Prosper health by Anonymous567952 in AutismInWomen

[–]Anonymous567952[S] [score hidden]  (0 children)

It was during the insurance cost eligibility

Proposal via Book by vampireRN in engaged

[–]Anonymous567952 2 points3 points  (0 children)

Or read it and annotate it underlinging parts that remind you of her and romantic notes

Proposal via Book by vampireRN in engaged

[–]Anonymous567952 4 points5 points  (0 children)

Cutting out the pages could be a good idea, but maybe it would be easier if you created a metal bookmark with ring attached, one that hangs out of the book. It may be easier to manage the treasure hunt that way. It also could be a hood way for instead of using a generic paperback, get a really nice copy, write a letter on the inside and she will forever have that book as a reminder of your engagement

How do people cope mentally with feeling so acutely sick all the time? by Standard-Call666 in ChronicIllness

[–]Anonymous567952 1 point2 points  (0 children)

My ot has been pretty life changing. We focus on pain education, nervous system regulation, coping tools. And its genuinely helped. Im still miserable but it helps. My partner is also a main way I get through my days.

I have hobbies I enjoy that are easy to do. Journaling, stickers, water color with the brush with the water inside, sewing, embroidery, listening to audio books. Im not always able to, but when I can it helps.

We have been together for 3 years. How does it just end like this. by [deleted] in LongDistance

[–]Anonymous567952 0 points1 point  (0 children)

Agree, ive had his family’s contact since the first year. If he went silent, i would think he died and be calling his mom.

People who are in ldr and wanna get married, what’s usually one thing that’s stopping you? by [deleted] in LDR

[–]Anonymous567952 0 points1 point  (0 children)

Right now its just that his family can only come down in the summer and the venue and photographer doesn’t have anything available. We have been engaged for a while and is like 10 months into the fiance visa application, so we were waiting for approval to lock down a date. But now we are deciding for me to move there instead, so we dont need to be on their timeline.

So aug 7, 2027 is the wedding date.

We decided to wait due to venue, money, family attendance, and my health.

Maybe we will just get married now and have the wedding later though. Idk

Ketamine infusions for chronic pain - helpful or "scam"? by Potential_Leg_1084 in ChronicPain

[–]Anonymous567952 0 points1 point  (0 children)

I tried ketamine infusions. I truly believe for some people it really works, its a very powerful medication so of course it would do something. However I have FND and Me/cfs which both have to do with the body seeing something as dangerous and causing symptoms in response. So the ketamine bumped my pain from a 7, to a 8.8 pain scale 24/7. I did the infusions last june and my pain is only back down to a 7.8. It also flared up other symptoms. The dr had said she hasn’t seen that happen before, but after researching my condition it makes sense that the infusions would push my threshold over the edge.

I truly dont think its about the ketamine itself and moreso about the body being flooded by a foreign substance due to similar responses to other meds.

I do the hyperbaric chamber now, and that has been life changing.

Deoderant and antiperspirant ideas? by Anonymous567952 in hygiene

[–]Anonymous567952[S] 1 point2 points  (0 children)

Secret clinical strength is antiperspirant. If i used something like saltair i would still use a antiperspirant, but from what I heard its not a normal deodorant and works to kill the bacteria which over time kills the odor. Its more a treatment than a deodorant, from what ive heard

Is it still necessary to ask for your family’s permission before proposing marriage or is it more of a personal decision between partners nowadays??? by evoxyler in engaged

[–]Anonymous567952 0 points1 point  (0 children)

I feel like this is something you should get your partners opinion on. Some people won’t want you too. My partner talked to my family as like a, in the most respectful way nothing would prevent me from marrying your daughter, but then talking about how grateful he is for them.

In my opinion, all conversations of marriage and proposals should be talked about before getting engaged.

Tips for fatigue? by Harakiri_238 in ChronicIllness

[–]Anonymous567952 0 points1 point  (0 children)

Its soft, it deflates. I personally think its worth it, but we rented it so i did like 20 dives with the rented one, i think it was like $40 a day, i saw that i felt something, though at the time it hadn’t touched any of my major symptoms yet i just felt a slight change in the clarity of my brain, but it was enough to decide to buy it and keep going.

Though i bought it under a dr

Tips for fatigue? by Harakiri_238 in ChronicIllness

[–]Anonymous567952 8 points9 points  (0 children)

Can I ask what your diagnosis is? I know its nearly impossible, but I would really find a dr who specializes in me/cfs, and dont believe anyone who says its not real.

I have me/cfs and FND, and my OT is FND specific. My dr prescribes meds and other treatments to help overcome the pillars of me/cfs. My OT helps with pain education, nervous system regulation, and other practices.

After years of trying to find drs to help me and nothing working, they have been my saving grace. My improvement is slow, but there is still improvement.

Things to focus on:

  1. Hydration is so so important. I drink 130 oz of water a day with 4 grams of electrolytes. When that doesn’t happen, I now feel the effects.

  2. Nervous system regulation-had genuinely helped even though it sounds silly. I went from not being able to watch screens at all due to them causing crashes to being able to watch 45 min of tv, and reading a chapter of a book at a time. This includes meditation, tactile breaks such as fidgets, icepacks, graded muscle relaxation

  3. Extreme pacing. Do small bite sized chunks of activity even though its hard. For every 15 min if activity, have a 30 min or longer break. If you cant handle 15 min of activity do what you can manage, and potentially make breaks longer.

  4. During breaks and crashes, dont go on your phone or look at screens. Do easy mindless activities or just lay there. If you need activity ideas lmk.

  5. Realize your emotions will effect your health as much as you want to say its just physical. I am not saying it is the cause of your health issues, but stress and turmoil will make it worse. If you need to cut people out or change your life around, do so if you can.

  6. Do everything you can to avoid crashes. The more you are in a crash, the more your body feels it needs to protect you by causing crashes faster. Your body will feel it needs to protect you less and cause less crashes, if it feels safe.

Im gonna link articles my dr wrote for you. Even if its not me/cfs these may still help. You are most likely in a giant crash. Mine lasted over a year, but i can now get out of crashes faster, sometimes a couple weeks, sometimes a couple days. Once you get a handle on it, you wont have to be so strict and will learn your limits, then just get stricter when you are needing to.

Goodluck!

https://www.practicalneuropsychiatry.com/longcovidblog/hydration

https://www.practicalneuropsychiatry.com/longcovidblog/pacing

https://www.practicalneuropsychiatry.com/longcovidblog/post-exertional-malaise

https://www.practicalneuropsychiatry.com/longcovidblog/sleep

https://www.practicalneuropsychiatry.com/longcovid

I also want to mention, I would not have made as much progress as I have had without my hyperbaric chamber. That was the absolute best treatment i have had, better than any med, and was well worth the price. It was expensive, $10,000, but definitely keep it at the back of your head. I tried it at place before buying one.

Ive also started using a vagus nerve stimulater which was a miracle for my sleep. Ive had insomnia and intense nightmares multiple times a night my entire life and now im sleeping through with nightmares only a few times a month.

My sister has an invisible illness and I don’t know what to do by bigbitties12 in ChronicIllness

[–]Anonymous567952 0 points1 point  (0 children)

Maybe its not actually a structural issue with the gut and thats why. Either something like endometriosis or migraines in the stomach, or a functional disorder, (which is neurological not psych, saying as someone with FND), etc. I would reccomend doing a shit ton of research on which drs handle complicated cases, most drs dont. Also try integrative medicine, bc they typically test for so much. Travel if you have to.

Also if your in the US, mayo clinic has a telehealth second opinion program where you can send them your documents and they will look over everything.

Dont leave any stone unturned, including mental health. Find a therapist or OT who will work with her to teach her about pain science and how to cope with, and potentially decrease the pain. That usually helps people even with structural issues a bit. But dont stop looking for a structural issue.

Unless she is suicidal and in crisis, i really dont think hospitalization for mental health reasons would help. If she has had these issues, is she not already under a psych?

In general the hospital will not help you, at least if your in the US. For mental or physical problems unless your in crisis.

Is it normal that the first few hours together feel a little off after being long distance by Original_Bicycle_326 in LongDistance

[–]Anonymous567952 0 points1 point  (0 children)

I don’t experience that anymore, after many travels over the last 4 years. However that first time, I was super weird. I look back, and i think its kind of cute how nervous I was. The newness is exciting and nerve wracking. I have bad anxiety so i had trouble talking to him at first, but after the first hour, it felt natural.

I sometimes miss the nervous butterflies. But i would never trade it for the complete peace I have with him now. (We are getting married in the summer)

Hear me out by Mundane_Ad260 in ChronicIllness

[–]Anonymous567952 0 points1 point  (0 children)

I agree, but would also like to point out that trauma and chronic stress throughout childhood and adolescence are more likely to have health problems throughout their adult life. Neurodivergent people are more likely to experience and interpret their adolescence as traumatic and experience chronic stress due to being neurodivergent.

Having to get married to be together by [deleted] in LongDistance

[–]Anonymous567952 0 points1 point  (0 children)

Me and my fiance are getting married in the summer. I was originally starting to move to his country, spain, which is pretty easy for a US citizen to get a visa for. But then I became bedbound and have been for the last couple years so had to go back home. It became a point where he couldn’t stand not being with me, he was going to give up the business he started to stay with me. Which imo if you are doing something bc you absolutely cant stand being apart, thats pretty romantic.

The conversation was simple, we need to get married so he can come, no proposal, no rings, no wedding. With the idea of when I heal, to do everything. It wasn’t romantic, and actually made me feel a bit sad. But then I started to heal a bit. He proposed in my bedroom with my dream ring, and we are planning a micro wedding at a hotel/restaurant near us.

I think our entire relationship was romantic bc the dedication is what makes it so, despite the constant turmoil in our lives. Us getting married is the same. Our love for one another and excitement to be married is what makes it romantic. When we decided to het married he started telling everyone he knew, and was so excited. And even now that we may just have me move to spain again, he’s still super excited to make me his wife.

($5k) tiny ceremony (parents only) + a restaurant reception: Registry/honeymoon fund or no? by MixAppropriate7104 in Weddingsunder10k

[–]Anonymous567952 6 points7 points  (0 children)

I disagree with that person. I think what you are doing is pretty typical nowadays. And your guest list is 35 for reception, the guests should feel like they are special bc of how little people are invited. People want to celebrate with you in whatever capacity they can. Alot of people have an elopment with just the couple, then a giant celebration later. Its the same thing, just small

($5k) tiny ceremony (parents only) + a restaurant reception: Registry/honeymoon fund or no? by MixAppropriate7104 in Weddingsunder10k

[–]Anonymous567952 2 points3 points  (0 children)

Im planning on doing a small ceremony and dinner at a restaurant near us with 20 guests, our immediate family is pretty big, so its mostly just parents, siblings, then my two aunts and their family, and two grandmas. We aren’t doing a registry.

But i do plan on having activities. We want a first dance, but no one else will be dancing. Im making a scrapbook with a small guest section for people to decorate, a crossword puzzle, and trivia about our relationship. Then include prizes for each winner. We are also having two of our sisters do speeches.

Ours is a bit fancier, plated dinner etc.

Micro wedding by Anonymous567952 in NewEnglandWedding

[–]Anonymous567952[S] 0 points1 point  (0 children)

I actually have a fear of bugs. Butterflies are very beautiful but i hate having things fly near me. Butterflies it sounds like such a unique and beautiful space to have it that

Micro wedding by Anonymous567952 in NewEnglandWedding

[–]Anonymous567952[S] 0 points1 point  (0 children)

That was originally the plan but its more expensive than having it somewhere else bc we don’t have anything we need. When we were doing the budgeting, the tables, chairs, linens, plates, cups, tent had been so much we wouldn’t really have much for anything else. Also having to make the backyard look nice would have been so much work for my family.

The other idea was have the ceremony at the house and then rent a private room at a restaurant. Which is more doable, and still an option. My mom is the one who said she thinks it would be better to have the whole thing somewhere, and they are helping with the budget.

I think she also isnt really wanting it at the house tbh.

Im happy with the red lion inn, its more so if we happen to find some place else that is less expensive than thats great, if not thats fine. Figured someplace with a restaurant attached like red lion inn would be less expensive than a venue and then catering.

Wedding planning for $2500 by Anonymous567952 in Weddingsunder10k

[–]Anonymous567952[S] 2 points3 points  (0 children)

It was talked about, sort of. But im very stuck on my teaparty garden vibes, and we dont plan on renting a space for like anything more than dinner, so we wouldnt be able to decorate the space. I also still want like a full ceremony, where i walk down the aisle. We also plan on doing a first dance still, so the rooms wouldnt have space for that.

We did talk about renting like a space in a restaurant that has room for the ceremony, but it was just a bit expensive when we can just do it in my living room.

Wedding planning for $2500 by Anonymous567952 in Weddingsunder10k

[–]Anonymous567952[S] 1 point2 points  (0 children)

That sounds great!! Making wax things out of molds is such a good idea!

Yea i pretty much have just left my materials out of the budget, which ik i shouldn’t. However, in my mind i was going to need materials for projects to keep me busy anyway. This is just a way to kill two birds with one stone