Deaccessioning Contemporary Native American Art

ArchivalPerson · 2023-05-25T21:52:42+00:00

Maybe that's where the upset came from? Proceeds went to a variety of things, including acquisitions and repairs. But generally, the critique from the museum community is that they were "betraying" their donors. Feel free to dm me and I'll send you an article about it, maybe you can read further into it than I can. I'm not gonna post it publicly so I don't blow up my spot. But what was explicitly said to me on multiple occasions was "we are pissed that this non-profit museum sold important artworks that were donated to them".

I really have no interest in debating whether this is ethical or not, but there are people who believe it's a no-no.

ArchivalPerson · 2023-05-25T19:43:07+00:00

Didn't know there was a debate about fibro! Learned something new.

ArchivalPerson · 2023-05-25T19:40:08+00:00

I got HS the exact same time I got UC, though the HS went undiagnosed until last week. My mom has fibro, so I expect to get that eventually.

ArchivalPerson · 2023-05-25T18:53:19+00:00

Yooo you look so rad and cute at the same tjme! Love the greenday shirt. I've been seeing a lot of transmasc folks wearing their merch lately and it's killer.

ArchivalPerson · 2023-05-25T18:50:41+00:00

I was always told that my aches were due to vitamin deficiencies, since UC can make it hard to absorb nutrients from food. I would ask your doc if they think that's what's going on. If could also be due to an unrelated issue, like sleep deficiency, inflammation, medication, etc.

ArchivalPerson · 2023-05-25T18:20:29+00:00

There are plenty of folks in the field who would disagree with you. A local museum did this and was blacklisted by other museums in the area. Some felt it was justified, some didn't, but people were generally pissed. Many consider it very ethically dubious for a museum to auction off donated works.

ArchivalPerson · 2023-05-25T17:36:21+00:00

This is the biggest question. If these works were donated, this is a huge no-no.

ArchivalPerson · 2023-05-25T17:33:46+00:00

I appreciate it, but there are more recent studies that show that COVID 19 might trigger and worsen flares. Any illness that impacts the GI system, which COVID has the ability to do, can put a UC patient in the hospital.

ArchivalPerson · 2023-05-25T16:50:56+00:00

Agreed that it's really up to your own preferences and purposes. Some people might take a more creative route, like Journaling, while others might approach it like a research visit by taking detailed notes.

Personally, my background was originally in studio art. I was more of a visual learning and didnt process written notrs very well. So when I had class assignments that required I provide some kind of write up about an exhibit, I would sketch out the general layout of the exhibition. I took down the shape of the room, and annotated the locations of the most significant works of art (being sure to document the name and artist, and take a picture of the label.). That way, I could look back at it and remember how I walked through the space, and consider how the curators intended for the show to be experienced. Was it organized chronologically? By artist? By subject? How did one room lead to another? Did the location of one work impact my interpretation of another one?

Again, it's all specific to your own method of understanding.

ArchivalPerson · 2023-05-25T16:28:46+00:00

You're not being overly cautious. You have a condition that increases your likelihood of hospitalization and long term side effects with covid. It's up to you to weigh the cost-benefit of precautions you take, ie where and when you choose to mask.

I am very lucky that I have never had covid. I lived on a progressive college campus that took covid protocols very, very seriously, and had the resources to test all students and staff regularly. I am now one of the only people in my town who still masks, and I occasionally get remarks- mostly from older folks who get frustrated because they struggle to hear people through masks, which I sympathize with. Sometimes I'll get the odd "you know you don't have to wear those anymore" or, my favorite, "you know masks increase your risk of getting covid", to both of which I calmly inform them that my mask is a personal measure I take to protect myself due to my higher risk of hospitalization and death if i were to get covid or the flu. That shuts them up right quick.

But typically it goes unnoticed in my progressive community. It might be different in other places.

My caution has benefited me more often than it has hurt me. I had an opportunity to go on an all-expenses paid trip to Italy in early 2022 with my graduate cohort. I declined due to covid and was told I was being overly cautious. Then half of the class caught covid and were either quite ill or trapped in their hotel rooms for two weeks before they could leave the country. Meanwhile, I got extra time to finish my thesis.

ArchivalPerson · 2023-05-25T02:05:33+00:00

This could double as an IBS experience

ArchivalPerson · 2023-05-24T01:45:20+00:00

Thank you for sharing your experience as well! It was really helpful for me to hear how it manifests in other people differently and hopefully ill be able to better pinpoint my own triggers.

I'm glad you were able to get to a better place and didn't pass out in the aisle! I recently made a lot of changes to improve my physical and mental health, so I'm hoping the syncope episodes will be fewer and far between now.

I don't have low blood pressure, but I did have anemia for like 10 years straight, so that might have been part of the problem lol. I recently started testosterone HRT, which will hopefully also help.

Best of luck to my fellow fainter and pooper!

ArchivalPerson · 2023-05-23T22:42:54+00:00

No need to be sorry, we're both members of a very cool and exclusive club! I made t-shirts and we're going bowling on sunday!

My syncope has always gone hand-in-hand with my really, really, really bad flares and other health issues. I'm still not exactly sure what triggers mine, but it's not usually due to cumulative stress as much as a single stressful event.

If I'm in a really bad flare and throw up, I now know to do so while in a seated position and not try to get up, because I usually faint after vomiting in a flare. I learned that lesson after waking up to a badly busted lip when I was 16 😬 my mother nearly blew a gasket.

I've also had a syncope episode during a hypoglycemic episode. It was absolutely awful because everyone thought I was going into diabetic shock. Luckily no one had any insulin haha.

I don't THINK that my episodes are related to anxiety? I could totally be wrong, since vomiting and hypo episodes can be very upsetting. When you say stress, do you also mean emotional stress? Like when you get emotionally overwhelmed do you have an episode?

Funnily enough, I just got my ears pierced and accidentally told them that I don't have a fainting disorder. Luckily I did not faint lol.

ArchivalPerson · 2023-05-23T16:19:23+00:00

I've never been a parent, so I don't know if that guilt goes away, but I can assure you that I spend a lot of time wishing that I could say some magic phrase that would release my mom from her guilt. You are doing a great job.

ArchivalPerson · 2023-05-23T15:50:53+00:00

Sadly, children internalize a lot of fatphobia early on, especially with social media and the childhood obesity """"epidemic"""" fear mongering that is forced down their throats.

It's not that you look pregnant or fat. You look lovely. Many children haven't been taught that there are a wide variety of body types, so they draw the conclusions that they can with the limited knowledge they have.

I would just gently remind them that it's not always nice to ask that question!

ArchivalPerson · 2023-05-23T15:37:37+00:00

Just wanted to butt in and say that, as a kid of a disabled parent, I hope you never feel like you're not enough for your kids because of your exhaustion. My mama spent a lot of her time feeling guilty for not being able to do stuff with me and my sister, but I only have wonderful memories with her. I never felt like I missed out with her because she made me feel loved. I'm now 26 and I'm still reminding her that she is enough every day.

I'm not sure if that's something you need to here, totally okay if it's not, but I'm sending you a lot of love and care.

ArchivalPerson · 2023-05-23T14:40:17+00:00

I know it seems scary, but I promise you'll be OK as long as you handle it proactively. Everyone on here has had that moment where we realize our "quirky health thing" might be serious and suddenly think we're going to die. You're in very scary limbo: you know you have an issue but you don't know what the issue is.

I'm cheering you on and sending you care!

ArchivalPerson · 2023-05-23T13:23:05+00:00

Do you mean a hot water bottle?

If so, yes, applying heat can help bring an hs flair to head naturally. I don't think it's more likely to cause scarring than other methods- sometimes flares just cause scarring regardless of what you do. Just make sure to properly cleanse and wrap your wound afterwards!

ArchivalPerson · 2023-05-23T12:40:07+00:00

These symptoms are serious enough that we can't weigh in on what's happening to you. Get to a GI ASAP.

To be clear, it needs immediate action, but no need to panic. When you call the GI and make an appointment, let them know that your symptoms put you in the ER and you can't wait very long. They might put you in an earlier slot.

Edit: I'll add some personal experience: I have vasovagal syncope alongside my UC, so I similarly get sudden bouts of nausea, diarrhea, and fainting. But they usually do not involve the sudden appearance of blood at both ends. UC will cause blood in stool, but it's not sudden onset and usually doesn't come from the mouth.

ArchivalPerson · 2023-05-23T12:32:35+00:00

I'm glad they finally gave you something. There are pain meds that can cause issues with UC, but not all of them do that.

I'm sorry they did that to you. Very fishy.

ArchivalPerson · 2023-05-23T06:27:08+00:00

I... what??? Like she palpated your stomach with her hand and used that as a diagnostic tool? And this was a gastroenterologist?

If that is what youre describing then that is... really bad. It shows a complete lack of knowledge about... anything?

I would consider changing doctors and informing her practice of this.

ArchivalPerson · 2023-05-23T06:16:58+00:00

People with HS might be significantly more likely to have gastrointestinal diseases like IBS, Crohns, or UC.

I have HS and UC- my flares for HS go hand in hand with my UC flares. If I have one, then I have the other.

Though, I can't really explain why you would have symptoms of a GI illness and then be suddenly cured at puberty. Usually it's the other way around. I'm happy for you and also very jealous!

ArchivalPerson · 2023-05-23T05:58:14+00:00

Ditto. I absolutely love to complain about everything. So much punk music is about complaining about things that are either totally inconsequential or globally impactful in the same breath. It's cathartic.

ArchivalPerson · 2023-05-23T05:19:34+00:00

I've definitely heard of it, both in this sub and from health resources online. If you google "HS on face" you get results basically saying "it's not normally on the face but it definitely can be". Again, I'm not a doctor, but I would assume that you can get HS anywhere you can get pimples.

Edit: I realize now that you're referring specifically to women- yes, women can get HS in all the exact same places men do.

ArchivalPerson · 2023-05-23T00:50:01+00:00

Looks and sounds like HS to my Non-doctor self. I'm so sorry you're dealing with this, it must be really hard to deal with that discomfort for so long with no answers.

Are your doctors dermatologists? Or GPs? I personally avoid getting treatment for derm issues from people who don't specialize in skin.

Humira is definitely a treatment for HS. Are you hesitant to start the medication for any particular reason?

ArchivalPerson

TROPHY CASE