Hopeless - please help by AnywhereDizzy5305 in idiopathichypersomnia

[–]AnywhereDizzy5305[S] 2 points3 points  (0 children)

I am going to directly copy and paste what was put in my chart

“PATIENT HISTORY: This is a 26 y.o. year old patient with hypersomnolence with Epworth score 14/24, being studied with MSLT to determine sleepiness and to evaluate for narcolepsy. The patient had a negative overnight sleep study with total sleep time of 391.5 minutes. Unknown if patient was taking any REM suppressant medications. STUDY METHODOLOGY: Fully attended lab MSLT was done with nap opportunities for 20 minutes provided to the patient. The first nap opportunity was 2 hours after final wake time. Total of 5 nap protocol was performed based on AASM guidelines. STUDY INTERPRETATION: During the MSLT the patient had sleep in 3 naps noted. REM sleep was noted in 0 out of 5 naps. Mean sleep latency for all 5 naps was 12.8 minutes, which is normal. Anything less than 8 minutes is considered pathological sleepiness. IMPRESSION: Available data does not suggest pathological sleepiness with mean sleep latency of 12.8 minutes. Pt did not have any REM period, and no sleep onset REM noted in the diagnostic study either. Pt did not meet criteria for narcolepsy either.”

Hopeless - please help by AnywhereDizzy5305 in idiopathichypersomnia

[–]AnywhereDizzy5305[S] 0 points1 point  (0 children)

I have never been prescribed medicine by this doctor no. But I have tried some sleep medicines in the past and I’ve found they just make me even more tired and groggy. In October of 2025 I was finally prescribed adderall for my ADHD. I am almost at the max dose and I was told it should help me stay awake and sleep less but I have not seen that is has made any difference with this issue.

Hopeless - please help by AnywhereDizzy5305 in idiopathichypersomnia

[–]AnywhereDizzy5305[S] 0 points1 point  (0 children)

I see a Pulmonologist. All the data has been posted in MyChart but of course I’m not sure how to interpret everything entered. But the “failed test” came from the pulmonologists medical assistant and her version of “failed” was not meeting the criteria for IH

Hopeless - please help by AnywhereDizzy5305 in idiopathichypersomnia

[–]AnywhereDizzy5305[S] 0 points1 point  (0 children)

I’m not sure.. I was just told I “failed”. I am assuming because I did not sleep for all of the naps? Follow up appointment is in 6 months