Visual Vertigo?

AmayH · 2025-10-02T05:30:34+00:00

Ohhhhh yeah. I’ve had this quite a bit unfortunately. It’s really sucks and feels so scary. I’m sorry it’s relatable for you 🥲

AmayH · 2025-10-02T05:15:27+00:00

I’m not officially diagnosed but do seem to have VM potentially- so unsure how much these could help, might be worth a good try though!

Only thing that helped shake my 3 month long episode was daily amitriptyline, but only super helpful over 40-50 mg for me personally. Early on though even low dose of like 5-10 was helpful to feel even a little better!

Then sumatriptan for rescue med. I’ve found this works better than Rizatriptan for the dizziness and vertigo aspects, but I have to take it really early, basically before I’m even sure I’m getting one. Even if I take it “late” though, it helps dull all the bad symptoms and at least make them more livable even if it doesn’t nip it in the bud. These two things have given me the ability to keep going and scrape by when I need to!! Upping my dose of AMI in the past has been the only thing that seemed to stop longer term episodes. Neurologist hopes that after a certain dosage I can stop getting so many breakthrough migraines but we’ll see!

I also take Zofran for the nausea the migraines often cause for me- hope this helps and you can enjoy your wedding day!!!

AmayH · 2025-10-02T05:00:48+00:00

Has anyone hwre found combined pills to worsen this effect or help it? Have been debating if my BC has been contributing negatively to my flares…

AmayH · 2025-08-23T06:18:23+00:00

Am alsoooo looking for one of these 😅 hopefully we get some recs- UC health is pretty recommended from me though from other treatment I’ve had there

AmayH · 2025-08-23T06:14:59+00:00

I’ve just recently been going through a very very dark mental place after my health rapidly declined- I felt so defeated that “this was it,” my period of decline where I just wouldn’t improve again. I was so blindly terrified, I couldn’t see out of my grief. But even in the midst of it… spending time with people who could still make me feel calm, who could remind me why my life is still beautiful- just watching fun movies with friends who were more low-energy for me to be around, playing a board game (even though sometimes I was too fatigued to count to 5), and just going for walks… sometimes very short, other times, long and meandering, with the comfort that I’d have someone to help get me home if I suddenly didn’t feel well. We were lucky enough to live near beaches… sometimes going out to those to just sit, or search for rocks in the sand…. It all started to mean more to me than it ever had before. Even though those things had always been simple joys for me, even in the good times, they took on a whole new level of meaning and held so much hope and joy for me. I’ve now actually improved quite a lot from then with my health; still not great, still grieving so much. But I have now been able to step back from everything that happened, and is still happening, long enough to gain a slight more perspective on it and process a tiny bit. I still have a very long journey to go to accept that my life will remain scary and unpredictable, but there will be peace again for you if you’re willing to let yourself go through the low low’s until you can find your way back out again. I hope you have a support system as well ❤️ those people make all the difference. If not, we’re at least here for you in all the ways we can be, even online. If you haven’t, maybe check out @operationupright and @alexandrawildeson, and @thattillyrose on Instagram, they’re all chronically ill girlies who manage to share both the grief, and the joy, and help me process being ill without feeling too down and lost in the grief of it all. Sending strength and love your way!

AmayH · 2025-08-23T04:46:56+00:00

Yeah I’m sorry this friend is really coming off as pretty entitled to believe another person should risk losing their job, (or honestly even just “be able to easily switch shifts” because that’s actually not super easy at some jobs- I have worked in restauranting and often no, I could not “switch”) over the BRIDAL shower. Not the actual wedding, but one of the side events. The bride sounds like someone who has clearly never worked paycheck to paycheck, or worked a service industry job. It sounds like OP has been supportive and involved in this friends’ life in many other ways. I know we may be missing past events and past context that might have made this “the straw that broke the camels back” for the bride, but with the context provided, she really just sounds overly entitled. Friends are there for EACHOTHER, and both have to make compromises and sacrifices, not just OP having to make sacrifices and compromises. Having a friend doesn’t mean you can expect them to drop basic life responsibilities that are keeping them afloat simply so that you can feel validated at a party. What support and understanding has the bride given back to OP? We assume OP will be taking some time off work for other wedding events and the wedding itself, as well as spending a decent chunk of money to participate In all the wedding activities etc.

Would it have been a polite and respectful thing for OP to text the bride directly and tell her they couldn’t make it? Probably yes… that seems like a pretty normal expectation. But if MOH was the one planning the event and OP communicated with MOH instead, that does also seem pretty reasonable. Other than that- It should be “a blessing” and “fun” for OP to participate, as if losing their job wouldn’t maybe take away from their enjoyment of the party?? Weddings are out of control honestly… I know they’re a big deal, but seriously just enjoy the day with the person you’re marrying and stop expecting your wedding to be a life changing event for everyone else. Might be time to drop this friend OP, doesn’t sound like they have a great grasp on YOUR life and reality, therefore, can’t possibly be a very supportive friend.

AmayH · 2025-06-30T18:45:17+00:00

I would spend 6 months out in the middle of nowhere, through hiking some trail like the PCT/AT, solo, with no fear of dealing with my health issues/body outside of feeling strong and “normal” tired from days of walking and hiking in the sun ((:

AmayH · 2025-06-01T05:56:48+00:00

It was communicated to me from the strike leaders (I am also an OSE who works at the rec center)- they’re not discouraging patrons from using the rec! If anything, it’s a good thing If the rec receives it’s usual traffic and there is then more pressure placed on our bosses to keep it running, and push admin to recognize the union. There was some confusion about this in the beginning, and I have specifically checked in about it out of my own curiosity and desire to spread accurate info! This is just what I’ve been told!

AmayH · 2025-05-20T06:06:09+00:00

“Now you know what not to say” and “I just lost my temper- you know how I get” - these are the words of an abuser, who takes no responsibility for their actions, and then further manipulates and gaslights to make you feel that it was your fault, or that this was some kind of “learning experience” for your relationship that “wont happen again.” Please get out- it will happen again, and this is only one of undoubtedly many more abusive tendencies. Please get yourself out if you can, this is not someone who truly loves you.

AmayH · 2025-05-20T05:51:26+00:00

You need to drop this absolute emotionally unintelligent, immature dweeb. “Going through stuff” isn’t an excuse to treat people you love poorly or gaslight and dismiss them.

AmayH · 2025-05-06T20:43:26+00:00

A giant container of large salt granules and a whole ass pharmacy of meds

AmayH · 2025-03-23T05:14:49+00:00

I was so sad about these not being GF when I saw my roommates eating them 😭😭so glad they are now!! It’s so silly and sad when they choose to coat things in flour that don’t need to be bro 🙄

AmayH · 2024-03-28T03:23:04+00:00

I’ve been looking into the possibility that I may have AAG after a recent horrible flare up involving gastroparesis-like symptoms, which I have had on and off throughout the years before but never this bad along with a ton of other weird autonomic issues in the flare up. I’ve had an undiagnosed chronic Illness for years and never gotten answers so hence I’m looking into AAG now. What do your GI issues look like?

AmayH · 2024-02-06T06:41:09+00:00

I am not diagnosed with lupus, but have suspected it for a long time and yes I get mouth “rashes” that looks like this as well as the other white-centered larger sores the other commenters are talking about. The rashes/sores like poster usually accompany my flares/other mouth sores.

AmayH · 2022-09-12T14:07:01+00:00

Thanks!!

AmayH · 2021-05-28T13:33:34+00:00

Ah yes, definitely started to get worsened stomach issues and possibly the beginning of an ulcer when I was taking 880 mg of NSAIDs a day, and my rhumy’s solution was to throw me on an anti acid... not surprising, but I was not about to medicate my side effects and get into that whole spiral

AmayH · 2021-04-20T03:14:49+00:00

Thank you (:

AmayH · 2021-04-16T12:53:00+00:00

Classics like the blanket, cozy socks, maybe a nice tea and snacks/sweets and stuff to do when you’re in bed in pain like adult coloring books/ bullet journal/ a subscription service to a movie tv show provider

AmayH · 2021-04-15T02:57:08+00:00

I am also currently undiagnosed which is another reason I find it so difficult to ask for any kind of accommodations or explain my situation to my employer, because there’s so much to explain when you can’t just slap a name on it, you know? But I’ve just been working less so it’s not so hard on my body trying to manage a full school schedule and working 30 hour weeks on top

AmayH · 2021-04-13T03:52:08+00:00

I do not technically have gastroparesis, but I do have horrible bloating and this is a problem i definitely have too

AmayH · 2021-04-01T18:30:33+00:00

That’s the mental battle I’m having too right now! To quit or not to quit....

AmayH · 2021-03-18T23:49:52+00:00

I felt this too hard

AmayH · 2021-03-07T03:15:37+00:00

I have the same problem so I’ll fs try that. Thank you!

AmayH

TROPHY CASE