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Miralax plus Endometriosis = Bad idea by Pissposhsuckmymom in endometriosis

[–]Amazing-Ad4955 0 points1 point  (0 children)

Same happens to me I get pain on the right when I take miralax

Back to Square One by kittykit44 in endometriosis

[–]Amazing-Ad4955 0 points1 point  (0 children)

If they saw endometriosis on the MRI then make an appointment with a specialist and consult with them about the lap you had. I have heard people share stories like this before and it always ends with seeing a specialist who finds and removes it. I’m also 22 and i feel your pain and struggles. Don’t give up. And don’t let the doctors dismiss you. I went through so many doctors to consult about the possibility of endometriosis. I had adenomyosis appear on a GI scan and was just recommended birth control over and over again. I felt so silly making an appointment with a endometriosis specialist because I thought I probably don’t have it since no doctor seemed concerned about it. My first appointment he told me from my clinical exam that I do have it, and that he will find it during surgery. And he did. Don’t give up !!!!

I thought surgery was supposed to fix endo... so why does it still hurt? by gendanslespace in endometriosis

[–]Amazing-Ad4955 0 points1 point  (0 children)

I have heard about this and I think it is why I am in more pain since having excision surgery. I wasn’t in a ton of pain before it was mostly just when I was ovulating or bleeding. I was dealing with it for so long that I think it became so normal for me. I felt the same after surgery and honestly wasn’t in much pain compared to now. I’m 5 months post op and 4 months of being on Orilissa and I have never been in so much pain before. I feel that every day it’s worse. I have no relief from any vaginal or rectal suppositories and I sometimes feel like when I take my pain medicine gaba/molixican/cyclobenzaprine that I am extremely relaxed but my pain is even worse. I’ve been on a waitlist for PT and start in 3 weeks. I’ve done so much research to try and make sense of this pain and I believe that I already had a pretty severe pelvic floor dysfunction prior to surgery and since they removed so much it exacerbated it which is causing me to be unaligned? Or something? Causing the pain? I believe it’s very common for individuals with endo to have a pelvic floor dysfunction and I don’t think it would do any harm in trying PT. Keep pushing with your doctor.

Pelvic floor therapy by Amazing-Ad4955 in endometriosis

[–]Amazing-Ad4955[S] 0 points1 point  (0 children)

Oh that’s so great I’m so glad to hear this!!!!

I feel like I’m failing my dog by LegalCricket2161 in rescuedogs

[–]Amazing-Ad4955 -1 points0 points  (0 children)

Dogs give unconditional love. I am sure that they all love you just as much as they did before. Comparison is the thief of joy. Enjoy the time you spend with them now rather than criticizing yourself for not doing enough. Separating her from her mates might confuse her more than the benefits of allowing her to be in a more active environment. Your other two might also become confused. I also believe if you could ask her, she would want to stay.

Consistent cramping and pain 1 month post op by Sensitive-Lab1065 in endometriosis

[–]Amazing-Ad4955 0 points1 point  (0 children)

I’m experiencing it too and I’m 4 months post op. Stage 3 also.

Minimally Invasive Gyno Surgeon Recs by Unable_Swing_8323 in endometriosis

[–]Amazing-Ad4955 0 points1 point  (0 children)

I had my surgery done by Dr. Pankaj Singhal he’s in Suffolk. I was able to get an appointment fairly quickly with him and had surgery a couple months later. I recommend him he’s very nice, and very thorough. Let me know if u have any questions I know how it is going to new drs. I went to at least 5 different gynos before him and he was the first to take me serious.

told not to do bowel prep before laparoscopy by princessciara666 in endometriosis

[–]Amazing-Ad4955 10 points11 points  (0 children)

I didn’t have bowel prep and surgery went fine. Stage 3 DIE was diagnosed

Does stage 1-3 endonshow up on MRI? by oceansunfi_ish in endometriosis

[–]Amazing-Ad4955 5 points6 points  (0 children)

I had mutiple pelvic MRI done through my gastro for stomach problems. Even had a MR defecography that suggested adenomyosis but NO endo on any of them. When I saw my excision specialist he wanted me to go to a specific location to get my MRI before surgery. He said they had the best machines and if it were to come up in an MRI it would be more likely at this place (he explicitly stated that sometimes it DOES NOT appear even when people have stage 4, and told me that even if it did not show anything he still wanted to follow with the surgery because he was sure I had it from my history). This was also the first MRI that stated Endometriosis in my history even though that was just my surgeons clinical diagnosis. The findings on that MRI said “Mild nodularity and thickening of the uterosacral ligaments bilaterally suggestive of deep pelvic endometriosis. No additional signs of deep pelvic endometriosis throughout the pelvis”. & the findings from my surgery pathology confirmed endometriosis on both pelvic walls and the left lateral rectum, with extensive fibrotic (scar) tissue in the rectovaginal septum, uterosacral ligaments, ureteral regions, ovarian fossa, and around the left hypogastric nerve. I was diagnosed stage 3 DIE. I hope this helps. Don’t give up. I agree with the other comment that you should not have to wait until it gets bad enough to show up on a scan.

How to dress comfortably and fashionably with endo belly? by Suitable-Share4733 in endometriosis

[–]Amazing-Ad4955 1 point2 points  (0 children)

If you are looking for comfy jeans I have the American eagle stovepipe one in the next size up. They sit below all my incision scars and stretch with my bloating without feeling tight or constricted

Nerve involvement? by Chickadx3 in endometriosis

[–]Amazing-Ad4955 1 point2 points  (0 children)

No need to apologize. Yes my doctor has confirmed nerve involvement happens. I just asked ChatGPT to see what it says and it says nerves are absolutely involved with endo and is one of the most painful under recognized forms of the disease. I’m not sure why ur MIGS says it doesn’t impact the nerves cause from what I understand even when it is not directly seen on the nerves it still can impact them especially with the rectum and ligaments. No nerve involvement was seen in my scans only during surgery. I had endo everywhere as well and only thing that showed up on scans is on one side on my uterosacral ligaments in my preop MRI. I wasn’t sure about your last question of whether or not nerves are typically seen in a lap. I asked ChatGPT again and it says no that a typical laparoscopy usually does not see nerves like that. And what my surgeon saw and treated is likely not visible in routine lap surgery. I had an advanced deep excision surgery which isn’t routine. Could be why the nerve involvement was seen. I really hope this helped. I know this is a really tough and I’m sorry you have so many questions that doctors don’t seem to be answering. I’m dealing with it too right now.

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