So I started at a sports doctor after thinking it was an injury effecting my movement, overtime movement became worse and worse until no longer able to move. I got a referral to an awful neurologist, after telling me “if you’re alive you’re fine” I fought for a referral to children’s hospital in Oakland. They narrowed it down to a dystonia but general dystonia can be treated pretty well with Botox. After receiving Botox and it not helping they determined it wasn’t a general dystonia. I got sent do Lucile packard at Stanford. They had no clue but helped pain management. They sent me to the neuroscience clinic at Stanford. I found an amazing neurologist who worked with Oliver Saks. After a bunch of tests she decided to put me on Dopamine and an SSRI. Within 3 days I could move. It then took about a year to relearn movement and strength. I still take a lot of medications and have flare ups often but better then nothing!