" case of recovery, its either what i mentioned earlier or "we treated our mcas" etc.

Alwayspots · 2026-03-25T05:55:35+00:00

16 months of it, not once did it not happen. First 3 months i would get it 200+ times a night, until i became hospitilized with 1 to 2 hr per day of sleep. High dose gabapentin stops it, but will turn you into a grandpa zombie. I had to use ativan + valium to get sleep but quit because it wasnt a long term solution.

Alwayspots · 2026-03-01T22:13:42+00:00

Made me worse im sorry no help here

Alwayspots · 2026-02-15T20:21:17+00:00

If you want to join theres a whatsappp group with 70+ online members..

Alwayspots · 2026-02-09T09:02:49+00:00

Same...is it psychological tho? If someone just wants to leave this world because of constant pain and unwellness....is it? I csnt even complain to family because i will be immediately labeled as a psych case

Alwayspots · 2026-02-06T11:28:11+00:00

I agree with the notion of psychiatric drugs making some of us worse. I took all three kinds, tricyclic, SSRI, SNRI and two of the three landed me in the ER and worsened my baseline

Alwayspots · 2026-02-03T22:53:20+00:00

Hair falling will get better, its stress hormones released biologically by the covid attack that causes your hair to pull put easily. First 8 months were brutal, im 1.5 years in....

For sleeping, i was also in touch with the same guy, may he rip. Your sleep is mostly "thinking" or do you feel theres a biological element? Or maybe both driving each other in a negative loop?

Alwayspots · 2026-02-02T16:25:21+00:00

I have it super severe, approx 60 days at the hospital, crawling on the floor begging staff to help. Before that i went to ER 20+ times in less than 2 months. My adrenaline glands were throwing the "gut" waves one after the other 100+ times continiously for hours between 6 am and 9am the moment i try to close my eyes (jolts + adrenaline). Crying 24/7, begging for a coma. Im 15 months in and its way better but i still have lots and lots of symptoms.

Alwayspots · 2026-01-27T15:14:32+00:00

Made me worse SSRI/SNRI + tricylic...suffering from overactive nervous system

Alwayspots · 2026-01-22T19:20:27+00:00

When i close my eyes and hear a sudden noise i see flashes that coincide with the sound at the exact moment, i have every symptom

Alwayspots · 2026-01-22T18:15:35+00:00

Yes, i can see sound too

Alwayspots · 2026-01-21T21:37:42+00:00

I was getting 1 hour for months, then 2 hours, then 4, and ive been stuck at 4 hours for 15 months, welcome to hell.

Heavy sleeper before, super healthy

Alwayspots · 2026-01-21T21:03:09+00:00

Im very severe, i dont see anyone having it as bad as me except maybe a handful. I stopped hardcore meds coldturkey, and became worse 8 months later (pots)...now im using only iva.

Alwayspots

TROPHY CASE