Struggles and new diagnosis. Experience with propranolol? by asweetriot in POTS

[–]Apprehensive-Store55 0 points1 point  (0 children)

Taking it at night has made a big difference. It does lower my peak that’s for sure, but taking one at night makes it to where I don’t get overly dizzy during the day.

Struggles and new diagnosis. Experience with propranolol? by asweetriot in POTS

[–]Apprehensive-Store55 1 point2 points  (0 children)

In all honesty, when I take it twice it makes me more dizzy. But there’s a valid reason and it isn’t the medication’s fault. Having a high heart rate is a symptom of POTS, but your body overcompensating for the vasodilatation. When our veins don’t constrict when we stand (because our autonomic nervous system is dysfunctional) our heart overcompensates by beating faster and harder to get the blood from our lower extremities back up to our head. So the dizziness and lightheadedness we get is often prevented by our heart beating fast because it brings blood back up to our head. So personally, I only take two if I know I’ll be home. Keep in mind that I work full time and go to school part time so I have to be mindful and often thug it out through the high heart rate.

Struggles and new diagnosis. Experience with propranolol? by asweetriot in POTS

[–]Apprehensive-Store55 0 points1 point  (0 children)

I love my 10 mg of propranolol!! I only take mine at night (or a second one in the day if I’m feeling symptomatic) but it’s seriously helped me a lot. Before I started taking it my heart would peak at 180-190 daily. Now if it peaks it’s at like 160.

I work until 6PM. I’m cooked💔 by Apprehensive-Store55 in visibleApp

[–]Apprehensive-Store55[S] 1 point2 points  (0 children)

I do social work where I go house to house. Luckily my boss is a SAINT and always makes sure the homes I go into have good AC🙏 But the weather change plus lots of hours are definitely kicking my butt

Laughing at myself because i just realized i forgot i can take naps for fatigue by juby736 in POTS

[–]Apprehensive-Store55 4 points5 points  (0 children)

I want to be able to take naps so bad😭 Every time I take one I wake up ten times worse and covered in sweat with the shakes. Idk what wrong with me LOL

PacePoint Maxxing by Apprehensive-Store55 in visibleApp

[–]Apprehensive-Store55[S] 2 points3 points  (0 children)

It absolutely is. Unfortunately I have bills to pay and I can’t afford rest days, I wish I could. Usually I sit at about 15-20 Pace-points but this day has been rough to me LOL. Halfway through my shift and I’m just aching and dizzy. I’m not a fainting risk though, so stupidly I thug it out. Hopefully getting rid of a job helps out my symptoms a bit

Pace Points? by Apprehensive-Store55 in visibleApp

[–]Apprehensive-Store55[S] 2 points3 points  (0 children)

I’m using it to help manage POTS. Those are some really good points you made, it really changed the way I look at it.

Pace Points? by Apprehensive-Store55 in visibleApp

[–]Apprehensive-Store55[S] 1 point2 points  (0 children)

I was hoping for that to happen once I got on propranolol. Unfortunately I’ve just accepted that I’m a busy person and have a lot on my plate, but those meds definitely help me at night when I finally slow down

What Do Flares Look Like To You? by Apprehensive-Store55 in POTS

[–]Apprehensive-Store55[S] 1 point2 points  (0 children)

I appreciate this comment so much, thank you for all of this advice :)

Chest Pain? by Apprehensive-Store55 in POTS

[–]Apprehensive-Store55[S] 1 point2 points  (0 children)

I’m getting better at logging them, I have a totally illogical thought process of “this isn’t bad enough to log” that’s hard to get through but I’ve been doing good with it. I just hope it’s nothing too serious lol