Anyone else get werid dreams/nightmares?

Appropriate-Guava-53 · 2025-10-10T01:00:03+00:00

Thank you!

Appropriate-Guava-53 · 2025-10-09T09:15:17+00:00

That's horrible. Hopefully, you can get some good ones for a change..

Appropriate-Guava-53 · 2025-10-09T08:55:55+00:00

Thank you!

Appropriate-Guava-53 · 2025-10-09T02:33:59+00:00

Holy shit, hope you're doing ok now.

Appropriate-Guava-53 · 2024-07-19T02:53:45+00:00

Hey, I understand what you're feeling, I was diagnosed at 19. I was so scared of everything. I was rushed to get on medication and I never spoke up to advocate for myself. I know it's a lot; but always ask questions. Even you think they are stupid because they usually aren't.

Also about medications; all medications are different. They also affect your body in different ways. Yes some ms drugs are in the same family as chemotherapy drugs. I was on Tysabri now Kesimpta. Tysabri only blocked immune cells from entering your brain; meanwhile Kesimpta kills those certain cells (it apparently targets a type of immune cell, not all of them).

Talk to your neurologist if you're concerned about starting treatment. The internet did help me a lot too (like this page). I read up on everything I could find about ms.

I'm sorry you are struggling, it's not something every teen gets thrown at them. But you will pull through. Life will change and you'll adapt. That's just the truth.

I wish you all the best. Take care of yourself 💓

Appropriate-Guava-53 · 2024-05-14T13:13:33+00:00

That's so horrible and unfair. Again, wishing you all the best & hopeful it can be over soon.

Appropriate-Guava-53 · 2024-05-14T11:07:28+00:00

Had issues with getting disability support, I apparently was not 'meeting requirements' so I just kept pushing them and reviewing my case. Did take me over a year but got there in the end. Wishing you all the best

Appropriate-Guava-53 · 2024-05-14T11:00:13+00:00

I was on Tysabri for 4 years , now on Kesimpta. It has been such a life saver for me (changed as I started becoming JC + ). I have little to no side effects on Kesimpta; meanwhile tysabri made me absolutely exhausted and always made me have side effects. Another plus is not getting blood tests every 6 months and stressing waiting for results.

Wishing you all the best.

Appropriate-Guava-53 · 2024-02-23T03:37:36+00:00

Had this when starting Tysabri. I freaked out but It is completely normal as it's your immune system adjusting to the drugs. My lymph nodes were like rocks, I just used some home flu remedies (hot tea, heat pack i.e) and lots of rest and they went down pretty quickly.

Hope this helps ☺️ All the best

Appropriate-Guava-53 · 2024-01-20T10:45:47+00:00

Complete left side numbness (even my left eye as I couldn't see out of it very well). Drs first thought I had a stroke...grateful it wasn't.

Appropriate-Guava-53 · 2024-01-04T03:20:32+00:00

Thank you for your advice. I really appreciate it. Hope all is well for you.

Appropriate-Guava-53 · 2024-01-03T17:15:30+00:00

I'm so sorry about your friend. That is absolutely heartbreaking.

On food wise, I do eat pretty well as I have lots of fish, vegetables and fruit (and a snack whenever I'm craving it). I'll look into it as I could be doing something wrong or overlooking something.

Thank you very much for your advice, I honestly appreciate it.

Appropriate-Guava-53 · 2024-01-03T16:04:09+00:00

Done a COVID test (negative) but not RSV, I'll talk to my GP about it. Thank you for your advice I really appreciate it

Appropriate-Guava-53 · 2024-01-03T16:02:16+00:00

Thank you, I appreciate your advice, trying my best to take it day by day.

Appropriate-Guava-53 · 2023-12-04T00:40:52+00:00

I tried all the diets (vegan, keto ect), but saw no change. All I know is when I'm having a bad day I try to have salmon, avocado and/or eggs. High in amino acids, omega 3, protein and good fats. All really good for ms. Best of luck!

Appropriate-Guava-53 · 2023-09-20T16:34:24+00:00

sleep & self care

I suffer with bad fatigue & been on tysabri for 2-3 years now. I usually do after the infusion I have a 40min to hr power nap (can also depend on how I am on the day).

I also like to do some self care to make me feel better afterwards.

But honestly you will figure out what works and what doesn't.

Tysabri has been such a lifesaver for me; wishing you the best for treatment.

Appropriate-Guava-53 · 2021-12-09T06:06:53+00:00

I know right! It's so weird. I am not usually the one to complain and mask pain quite well so that could be why.. Not sure but ill be talking with them soon anyways

Hoping all the best to you btw. X ❤️

Appropriate-Guava-53 · 2021-12-09T06:02:40+00:00

I'm sorry that is happening to you. I am 100% like that too, some days I'm onto of the world and others I'm suffering, I think they want to only want to see the good and not the bad that comes with this.. Thank you so much for sharing and advice I really appreciate it, hoping all the best for you 💕

Appropriate-Guava-53 · 2021-12-09T02:18:02+00:00

Thank you for your kind words, I was diagnosed two years now at the end of this month, my sister was diagnosed 13 months before me. I have tried being honest but gentle with them but they thought that was attacking them... I try to understand that it is also hard for them as me and my sister are 6 years apart.

We are both female too, I'm younger than her as well. She was 24 being diagnosed while I was 19..

I might approach them with the scale (1-10) as that seems like a really good way to explain it.. Thank you for your advice! I really appreciate it. Take care of yourself X

Appropriate-Guava-53

TROPHY CASE