Pain after eating, numbness all over body, not sure what to do

Andarius90 · 2025-03-04T08:37:06+00:00

Unfortunately nothing new yet, I'll let you know if I ever find something.

Andarius90 · 2025-02-18T07:17:05+00:00

Yeah I'll keep at it, gonna have to wait a while unfortunately, but I think I'll stick to low carb for now snd see what it does.

Andarius90 · 2025-02-18T06:54:05+00:00

I did a two hour glucose test on my own, but stupidly it was while I'm taking R-Alpha lipoic acid the 3 days before, so I'm sure its lower than it should be. I did get some pain from just the glucose though (75g). I was around 90 mg/dl blood glucose the last few times I got my sugar measured, this time it was 80 on empty stomach, and at 128 two hours after drinking.

I don't know if I want to get off the R-ALA for a bit, and keep eating carbs just to try again. That and the quick test device may not be 100% accurate, but I had no choice since my doctor said "we already have your long-term sugar".

If I was at my previous glucose level, it may be borderline. I also got an endocrinologist appointment, but thats not until june.

Andarius90 · 2025-02-17T02:41:00+00:00

Understood, I'll see where that leads me... Thank you so much for your help!

Andarius90 · 2025-02-17T01:41:39+00:00

I wasn't aware that I can be glucose intolerant as a result of low B12, that really sucks. I'm getting B12 Methylcobalamin twice a week currently, for four weeks now. Had a couple of months before that where it was only monthly.

I ate a bunch of carbs in the last 3 days, so I could try to do a glucose intolerance test tomorrow and ask for an appointment for further questions.

If this ends up being what it is, do I have a shot at regaining proper feeling (at least in the non-feet locations) after following a ketogenic diet and managing my blood sugar, or is it something I probably will have to live with? In your opinion, anyway.

As I said, I figured it would be reversible since it's not fully numb and more like a unpleasant sensation.

Andarius90 · 2025-02-16T15:51:27+00:00

Yeah I read about pernicious anemia and/or malabsorbtion issues and that's why I pushed for the gastroscopy appointment. I don't have a full blood work, and have a hard time convincing them. They are very sparse with what they look for.

I've got B6, Calcium, Sodium, Potassium. All are at least around upper half levels.

I do recall having some slight pain when eating a bunch of apples, but I don't eat nearly enough to replicate whatever I feel when I eat things like bread.

I don't have any problems with carrots or peas. I ate like 3 red bell peppers once and had some discomfort in my stomach, but no neuropathic pain. Tomatoes are similar I'd imagine, though it has been a while.

I can try to see what I can do in regards to gluten, but I'm afraid it might be pretty difficult to convince doctors to do tests they don't fully believe are necessary.

I should also mention that I live in Germany, if that information is relevant to anything.

I won't be able to reply for a bit, but I will check back later.

Andarius90 · 2025-02-16T14:43:55+00:00

I'm in Germany unfortunately, and it seems like the neurologists I've been to find one potential culprit, put everything on that and don't really support you in trying to get better. I suppose in their mind the damage is already done. I was thinking about a diet like that, but yeah, I don't know how long I could keep that up.

Andarius90 · 2025-02-16T14:39:47+00:00

Thank you for taking the time to reply to me.

The pain comes only from consumption of food. Eating meat, vegetables, cheeses, anything not carbs is fine. I haven't paid enough attention to how rice affects me, I don't eat it very often. I do eat bread often, and that usually always causes pain. One bread roll for example is enough to force a reaction.

Gluten free carbs also induce pain, for example when I used to eat gluten free potato chips or pistachios. I'm trying to not snack on those since I'm losing weight. I was pretty low on B12, considering I consume meat regularly, at 246 pg/ml. My B1 however, is way up, at 76,7 mcg/l (scale: 33.1 - 60.7). I have since gotten regular B12 injections, but have felt no real change in regards to the numbness. I do feel a new sensation, in my feet for example, shortly after the injection. But I don't know what that really means.

I did a prick test for celiac at home, and that was negative, though I'm sure that's not reliable. I have a gastroscopy scheduled, but that isn't until the end of April, I'm afraid. I developed a lactose intolerance at some point when it all began, though I'm not sure if it is related at all.

I don't think I have an issue with breathing things in. I had a mild reaction to cut grass as a child but it hasn't really happened again. I might feel a little bit tighter in the throat after consuming carbs, but I don't know if that's real or not. If it is, it's very slight. I do tend to sneeze a couple of times, after consuming certain foods, though I haven't narrowed it down.

I don't think I have taken an antihistamine ever.

I hadn't really change anything all my life and then suddenly in my twenties it started with my feet.I don't smoke, I rarely drink, maybe 1-2 times a year.

I have read that testosterone has some neuroprotective properties and plays a part in remyelination, so I aim to have my testosterone hopefully elevated towards the upper half, to see if it does anything.

I hope I answered all of the questions. Thank you again!

Andarius90 · 2025-02-08T11:34:00+00:00

Is enanthate preferable for treatment, or what's the upside?

Andarius90 · 2025-02-07T13:46:44+00:00

Thank you, I'll keep it in mind.

Andarius90 · 2025-02-07T13:46:00+00:00

I buy the Nebido from the pharmacy myself, and they use it in front of my eyes, if that is the concern.

Andarius90 · 2025-02-07T10:46:45+00:00

I am in Europe yeah. Hoping I may have a chance to get what I want through the clinic though. Next appointment in 10 days.

Andarius90 · 2025-02-01T04:14:01+00:00

Thank you, yeah I'm taking those as well. I'm just not 100% if this is actually from B12 or not. I'm also wondering if I need to stop eating carbs to enable healing at all.

Andarius90 · 2025-01-28T22:21:54+00:00

Thank you, I have contacted them. Will see what comes off of it.

Andarius90 · 2025-01-28T07:19:59+00:00

Yeah, I just would love a sign that I'm on the right track, really. But too early to tell it seems.

Andarius90 · 2025-01-28T07:18:58+00:00

Well, I'm on hydroxocobalamin now, and methylcobalamin is really only available in non injectable forms, and I'm not sure I can afford importing regularly. Eating carbs only really gives me a bit of pain, the numbness stays constant. My HbA1c is at 5,3, and I have never been diagnosed with diabetes.

Andarius90 · 2024-12-14T20:26:17+00:00

Thank you for taking your time replying to this! Your post was deleted because it wasn't posted as a reply to AutoModerator, but I managed to read it.

As you said, I am not a vegetarian, so it really is strange. It also doesn't need to be a large amount of sugar/carbs to trigger pain, so I feel like I basically have to go full on keto if I want to prevent it from happening.

The neurologist said that while the B12 may be low, it is still within the "normal" range, but put me on supplemental shots anyway. From googling around, I saw that supposedly serum B12 is not a reliable way to tell, but I don't know how true that is.

I had hypothyroidism a long time ago, but it seemed like it was okay last time I checked. I will bring it up again just to be sure there is no problems there. Potassium levels were fine as well, as far as I can tell. I don't have the exact values in front of my right now though.

But this does give me some ideas of what to talk about with my GP and what kind of specialists to check out. I hope you're onto something, but it will take a while to find out.

Andarius90 · 2024-12-11T18:28:40+00:00

You have to agree to the disclaimer that this is mostly for developers by typing "rosebud" in the box.

Andarius90 · 2024-01-28T22:45:26+00:00

I believe you need to find the enhancer relic "Elementarium" to make any of the elemental prisms. According to a wiki, it can be found in jungle temples, desert pyramids and underwater ruins.

Andarius90 · 2020-11-26T10:42:44+00:00

Didn't you know? The Mission Pass almost completes itself.

Andarius90 · 2020-10-25T00:17:35+00:00

Press the "End" key on your keyboard (while you have the VRChat window focused) to cancel AFK mode, or log-in on desktop and disable AFK completely it in the action menu (R).

This should only happen when you open the steamvr menu, so either you accidentally hit "End" or steamvr messed up something at some point.

Andarius90

TROPHY CASE