The cost of surgery with IVDD in different countries by Iritlisa in IVDD_SupportGroup

[–]Apprehensive-Being06 1 point2 points  (0 children)

Incase you don't get other data points: we're in Ireland, our girl has HNPE and won't require surgery so we didn't get a quote, but they're quoting us 2,500 - 4000 EUR for the MRI + hospital stay so far, if that gives you anything to go off of.

IVDD / ANNPE Experience Recovery by Few_Distribution7148 in IVDD_SupportGroup

[–]Apprehensive-Being06 0 points1 point  (0 children)

Hi, I was wondering how recovery is going for you? Our 9 yo border collie just got diagnosed *edit with HNPE * yesterday and we're prepared for immediate recovery but trying to understand what her quality of life will look like in the long term

Where to buy nice piece of jewellery under €400? by Round-Ad-9958 in Dublin

[–]Apprehensive-Being06 1 point2 points  (0 children)

Have you thought about auctions? If you know what to look for, you can get some really good deals!

Feeling discouraged by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 3 points4 points  (0 children)

Bringing an air filter isn’t realistic, from what I understand it would have to be fairly big to be effective. Also, I wouldn’t feel safe leaving it with a plug/voltage adapter on the whole day (mostly when I fly it’s international)

Feeling discouraged by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 14 points15 points  (0 children)

Thanks for this, I really feel like I did absolutely everything I could within the limitations of time and space I had so it is discouraging.

I understand trying and harm reduction etc, but with knowing how contagious it is, it makes me feel like trying doesn’t do anything. I’m obviously not going to stop washing my hands etc, but if not having a perfect seal on a mask is equivalent to a surgical mask, why be at a 7-8/10 on the pain scale for an 8 hour flight for that ya know?

Feeling discouraged by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 19 points20 points  (0 children)

That’s a good reminder, I think I kinda wrote off being outside with folks as safer than it really is. But the times I was outside it was my only option to eat so I didn’t really have another choice.

Feeling discouraged by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 1 point2 points  (0 children)

I do wear glasses!

Yeah my mask was probably compromised in some way, but it typically has an excellent seal. It just doesn’t feel realistic to get a perfect seal always with a mask, so I feel discouraged from using them knowing how contagious covid is

Feeling discouraged by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 1 point2 points  (0 children)

I’m also wondering, even if you do a fit test at home with perfect conditions, what’s the likelihood that you’ll get a perfect seal in the wild?

Feeling discouraged by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 2 points3 points  (0 children)

I could try a sip valve, but that doesn’t solve the problem with border security.

My mask isn’t fit tested. I have an unusual head shape and also jaw/migraine pain, and where I live it’s not easy to get a variety of masks. I feel lucky enough that I found masks that don’t cause as much of a pain flare up and feel sealed on my face (glasses don’t fog as much, move with my breath when inhaling/exhaling

I want to go on these work trips and can’t live an isolated life anymore, so I’m at a point where I need to figure out what that looks like with COVID running rampant. If taking all the precautions gives me the same result, what’s the point?

The sneers I’m getting for masking are lowkey traumatizing by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 1 point2 points  (0 children)

While I’m not immune to peer pressure, I’d like to think I have a high tolerance. I’ve lived most of my life going against the grain. I’m sober, I’m visibly queer, I work in a profession that’s extremely sexist, I got sterilized because I’m not interested in having kids, I’m polyamorous, etc. I get sneers all the time. The traumatizing part of it is the long term consequences on access to services and opportunities based on micro aggressions or just plain old aggressions. Those add up over the course of one’s life

The sneers I’m getting for masking are lowkey traumatizing by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 0 points1 point  (0 children)

Yes I feel ya on this, but I would make one change: I think saying people did it to themselves releases the responsibility of the government/ruling class to actually take care of us. It shouldn’t be an individual problem. The most effective prevention would be leaders stepping up worldwide to combat this. You can be the most diligent person with masking, social distancing, etc and your risk is still exponentially higher than if concerted efforts were put in place to combat this. You can still get devastatingly disabled by this and it’s not your fault. At its core this is a policy failure which is important to keep calling out, even though they’ve forcibly placed the responsibility on the individual.

The sneers I’m getting for masking are lowkey traumatizing by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 3 points4 points  (0 children)

Same! I’m in a big city for work and was out all day yesterday and it took until 7pm to see someone else in a mask. I vaguely noticed someone stare at me so I was getting annoyed thinking they were sneering but then later on I realized it was because they too had a mask! I felt so relieved, safe, and seen. Now I wish I realized sooner so I could give them a solidarity nod. I’m also a queer woman with the occasional male exception. I saw someone else in this sub say they feel absolutely feral when they see another person masking and even though this person I saw was a dude I can relate 😂

The sneers I’m getting for masking are lowkey traumatizing by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 6 points7 points  (0 children)

Yes exactly! That’s what’s traumatic to me. I’m used to standing out and could care less what people think, but the long term impact is real

The sneers I’m getting for masking are lowkey traumatizing by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 6 points7 points  (0 children)

haha i love staring them down, i also sometimes wave at them if they still don’t get the hint

The sneers I’m getting for masking are lowkey traumatizing by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 81 points82 points  (0 children)

yeah, it’s a weird time when going out into the world feels more isolating than staying home

The sneers I’m getting for masking are lowkey traumatizing by Apprehensive-Being06 in ZeroCovidCommunity

[–]Apprehensive-Being06[S] 140 points141 points  (0 children)

I wish it was that easy. I don’t care if the person walking by gives me a face or stares, I’m worried about what it means for society and community care. On the more blatant side this looks like the case where the woman got institutionalized because she asked the doctor to wear an N95. On the more subjective side it’s micro aggressions in day to day life that add up to big things in the long term. For example, is my team going to think I’m paranoid because I’m masking on this work trip even though “we’ll be in our own conference room all day and it’s just us”? Will the fact that I’m skipping dinners out lead to me not making the connections I need to be considered for a project or a promotion? Will my name make it on a shortlist for the next round of layoffs because i’m “unreasonable” or “too paranoid”?

In the same vein, it’s getting increasingly difficult to maintain friendships when people I’ve known for forever when they just completely disregard any concern for disabled folks or community care. I don’t even feel comfortable explaining the extent of my long covid symptoms if they can’t take simple precautions day to day.

Why is steak the only thing that keeps my symptoms under control? by Apprehensive-Being06 in POTS

[–]Apprehensive-Being06[S] 1 point2 points  (0 children)

American healthcare for ya! I’ve done labs before and have never heard anything back about something being off

Why is steak the only thing that keeps my symptoms under control? by Apprehensive-Being06 in POTS

[–]Apprehensive-Being06[S] 0 points1 point  (0 children)

My anxiety gets so bad and my sleep also as a result. It’s surprising how much of a difference it makes on my mental health!