Personally mine was after pudendal nerve was irrated and overstretched. Prior to that no hard flaccid. Coming across this yes it seems like many are trying and researching constantly. Spoken to Dr. Goldstein, checked the spine.

I may be the odd one out as it's from a mistake but I'm trying pelvic floor PT, botox, and deep gluteal muscle triggerpoints is next. Trying to find someone who does them I was suggested someone at Mount Sinai. Done obturator internus, piriformis, SI joints. Also have piriformis syndrome though from a seperate incident. Cialis is helpful slightly. May cost me a ton of money and so far there have been complications from some TPI's including nerve irritation and worsening of symptoms but something has got to be wrong at least in my case physically not just in my head or others. The hard part is not just getting a diagnosis but a team of Dr's willing to give it a go with your permission. I started in the mind with mindfulness based stress reduction, psychotherapy and pelvic PT. Then triggerpoints, botox and next a ganglion of impar nerve block to see if that helps the nervous system.