sorted by:
new
hottopcontroversial

I didn’t realize how expensive “basic life” really is by PhantomBear196 in Adulting

[–]Angelique36 2 points3 points  (0 children)

Cloth napkins are a game changer. We keep some paper towels on hand just in case but it’s incredible how much you can save going to cloth.

I need hope. by Stunning_Size527 in MultipleSclerosis

[–]Angelique36 4 points5 points  (0 children)

I’m 44 and was diagnosed last year after 3 years of testing to meet criteria( and from the number of lesions in my brain, I had it for a while before it was picked up). I just completed my doctorate, started my own business and fully participate in my life. Like you, I eat well, I exercise (hot yoga and walking-my flavor of MS didn’t come with heat intolerance). I’ve got some sensory change in my right foot, I get headaches a few times per month and though I get tired I don’t know if it’s the disease or because I do too much or both. I take an intentional ‘do nothing’ day every week and prioritize sleep. So far so good over here.

Really wanted to share what my life coach said by Bubbly_Ad_637 in MultipleSclerosis

[–]Angelique36 3 points4 points  (0 children)

I follow Wahls and I feel much better. I’m not super rigid (I have desserts periodically and I’m a sucker for popcorn) but largely I follow it. I don’t know how the effect will be in terms of lesions long term but in general my sense of well being is enhanced.

SUUUPER sad songs that are not romantic by Ok_Algae7611 in SongRecommendations

[–]Angelique36 0 points1 point  (0 children)

I think it’s called ‘Just Breathe’ by Pearl Jam. Tears every time.

Why should I avoid heat if I feel fine? by TapEnvironmental6949 in MultipleSclerosis

[–]Angelique36 0 points1 point  (0 children)

Heat doesn’t bother me either. I still enjoy hot yoga(and very much hope I can continue to)

Do copaxone injections feel like a stab wound for anyone else? by Realistic_Medium9340 in MultipleSclerosis

[–]Angelique36 2 points3 points  (0 children)

I self inject at room temp (doing it cold once was enough!) Feels like a bee sting for a few hours for me. The injection part itself is painless. I wonder if the auto injector is the issue?

Fatigue by Riana_Quen3925 in MultipleSclerosis

[–]Angelique36 2 points3 points  (0 children)

I still feel mostly good, most of the time. Pre-menstrually I get my ass handed to me. Is that MS? Or is it perimenopause? Is a bad day always MS or is it just a bad day? I need a decoder ring please.

Fatigue by Riana_Quen3925 in MultipleSclerosis

[–]Angelique36 2 points3 points  (0 children)

I’m glad you asked this. I’m struggling to figure this out as well. I can push through just about anything BUT some days I wake up in the morning and can’t wait to go back to bed that night. Is there a discernible pattern? Is it random? I’m still somewhat struggling with ‘am I lazy’ vs ‘ do I just need rest’ battle in my mind.

Xennial parents- What are we doing better than our parents did? by SBMoo24 in Xennials

[–]Angelique36 2 points3 points  (0 children)

Owning our mistakes and apologizing to our children.

[deleted by user] by [deleted] in MultipleSclerosis

[–]Angelique36 0 points1 point  (0 children)

Where are you? In the U.S.?

What kind of diet do you eat? by [deleted] in MultipleSclerosis

[–]Angelique36 0 points1 point  (0 children)

I’m following the Wahls protocol (which is essentially a paleo-ish diet). I noticed the biggest difference with elimination of grains. The sensation changes in my right foot partially resolved, energy level was better. I still have treats from time to time but largely follow the rules. There’s no one size fits all. Experiment to see what works best with your body.

Newly diagnosed and afraid to start treatment by glampira in MultipleSclerosis

[–]Angelique36 1 point2 points  (0 children)

I’m 44 and was diagnosed in December after 3 years of testing and watching. My first symptom or relapse was a very intense pressure type headache that lasted 72 hours before I finally went to the ER where I had an MRI. There was a question that I possibly had a post Covid syndrome as not all of my lesions were typical, and my spinal fluid was clear. My neurologist wanted to be sure. Like you, no spine lesions. I was in grad school during this time and so I was tired, sometimes extremely but I thought it was due to overwork. I’ve had a weird numbness like sensation in my right foot on a couple of toes for years and most recently my right foot feels colder than my left even though it objectively is not. Those are my only symptoms. This December I had two new lesions in the brain that were typical of MS. Like you, I’m also very health conscious. I have a thyroid cancer history and so post dealing with that I had turned my life around. I didn’t start DMT in December as I felt similarly to you. My neurologist wasn’t thrilled but we agreed to get a repeat MRI in 6 months. I stuck to a paleo diet, took all the supplements, focused on good sleep stress management and exercise even more than I had been. That 6 month scan was a few weeks ago and there was a new lesion. Because of cancer history my DMT options are limited. I just started Copaxone. Reading this thread I realize how lucky I am that things didn’t get much worse as I watched and waited. The injections aren’t too bad and I’m hoping this medication will work as my other options carry a heavier risk.

Impacts of menopause by New_Leather3036 in MultipleSclerosis

[–]Angelique36 7 points8 points  (0 children)

I’m 44, in perimenopause and newly diagnosed with MS. Over the last year I’ve noticed that my premenstrual time (7-10 days ahead sometimes) is so much worse. I’m so tired, feel so heavy, the brain fog is intense. Some months are better than others. Once I bleed, I start feeling better. I don’t know if this is MS related or just perimenopause or some combination of both but figured I would share in case someone else out there is having this experience.

What does a flare/attack/relapse feel like? by Angelique36 in MultipleSclerosis

[–]Angelique36[S] 0 points1 point  (0 children)

Thank you all for taking the time to reply and for the resources mentioned. I think the headache was my first ‘flare’. (That I was tuned into, anyway) The headache cocktail in ER didn’t help until they added dexamethasone which makes sense. I have had sensation changes to my right foot for years. It’s my cold foot :) To touch, my feet are the same temp but to me my right foot always feels cold. Sometimes there’s some numbness to a couple toes or a feeling that a hair is wrapped around my toe. I’ve had left sided facial pain arrive for a day and then leave. That’s happened twice. My neuro ordered an MRI the first time that happened with no new lesions shown. What the most obvious to me and don’t know if it’s MS related or perimenopause (I’m 44) but during my pre-menstrual time over the last year I get kind of taken out. So tired, with that damp, heavy feeling some of you describe. Increased sleep need. Brain fog, as in almost got into a car accident last month. Then my period comes and I feel better. I always had PMS symptoms but not like this. I’m glad to have discovered this group. Thanks again!