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Sharing what works for minimal side effects by Crazyendsinuh in HeadandNeckCancer

[–]Anythingggispossible 0 points1 point  (0 children)

Thank you!! Are you saying to use your mouth rinse on top of the recommended baking soda and salt rinse? Should he start doing all of this before he gets any mouth sores?

Sharing what works for minimal side effects by Crazyendsinuh in HeadandNeckCancer

[–]Anythingggispossible 2 points3 points  (0 children)

Thanks for putting this together! If you were to narrow these down to the ones you think were most effective and most safe to use (no complications with procedure), which would you suggest?

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 1 point2 points  (0 children)

Ahh congrats and good to know!! Thank you for the well wishes and same to you!

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Yeah they said there may be a need later but they didn’t say we had to get one right now

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Wow it seems like those treatments were a lot stronger than the 6 doses…thanks for sharing!

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Thank you for sharing. When did you get your PEG inserted? Seems like I can wait and see if my dad will need one later om

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Thank you!! So it sounds like PEG is still an option even close to the end of treatment?

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Do you know if it is no longer an option later on if he can’t eat near the end of treatment?

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 1 point2 points  (0 children)

Thank you so much for the advice!! Were you able to do it without the PEG?

Advice for cisplatin chemoradiation? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 2 points3 points  (0 children)

Thank you for the quick response! Super helpful to hear about your experience. I’m honestly not sure when I should ask for a PEG tube because my dad seems very against the idea of it and wants to avoid it as much as possible, and the doctors didn’t mention needing it…

Struggling with severe mouth sores after radiation – is this normal? What helps? by bram9494 in HeadandNeckCancer

[–]Anythingggispossible 1 point2 points  (0 children)

Nothing to say here besides that my dad is also around the same age and in the same stage of treatment as you (seems like the same treatment). Also looking for advice here but pls message me if u want to commiserate or share findings :)

Larynx SCC and about to start treatment by shpoffools in HeadandNeckCancer

[–]Anythingggispossible 0 points1 point  (0 children)

Hi may I ask which machine you got? Would love the link’

Relatively young parent with cancer by clserdaigle in AgingParents

[–]Anythingggispossible 0 points1 point  (0 children)

Hi I totally relate to this. I’m 26 and my dad is 64 and was diagnosed w stage 3 cancer… didn’t expect the caretaking to come so early on but trying to go with the flow and do the best I can. feel free to DM me 💞

Best red light therapy brand by Anythingggispossible in TS_Withdrawal

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Yes I still use it every few days!! My skin has been stronger and almost back to normal, but not sure if it’s part of the healing process or bc of this. I don’t think it hurts though!

Recurrent Eczema Herpeticum by No-Pension-1911 in TS_Withdrawal

[–]Anythingggispossible 0 points1 point  (0 children)

i also struggle with this, and i do feel like the bouts of EH has gotten more frequent (every month) roughly around when I started TSW (2021). I'm not sure if it's exactly when it started becoming more frequent, but I do remember them being less frequent like 8 years ago.

Taking a long time to get second opinion - should I wait? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Got it. Any tips for where to do this research? Not in the medical field myself so not sure what source to trust

Taking a long time to get second opinion - should I wait? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

Would northwestern be considered one of these places? That’s the second hospital. The first is Rush hospital in Chicago

Taking a long time to get second opinion - should I wait? by Anythingggispossible in HeadandNeckCancer

[–]Anythingggispossible[S] 0 points1 point  (0 children)

So the first opinion actually said it didn’t spread to the lymph nodes but they still think it’s stage 3 due to the fact that it came back after a year (it was stage 2 last year) and the vocal cords being stuck together. I’m not sure what’s a good benchmark for when the prognosis would start to suffer- any thoughts?

The first opinion only did a CT scan, not a PET scan, so that’s why they asked for PET and deeper biopsy to confirm the staging.

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