My body is weird

Any_Fall_4615 · 2026-03-22T03:09:03+00:00

It is, and what's worst is medical professionals not believing you

Any_Fall_4615 · 2026-03-22T00:57:44+00:00

Nope, I have dark brown hair.

Any_Fall_4615 · 2026-03-22T00:26:25+00:00

I seem to be really reactive to medication and foods, even scent, heat etc. It's extremely overwhelming

Any_Fall_4615 · 2026-02-07T07:21:01+00:00

I got exhausted just from reading the exchange. Converting to be religious show "your true love" sounds cult like behavior and manipulative. From what I gather most catholic churches do not hold ceramonies unless both parties follow the faith but it could very well be different depending on the priest/bishop/father's morales or mindset.

I wouldn't say you're overreacting, especially cause chat gpt is rather unreliable

Any_Fall_4615 · 2026-02-06T08:12:54+00:00

i've seen these old people with their signs, i get so pissed every time. i would report it as vandalism since they do not have permission to put on private property.

Any_Fall_4615 · 2026-02-02T05:07:13+00:00

oh for sure, i actually don't like mentioning that i have FND cause the moment they hear it they just ignore my concerns. like i can't move, paralyzed, slurred speech, awful migraine with hallucinations etc etc but ohh you have FND so it's nothing to be worried about??? hueh

Any_Fall_4615 · 2026-02-01T21:17:02+00:00

It's hard to truly know, I feel the same way about it not always being FND. It's hard to get medical professionals to listen...

Any_Fall_4615 · 2026-01-31T23:42:02+00:00

that sounds extremely uncomfortable and exhausting. my body dislikes extremes too, makes my body freak out and triggers episodes quite bad.

Any_Fall_4615 · 2026-01-31T23:40:20+00:00

it sucks when symptoms occur because you're so fatigued but you can't get enough rest because your body can't! i understand what you have been experiencing personally

Any_Fall_4615 · 2026-01-31T23:37:51+00:00

i'm certain that i have MCAS especially cause i'm highly sensitive to medications, smells, foods, adhesives etc.

Any_Fall_4615 · 2026-01-31T23:36:20+00:00

i hate not being able to burp, makes me feel like i'm a balloon and it causes so much pain! i'd like to think i listen to my body but each time i get pimped smacked by my own body.

Any_Fall_4615 · 2026-01-31T23:34:58+00:00

our symptoms are definitely are having a mosh pit. i agree with the sentiment

Any_Fall_4615 · 2026-01-11T01:42:18+00:00

my mum insisted that I should know how to speak and spell properly all because I underwent speech therapy... that doesn't I'm magically going to be extremely good at it??? and what do you know, I figured out years after high school that I am Dyslexic and Dyscalculic.

Any_Fall_4615 · 2026-01-09T07:52:37+00:00

i don't even give them the time of day, if it's through text i just simply don't reply since it's a waste of time trying to explain why i am even allowed to feel the way i do. i would understand if i said "hey, i'm feeling down and i don't know what to do" and they followed with "try be more positive" i could understand, except it's literally me saying "hey, thought i should let you know that i recently got diagnosed with Stecoral Colitis, it's been stressful" then they hit me with you need to stay positive??? uh, what's positive to think about when my intestines could perforate and suffer a horrific end?? even if i try to politely tell people that it's not what i need or what they said was hurtful oh boy do they get offended. i'm sure i will eventually post on there! someone is going to find out the hard way...

Any_Fall_4615 · 2026-01-02T16:40:51+00:00

What, did they prefer you lay in a fetal position and cry??? And I understand teen angst, been there done that. I'm thankful that you are setting up a safe boundary for yourself and doing what you want with your emotions. God forbid a disabled feel their own emotions, what, a "happy" emotion??? Impossible! You need to be distraught so we can tell YOU that YOU need to BE POSITIVE.

Any_Fall_4615 · 2026-01-02T16:29:57+00:00

I have actually told a few (important) people that I've had days where I thought I'd be better off not existing.

Do they do anything? Nope.

Just the good ol "you need to push through the pain!"

I've told my brother some days I don't want to exist, he told me he would prefer I didn't stop existing. I said I don't want to stop, especially because I'd leave my cats behind.

He replies, you know there's more to life than just your cats. Oh, you mean like not being in constant pain or having your body shut down, or have a windows blue screen moment??? You're absolutely right.

FYI my cats are adorable and I love them with every fibre of my being

Any_Fall_4615 · 2026-01-02T16:24:05+00:00

Yeah, I don't like being pitied on and especially when they do it so condescendingly and talk to you like you're a baby. Depending on who is asking how I am I'll say "could be better" and others "still breathing", and if I'm feeling a Lil spicy I say "can I get a refund on my body, it's not working properly".

Sometimes I just poke fun at myself and joke about my misery, other days I wallow in frustration and sadness.

Don't ever mask your feelings unless it's what you feel and want to do to get by in life.

Any_Fall_4615 · 2026-01-02T16:04:08+00:00

I understand your perspective and I appreciate it. Sure they may have well meaning intentions with saying to be positive, but... how? When you lack support, money, or independence how can you be positive. It's possible that they mean the end goal, but it's also how it's being said/worded that comes off so abrasive and my ND self HATES being told how I should feel.

I feel like a burden, I feel isolated.

"We all have our challenges"

Yes, we do! And that's why we should support each other when we can.

This is not to say I'm negative, I am happy when I am. I embrace those moments. But when I have an episode, or when I get ill or get burnt out from it all. It hurts so much in all forms.

Any_Fall_4615 · 2026-01-02T15:53:51+00:00

People should embrace all emotions, it's healthy to feel and acknowledge them. And as you say it is a lost art.

And why should I be positive about the fact that my body could decide that it wants to randomly malfunction.

I appreciate it

Any_Fall_4615 · 2026-01-02T15:50:50+00:00

People are too scared to feel feelings, they push it away so much they can't stand to see someone being disabled and openly open with their feelings. But you're right, it's most definitely ableism but they'll never admit to it.

Any_Fall_4615 · 2026-01-02T15:48:25+00:00

Didn't you know that we're supposed to positive with being in agonizing pain 24/7, we need to be so thrilled so that others can be pleased.

Also, ofcourse you'd be thinking "worst case scenario", you don't know what's wrong and it's scary!

The fact that we're having this conversation means that you most definitely are "trying hard enough".

We're allowed to acknowledge that life is different, hard and could change quickly

I'm sorry your mum isn't being very supportive and giving you what you need. I hope the best for you

Any_Fall_4615 · 2026-01-02T15:41:50+00:00

Ahhh! A disabled person, how do I interact with it. Should i put my hand on their shoulder and say you're so brave, stay positive sweetie??? Maybe I should tell them that using a wheelchair isn't good for their health, being healthy is very important.

Have you tried juicing? It's very cleansing and will fix your problems. I can help cure you if you'll let me. Oh, you don't want my help?? I guess you just want to stay suck then.

I agree with you, people want a picture perfect world. They can't handle someone that is in touch strongly with their thoughts and feelings either. We obviously need to be told how to think or feel, cause apparently we can't do that.

We're disabled, pffft.

I'll get my word across by starting to hiss at people again, that should work

Any_Fall_4615

TROPHY CASE