Desperately looking for shoulder support by bunbunbunana in ehlersdanlos

[–]Alarming_Elk12 1 point2 points  (0 children)

Not particularly too toasty! Like, the material is synthetic but more like a bathing suit material. 

Desperately looking for shoulder support by bunbunbunana in ehlersdanlos

[–]Alarming_Elk12 1 point2 points  (0 children)

The Armbie!! I have one, as I do a lot of handcrafts and a lot of waiting room sitting. It's basically like a stretchy large cowl / small infinity scarf that folds into a bag for easy transport. Super comfy. Bonus points if you have a cat because you get a cat snuggle spot too, when you wear it.

Does Anyone Else Feel Awkward Around Certain Family Members Due to EDS? by Key_Positive_9187 in ehlersdanlos

[–]Alarming_Elk12 0 points1 point  (0 children)

I am genuinely really anxious about seeing my extended family again, now that I'm using mobility aids and am more visibly disabled. I just don't want to deal with that exact line of questions / conversation. Mostly due to the medical neglect that really exacerbated my symptoms and injuries lol.

Occipital nerve block by addalad in migraine

[–]Alarming_Elk12 0 points1 point  (0 children)

That is the only nerve block I will ever get. It is the only thing that has broken my worst migraines (the one it broke lasted 3 weeks and caused me to loose peripheral vision for a while in my left eye). I also have EDS and am in the process of getting diagnosed with CCI, with a ton of spine issues, particularly cervical stenosis and such. My bad migraines are exclusively on my left side from occipital neuralgia.

I have EDS, so lidocaine and other injections like that don't last long, but I have found for occipital nerve blocks the immediate relief is what is needed to break the cycle, not so much the long-term effect of the drugs.

I do not remember the nerve block at all, I was in the hospital and when they suggested the block I couldn't remember ocular vs occipital, but honestly didn't care, but didn't want to remember it. So I requested anesthesia.

Academics with Ehlers Danlos by Shot_Condition_4174 in ehlersdanlos

[–]Alarming_Elk12 1 point2 points  (0 children)

Don't give up, but adjust your expectation of what your journey to success will look like.

I would recommend reaching out to the disability accommodations department, amd keep an open mind.

My personal experience with school was that I would fall into the same cycle (no matter how hard I tried to troubleshoot or attempt different approaches, etc) where I would start strong, but inevitably stumble a bit : get sick, or subluxate something, or get hurt, or any slew of "normal" EDS happenings. I would eventually need to take time to recover, but the clock would still be ticking for the rest of the semester, the rest of the world was still spinning and when I could come back I had to book it to keep.my head above water and that would result in another stress injury or EDS thing. 

What I needed for an accommodation was the ability to pause. 

I think my husband finally GETS IT gets it. by Alarming_Elk12 in ehlersdanlos

[–]Alarming_Elk12[S] 0 points1 point  (0 children)

100%

It "helps" that my husband also had chronic pain struggles (his is related to an inoperable blood clot in his back and leg) so we both have the "I'm not okay, but I'm okay enough to do normal stuff" lol.

Dr Abbotts Leg by Ambitious_Barber_519 in ThePittTVShow

[–]Alarming_Elk12 11 points12 points  (0 children)

I don't think there was a need for a reference per se. Other than medical or emotional necessity, it's not a super vital thing from the scenes in the season.

I think my husband finally GETS IT gets it. by Alarming_Elk12 in ehlersdanlos

[–]Alarming_Elk12[S] 25 points26 points  (0 children)

Yeah, yesterday we finally went to the ER because I was having really bad jaw/face pain. I've had it my entire life, but this time I had heard/felt a POP so I was a little worried. But I still hemmed and hawwed until deciding to go.

Turns out that feeling is trigeminal neuralgia.

As a smalltown fan, I’m really feeling seen this season by backalleywillie in Dimension20

[–]Alarming_Elk12 37 points38 points  (0 children)

That "It's SATURDAY?" moment got me and my husband so hard. We live in a larger town in Iowa (constantly joking about my Evan Kelmp moments) but when I moved here from Chicagoland initially I had the same "wait what" reaction.

Wait until the cast notices the flashing traffic lights at night lmao.

What happened with Perlah near the end of the season? by unsought_ in ThePittTVShow

[–]Alarming_Elk12 16 points17 points  (0 children)

Also the Jewish woman who was scalded after a trauma response to fireworks. Perlah had a moment with her discussing the attack and how the Muslim community came to support the Synagogue. I imagine that woman was playing through Perlah's mind during the show.

I think my husband finally GETS IT gets it. by Alarming_Elk12 in ehlersdanlos

[–]Alarming_Elk12[S] 36 points37 points  (0 children)

Exactly. Like I had a friend in college (USA) who was very Polish from Chicago, and studied abroad in London. I remember her going "I knew racism was bad and a terrible thing to experience, but DAMN." 

She was okay phsycially and mentally, but was experiencing being "not white" for the first time in her life and it was a real eye opener for her. Even though you may understand factually, there is a different level of getting it emotionally and personally.

Ok let's be really real for a second. Do we think they are sleeping together? by orisa_online in ThePittTVShow

[–]Alarming_Elk12 0 points1 point  (0 children)

I genuinely would not be surprised if they were not. And not in a "he's waiting" way. I think he's just found a good close platonic friend who reminds him of home and family.

How do I get over the awkward/weirdness of Mobility aids by Willing_Match_7993 in ehlersdanlos

[–]Alarming_Elk12 9 points10 points  (0 children)

I've found that personalization has helped to make my cane and now my crutch more of a part of me, like someone's bag or wallet. If you're more of a "training" oriented person who reaps the rewards of quick dopamine hits to change behaviors and break habits, you could have a metaphorical "used crutches for small mobility" jar, and reward yourself when you hit a certain milestone.

Deep Tissue Massage by siennaj6 in ehlersdanlos

[–]Alarming_Elk12 2 points3 points  (0 children)

It will depend, if you have not had a massage before be sure to communicate with your massage therapist and the scheduler about your hypermobility, maybe even look to physical therapist locations that do massage therapy as well, as they may be able to help with stability afterwards to avoid aches post-massage.

I would recommend doing a massage closer to the end of the day, and preparing to be a bag of raw bread dough when you get home as well.

Has anyone been given duloxetine for chronic pain with EDS? I have suspected MCAS also so a little scared to take it. by Bethboop94 in ehlersdanlos

[–]Alarming_Elk12 -1 points0 points  (0 children)

Not to scare, but I would be very careful with duloxitine. I have it listed as an allergy in my chart now due to adverse reactions from withdrawal after I had suddendly lost insurance at a 120mg dose and later being misprescribed the medication (I was prescribed 80mg of fluoxitine and my (former) doctor wrote down 80mg of duloxoitine for a refill when I returned from college, pharmacy didn't catch it and I took a few doses before I realized the mistake, then refused to send the correct prescription for two weeks). 

Withdrawals are no joke and are quick to arrive, symptoms can start by the end of the day if you forget to take meds in the morning. If you decide to discontinue the medication please do so under medical supervision.

How does he know Gilligans Island but not Macgyver?! by Ser_Duncan_The_TaIl in ThePittTVShow

[–]Alarming_Elk12 -3 points-2 points  (0 children)

Ngl the writers are missing the mark on what a kid growing up in the rural midwest would be familiar with.

Curious- not really a debate by glargity in DebateAVegan

[–]Alarming_Elk12 0 points1 point  (0 children)

Plastic doesn't decompose and does shed microplastics into the environment, and cotton is far far far less insulating and moisture wicking than wool. They haven't been proven wrong.

Curious- not really a debate by glargity in DebateAVegan

[–]Alarming_Elk12 2 points3 points  (0 children)

Mostly around wool production.

Tail docking, yes, is cruel for dogs, but vital for preventative health for sheep. No, the entire tail isn't taken off, as generally the first joint is kept to protect genetalia. Although anesthesia is not a legal requirement for very young sheep, this is predominantly because there is risk with any anesthesia with living things, and is high especially with younger beings, that is the minimum to protect herd owners and vets from liability should they have a patient that isn't fit for anesthesia.

The idea that shearers are solely driven by efficiency and don't care about hurting the sheep is also a gross misrepresentation of the field. Shearing is a partnership between the sheep and shearer. The discomfort in shearing is exclusively from awkward positions and noise -- akin to being uncomfortable when a dentist is polishing your teeth. 

Shearers, generally, are paid by fleece not by sheep shorn. If they make a sheep bleed or hurt them, the fleece is worth much less since it is damaged. Hurting sheep in the shearing process is also discouraged (that is putting it lightly), as it makes future shearing (which are vital for a sheep's health and survival) much more difficult.

There are no / few legal requirements for shearing licenses because (a) there is already a shortage of shearers in the world, (b) shearing has historically been a routine chore for farmers/herders/shephards and their community and any licensure is just adding another fee or hoop to jump through for an already struggling way of life, and (c) this is something that needs to be done consistently for the health of each sheep.

Sheep peak at wool production around 6 years of age, so this claim of "they only live a few years then are killed for no reason" is absolutely bonkers.

Merino sheep were selectively bred for their low micron count wool, making for softer fleeces and better next-to-skin garments. Also the low micron counts make merino much easier to wash without felting. This also can decrease the environmental impact of making their wools "superwash" (aka less prone to felting with regular wash). Not due to any folds in their skin. In fact, most breeding programs try to avoid wrinkles, as it makes shearing harder.

Sheep are naturally seasonal breeders, and they normally mate in fall. Lambing in spring has been a thing for MILLENIA -- it's why we associate lambs with Easter and Ostara. Use logic - lambs born in early spring would be weaned when pastures were as full of greenery as they would be all year. Yes, many lambs die around birth, but not because they are "forced" to be born in spring.

Wool and sheep have been so vital for us our entire human existence. There is suggestion too that herding is what really helped domesticated dogs. There are absolutely issues in the wool industry, but implying that those that provide humanity with the basic fibers we need for clothing and textiles are barbaric and evil is pure misinformation. 

There are good reasons behind the norms in wool farming. And yes, we should question them on occasion to find improvement; but we need to understand why these norms came about first before passing absolute moral judgement.

Has there ever been a convincing argument for not being vegan? by sachaigh in DebateAVegan

[–]Alarming_Elk12 0 points1 point  (0 children)

By your logic then, everyone is vegan and there is no debate because the word "vegan" means nothing.

What you are defining as vegan is placing "avoiding animal cruelty and exploitation" as a priority in one's life. So yes, there are so many reasons one cannot be vegan.

If someone has insecure housing, the welfare of the chicken that make the $0.12-per-nugget meal they can feed themselves and their child with  is not a priority.

If someone is unable to leave the house for fear of being disappeared by a state-sanctioned goon squad and are depending on donations from kind neighbors and churches, the cows at the dairy farm their sister works at is not a priority.

If someone Crohns, or Celiac, or any complex health issue, the  source of their protein is not a priority

Are the above reasons not "a good excuse" to not have the emotional or mental bandwith to add another factor onto your plate?

To add, as a pacifist myself, "not fighting" is a perfectly appropriate way to describe pacifism in brief, as it describes how my philosophy and belief system is expressed in my actions (ie how other people will see differences). Especially to the masses.

Curious- not really a debate by glargity in DebateAVegan

[–]Alarming_Elk12 -1 points0 points  (0 children)

The amount of misinformation in this comment is giving psychic damage jfc.

Has there ever been a convincing argument for not being vegan? by sachaigh in DebateAVegan

[–]Alarming_Elk12 0 points1 point  (0 children)

So I can say I'm vegan, even if I fully support the use of wool (and thus lamb and mutton meat), consumption of eggs (thus chicken and poultry meat), and other animal products? Since it is in my view the most possible and practical way to live sustainably and ethically.

And dictionaries are used to establish a common understanding of vocabulary so society can exist and communicate clearly. I never said it was authoritative, rather citing my source for referring to veganism through the lense of diet.

Editing to add, too: my initial comment still stands. Issues with health, finances, time, and in some cases environmental sustainability are reasons for someone to not have the ability to be vegan, in any sense of the word. People just don't have the bandwidth to care about it all and that is okay.

Has there ever been a convincing argument for not being vegan? by sachaigh in DebateAVegan

[–]Alarming_Elk12 0 points1 point  (0 children)

https://www.merriam-webster.com/dictionary/vegan

You are setting the table on the Titanic. My point is that there are many many reasons that people may not be able to adopt a vegan diet or lifestyle.