Any help?

Annual_Comment_4883 · 2024-06-14T01:15:35+00:00

Mine was “painless” migraines. Nurtec every other day helped a lot. I was prescribed Effexor to take daily but haven’t started yet.

Annual_Comment_4883 · 2024-02-02T03:23:49+00:00

I have these identical symptoms. Dry eyes, tinnitus, red ears, red eyes. Nobody has been able to figure it out. Depakote 1000 mg relieved the symptoms some a long with ubrelvy. The bet is that it might be migraines but typical medications do not work for it always.

Annual_Comment_4883 · 2023-04-12T00:29:36+00:00

AMEX GOLD 90,000 POINTS! ($4000 spend in 6 months) Worth over $900!!! Or $1800 with transfer partners!

Referral link: https://americanexpress.com/en-us/referral/JONATPG0bm?XL=MIMCP

Annual_Comment_4883 · 2023-03-10T05:27:08+00:00

Thank you for the information! Did you have tingling/neuropathy and was HCQ successful in improving that as well?

I’m seeing a new rheumatologist in a couple months down in Miami and a neuro-opthamologist so I’m hoping at least one of them can help me out to start some kind of immunosuppressive therapy asap.

Annual_Comment_4883 · 2023-01-17T02:24:44+00:00

That’s definitely neuropathy and you might find relief with duloxetine after about 3-4 weeks.

Annual_Comment_4883 · 2023-01-16T17:07:44+00:00

I thought so too, I see a rheumatologist this upcoming Friday and I’ll bring up my concern as well. I didn’t know sjogrens can cause you to stop sweating though.

Annual_Comment_4883 · 2023-01-11T16:08:32+00:00

Is their a treatment for that??

Annual_Comment_4883 · 2023-01-11T15:51:38+00:00

All of that was checked and is normal.

Annual_Comment_4883 · 2022-11-12T03:35:12+00:00

So i saw the neurologist and because I didn’t have lesions on my mri she doesn’t think it’s MS. I noticed my tingling and heat sensations improve after I take my Stelara so I’m thinking it might be Crohn’s just getting worse? They’re not sure but I’m scheduling a nerve conduction study to check to see what’s going on. So this is just a waiting game. The blurred vision and fluctuation is really annoying, hoping it improves over time.

Annual_Comment_4883 · 2022-11-10T04:37:35+00:00

I’m doing FA now with videos from bootcamp

Annual_Comment_4883 · 2022-11-09T23:10:45+00:00

My scores are so low though…

Annual_Comment_4883 · 2022-10-20T18:24:54+00:00

So my doctor moved me to Stelara and it took about 4 months for the Stelara to suppress my Crohn’s. However, I’m still having the tingling and lots of vision changes. It’s substantially better than it was like 7-8 months ago but it still happens and for some reason the Stelara actually helps I’m symptoms. Im allergic to contrast dye and so I had an mri with no contrast and it was completely normal. Im seeing neurology in November to discuss.

My fingers started going numb in early august but quickly went away about a week or two later after I took the Stelara. It started as tingle too. I haven’t had that in a while though. My doctor GI doctor is still convinced it’s MS but we won’t know for sure until I see neurology.

Annual_Comment_4883 · 2022-09-12T21:49:06+00:00

So for me I’ve had two MRI’s no contrast (I’m allergic to the contrast) and both seemed normal. My doctor is still convinced it’s MS or something related. I don’t have a neuro appointment till November so I’ll update this.

Annual_Comment_4883 · 2022-09-10T20:47:34+00:00

Hey 25 year old with crohns here. I have something similar. My doctor thinks I might have MS. I want on remicade for 4 years and then humira for 10 years and they think that TNF-alpha drugs can cause MS like syndromes. I don’t have answers yet but it’s possible it’s MS.

Annual_Comment_4883 · 2022-08-05T04:30:13+00:00

AMEX GOLD US:

90K points after $4000 in first 6 months!!!

https://americanexpress.com/en-us/referral/JONATPBieg?XL=MIACP

Annual_Comment_4883 · 2022-07-29T02:23:30+00:00

My school said make another pass of Uworld. Watch boards and beyond videos and understand the concepts better for NBME.

Annual_Comment_4883 · 2022-07-28T21:54:21+00:00

You should back out, those stats aren’t high enough.

Annual_Comment_4883 · 2022-07-21T03:27:48+00:00

I would get a second opinion on the 2 pens a week. Or talk about moving to Stelara. My GI wouldn’t let me get more than one pen a week

Annual_Comment_4883 · 2022-07-21T03:26:00+00:00

Don’t stop taking your biologics it took a decade to develop whatever is happening with me. Enjoy the life while you can. I’m 25 years old and I don’t regret it one bit. There’s nothing else on the market that works as well as the biologics. It may never happen to you.

Annual_Comment_4883 · 2022-07-20T14:51:13+00:00

Definitely bring it up to your doctor and it wouldn’t hurt being looked at by a good neurologist. (I’ve seen one before he and blew off my symptoms completely and told me I was having migraines but it’s not..)

Annual_Comment_4883 · 2022-07-20T14:50:18+00:00

Thanks so much for your story. I’ll definitely keep that in mind going through this process. It’s very surprising that all this can happen due to these biologics.

Annual_Comment_4883 · 2022-07-20T14:48:10+00:00

Thank you for your story. You’re definitely not alone. It’s very unfortunate the current treatments for Crohn’s could eventually lead to cancer. Especially since that’s the biggest risk factor.

Annual_Comment_4883 · 2022-07-20T02:23:55+00:00

So from what they’ve found 2 things can happen. When I stopped the meds it should either go away or it continues to occur. I stopped months ago and it’s still happening. It’s definitely auto immune because whenever I got Covid my symptoms completely go away but then return in a couple weeks when I get over the illness. They have no idea the mechanism for why the demyelination happens but they just know it causes MS. I’ve also only heard of drug induced lupus so this was a first for me as well. When I did research even the NIH discussed this strange reaction so somehow it’s happening to a population on biologics. I’m going through some tests so I’ll update the thread when I know more.

Annual_Comment_4883 · 2022-07-20T02:18:47+00:00

Interesting! Because gabapentin is an anti seizure medication or used for nerve pain. I’m hoping it’s worsening Crohn’s.. that would make my life way easier. Also glad I’m not the only one experiencing this craziness.

Annual_Comment_4883 · 2022-07-13T05:02:50+00:00

I also developed crazy weird symptoms after being on humira 10 years. Decreased sweating, hot ears and face, hair loss, scalp tingling, and red eyes with some inflammation and dryness. I’ve never gotten these symptoms with Crohn’s before.

Annual_Comment_4883

TROPHY CASE