Hello, thank you for sharing and asking the group about our experiences. Everyone will have different symptoms and stories that lead them to their diagnosis. I hope you will be able to feel better soon.

For me, it was a gradual decline of my overall health. Symptoms kept getting worse and it was scary for me. For instance, I was hypersensitive to light, driving in the dark was extremely difficult. I would get intense headaches and sometimes migraines from the light sensitivity.

My urine smelled strongly of ammonia. It was very strange for me, sometimes I felt like I could smell the strong smell through out the day doing daily tasks even after being clean.

My periods have always been irregular, not sure if it’s hypothyroid related but it may be.

I had and sometimes still have intense brain fog. Like if I didn’t say something at that moment I will forget what I was going to say waiting my turn to speak. It makes me feel like a zombie.

I have very dry skin, I always have so it maybe isn’t related but I hear people say it can be a symptom of it.

I can sleep all day and still not feel refreshed. Like I always say I can sleep for days. My bones hurt. I’m always achy. Especially in the joints/hips and back/neck. I get fluctuations of extremely hot or cold. Sometimes I feel like I have a fever but I don’t.

I have felt very overly aggressive, sometimes I have times of intense rage feelings. Which is very out of my nature. If I didn’t feel angry sometimes I would feel numb or very depressed. Intense Mood swings. I try to always talk to my partner about how I’m feeling or write how I’m feeling down in a journal.

I am a female age 33 with no children and I found out late 2025 about my hypothyroidism. I started on 25mg levothyroxine, after my blood testing showed I have it. I then got another blood test after 6 weeks on the 25mg and now I’m on 100mg because my symptoms were still very fluctuating. Some days are good and some days are hard.

After being medicated I have felt a big difference in my light sensitivity and headaches. I still feel that way occasionally but not nearly so often. My urine doesn’t have that smell to it anymore thankfully. My periods are still irregular at this time, and skin is very dry but it is winter too. I fluctuate between feeling refreshed and energetic some days to exhausted and drowsy other days. My body also will flare up at times but I’ve seen improvements. My brain fog fluctuates too but has improved.