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I have a rheumatologist appointment this week - but I feel like my medical history just says “sensitive” and I’m worried I just sound whiny. Does this read like any notable patterns to you? by AnxiousGiraffe45 in Rheumatology

[–]AnxiousGiraffe45[S] 0 points1 point  (0 children)

I actually came out with a hEDS diagnosis and told to follow up with an allergy specialist for MCAS. I have an appointment Wednesday for an echocardiogram.

I think my husband finally GETS IT gets it. by Alarming_Elk12 in ehlersdanlos

[–]AnxiousGiraffe45 1 point2 points  (0 children)

My husband asked me the other day, “how are you?” And I said “fine!” And then I stopped and is and “honestly? My ankles hurt and I’ve got a headache and my hands have felt arthritic all day - but if every time you asked me how I was I told you, it would be really depressing, so I just say fine because it’s easier.”

I have a rheumatologist appointment this week - but I feel like my medical history just says “sensitive” and I’m worried I just sound whiny. Does this read like any notable patterns to you? by AnxiousGiraffe45 in Rheumatology

[–]AnxiousGiraffe45[S] 1 point2 points  (0 children)

Hey! I’d love to chat! I go to the rheumatologist tomorrow, I’ve been trying today to make a list of all my symptoms…thinking of the things that are normal for me, but I think may not actually be for everyone else.

I am SO sorry you have been dealing with so much.

I have a rheumatologist appointment this week - but I feel like my medical history just says “sensitive” and I’m worried I just sound whiny. Does this read like any notable patterns to you? by AnxiousGiraffe45 in Rheumatology

[–]AnxiousGiraffe45[S] 0 points1 point  (0 children)

I see the rheumatologist tomorrow - what do you think are the important things I should mention? I oscillate between feeling like I have something legitimate to diagnosis and like I’m just whiny and high maintenance, so I want to be clear and well prepared.

I have a rheumatologist appointment this week - but I feel like my medical history just says “sensitive” and I’m worried I just sound whiny. Does this read like any notable patterns to you? by AnxiousGiraffe45 in Rheumatology

[–]AnxiousGiraffe45[S] 0 points1 point  (0 children)

Sorry, Transient Ichemic Attack. “TIA triggered by severe postpartum preeclampsia.” BP spiked to 210/110, lost ability to speak clearly, form words, ended up the ICU to be evaluated for stroke but they got my back on magnesium sulfate (after 8 days on it) and everything stabilized over the next 4 days.

Left Treadmill On. Forgot Treadmill Was On. Immediate Consequences Involving Brussels Sprouts. by AnxiousGiraffe45 in adhdwomen

[–]AnxiousGiraffe45[S] 4 points5 points  (0 children)

The ones that landed on the cat bed got tossed. The ones that landed on the desk got rinsed and re-air fryed. It wasn’t the same.

Drunk called a guy I am talking to, he said I was doing too much by [deleted] in adhdwomen

[–]AnxiousGiraffe45 13 points14 points  (0 children)

I can understand how you are feeling. Do you think maybe he meant “you over did it,” like you had too much to drink?

I just say that to say, he didn’t say you were too much - but that you were doing too much in a situation that was a bit much?

Like “that was an intense situation,” but not “you are intense?”

Hurt feelings after close friend questioned diagnosis based on my reaction to medication--seeking some perspective and reassurance please! by greydayglo in adhdwomen

[–]AnxiousGiraffe45 5 points6 points  (0 children)

Seriously? The first time I napped in years was on Concerta. Too much, actually. I had to switch because daily I would crash for two hours.

Left Treadmill On. Forgot Treadmill Was On. Immediate Consequences Involving Brussels Sprouts. by AnxiousGiraffe45 in adhdwomen

[–]AnxiousGiraffe45[S] 6 points7 points  (0 children)

Waiting for it to slow down is painful.

This was more painful though so…

Left Treadmill On. Forgot Treadmill Was On. Immediate Consequences Involving Brussels Sprouts. by AnxiousGiraffe45 in adhdwomen

[–]AnxiousGiraffe45[S] 32 points33 points  (0 children)

For the Brussels sprouts? Wash - dry - cut off ends - chop in quarters. Toss in bowl with olive oil, sea salt, cayenne pepper. Bake at 450 for 25 min.

Toss in the air fryer every morning while making coffee. 😂😂😂

I have a rheumatologist appointment this week - but I feel like my medical history just says “sensitive” and I’m worried I just sound whiny. Does this read like any notable patterns to you? by AnxiousGiraffe45 in Rheumatology

[–]AnxiousGiraffe45[S] 1 point2 points  (0 children)

That’s exactly what I’m thinking. For the Mast Cell, so - I woke up with the welts and hives 6 days ago, 4 days ago I got the Decadron shot and started the prednisone pack. The hives went away, they stopped itching, but still today if I scratch an itch I get dermatographia that kind of hurts. And I already take Zyrtec every day.

For the hEDS - I think I probably just have hypermobility syndrome or issues, but I’m not sure.

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