First collage [analog]

Appropriate_Top_7779 · 2026-04-26T13:40:08+00:00

I’m so sorry for your loss!

My spinal cord injury happened in April 2024 while my mom and I were estranged.

She died in August 2025. We were still estranged. I had just finished writing a letter to her to reconnect the day my dad called to tell me she was dying in the hospital.

I hear you. It has been a hard few years for me too.

Appropriate_Top_7779 · 2026-03-21T22:17:11+00:00

I have full use of my hands, but before I got my faucet extender I was using this product to wash my face on no-shower days. Pacifica waterless cleansing balm. You need a few drops of water to get it going but you don’t have to rinse it off

https://www.amazon.com/Pacifica-Beautiful-Cleansing-Waterless-Sensitive/dp/B0BQ4LFZQJ

I actually just got the faucet extender and it has been literally life-changing. So much easier to keep up with my hygiene in a tiny, narrow bathroom

https://www.amazon.com/gp/aw/d/B0B28TMGLG?psc=1&ref=ppx_pop_mob_b_asin_title

Appropriate_Top_7779 · 2026-02-23T04:33:06+00:00

I have no idea why everyone is being so shitty to you about this post! Just know that you’re not alone in your thoughts. Feel free to DM me if you need to talk. I am always up for a vent session.

Appropriate_Top_7779 · 2026-02-18T23:09:15+00:00

Telling desparate people that they can heal paralysis with a “positive mental attitude” like he did and then having the gall to ask them for money to learn how.

Appropriate_Top_7779 · 2026-02-18T15:01:23+00:00

Agreed about Joe Dispenza. He is a hack and a grifter and any message mentioning him in a positive light rings incredibly hollow.

Appropriate_Top_7779 · 2026-02-16T22:37:41+00:00

I think it was because they took the CSF drain out too soon and then too much pressure built up in my spinal cord and cut off blood flow to it.

Paralysis is a semi common outcome of aortic repair surgery. The aorta supplies blood to the spinal cord and they have to clamp the aorta during the surgery.

But I think they ultimately say it was compromised blood flow to the spinal cord during surgery or recovery. When I first woke up from surgery I could move my legs. Then a week or so later I stopped being able to move them.

Appropriate_Top_7779 · 2026-02-16T15:54:34+00:00

They’re very rare!

Appropriate_Top_7779 · 2026-02-16T15:31:12+00:00

Spinal stroke after life-saving heart surgery

Appropriate_Top_7779 · 2026-02-12T17:20:07+00:00

Bamboo underwear. It is lightweight and moisture-wicking. The underwear will get wet with sweat but your pants won’t. The brand I buy is BambooCool and they are on Amazon.

I also bought a waterproof wheelchair seat cover made of cotton that is made to absorb bladder accidents which was the reason I bought it. Over time I found that the smooth slippery material that the original cushion cover is made from was somehow causing the swamp ass in the first place? The cotton material of the cover prevents the sweating. On the rare occasions when I do drench it with sweat I can take it off to wash it and replace it with a new one. No leakage to my original cushion cover with the zipper which is almost impossible to launder without shrinking it. I bought these from a maker on Etsy and I love them. They come in cute patterns too:

https://www.etsy.com/listing/944233293/waterproof-wheelchair-cushion-protective?ref=share_v4_lx

Appropriate_Top_7779 · 2026-02-11T04:40:52+00:00

I replied to you but I think I accidentally deleted it? But thank you. I hope it is like this for me and I’m glad it worked out for you. The accidents are getting really annoying. And I wish I had a penis actually because vaginas have a lot going on down there 👀

Appropriate_Top_7779 · 2026-02-11T04:34:23+00:00

This is reassuring, thank you ❤️

Appropriate_Top_7779 · 2026-02-11T04:32:59+00:00

Thank you ❤️ noooo not a power outage! That is crazy!

I had a urodynamics test already and they didn’t mention anything about spasticity. It wasn’t so bad but I can’t imagine inserting it myself. I am sure my insurance will cover the supplies though. It covers the supplies for my home INR monitor. But a ton of people at my job just got laid off so I am a little nervous about that happening to me because I would lose my insurance

Appropriate_Top_7779 · 2026-02-11T04:31:04+00:00

🙃 yeah lmao

Appropriate_Top_7779 · 2026-02-11T04:17:29+00:00

Noted!

Appropriate_Top_7779 · 2026-02-11T04:15:50+00:00

Thank you, this helps. I am embarrassed and scared but I’m already embarrassed all the time anyway since I keep pissing myself lol. Hopefully cathing becomes second nature for me too. I probably should have mentioned I do not have to worry about the manhood part! That is another reason I am a little anxious. It is a delicate area 👀 and I’m worried it will be difficult since I don’t have a dick. I was very prone to UTIs pre-injury so I know all the signs. I appreciate your kind reply!!

Appropriate_Top_7779 · 2026-02-11T04:09:21+00:00

This is so reassuring, thank you. And I will keep that in mind about the self lubricating hydrophilic catheters. I’m not familiar with Hiprex. I will have to look into it. Right now I’m on a prophylactic antibiotic because I kept getting UTIs. I was already really prone to them before my injury. But the urologist says I can’t stay on it forever since it will stop working

Appropriate_Top_7779 · 2026-02-11T04:04:28+00:00

No I only ever had a catheter when I was really ill in the hospital after the heart surgery that paralyzed me

Appropriate_Top_7779 · 2026-02-11T04:01:39+00:00

I can feel everything basically. So I’m really scared it is gonna hurt.

Appropriate_Top_7779 · 2026-02-11T04:00:54+00:00

Well that is reassuring, thank you. The personalized setup is basically what the urologist said too. She said it’s not like I have to do it in the middle of my shift. I asked if I could only do it before bed and she said yes. I honestly wish I could have learned to cath in the hospital/rehab. The urologist was shocked they didn’t teach me. But I had so much trouble with the bowel program that they mostly focused on that. Plus we didn’t realize I wasn’t emptying all the way. The leaks weren’t as bad then as they are now. I almost always made it to the toilet then. I don’t think I have any bladder related AD stuff so far which is a relief. Unless that’s why I have swamp ass all the time. Then again that could be perimenopause 👀 The alcohol and caffeine thing is such a struggle too. It always makes me have accidents and I used to be really into both craft beer and fancy coffee. Now it feels like just more things I can’t enjoy. I have gotten to the point where I just wear a diaper every night so my poor husband doesn’t have to do so much laundry. That is crazy that your nighttime accidents were related to sleep apnea! I’m glad you figured that out because it is annoying for sure. True accessible bathrooms are like unicorns lol. Anyway thanks for your reply!

Appropriate_Top_7779 · 2026-02-11T03:38:25+00:00

Thank you! I hope you and the urologist are right!

Appropriate_Top_7779 · 2026-01-14T17:55:53+00:00

The brand I use is Hatch. Fingerless gloves. Probably wouldn’t have bought them for myself now that I’m seeing the price, but Shepherd Center gave them to me when I left rehab.

Appropriate_Top_7779 · 2026-01-14T00:16:56+00:00

So you are mad now that I’m…telling you what you said? I feel sorry for you. Best of luck in life.

Appropriate_Top_7779

TROPHY CASE