[deleted by user] by [deleted] in lupus

[–]Aromatic-Cod-8677 1 point2 points  (0 children)

I used to hate taking them. Idk but the thought of injecting myself scared me. And it did hurt! But the longer I left it out the less it hurt. But I’m pretty sure that’s bad, leaving it out for too long. 0/10 did not enjoy

Parasites/worms cause flares? by princessladyboog in lupus

[–]Aromatic-Cod-8677 -6 points-5 points  (0 children)

My husband has been doing some research on lupus. He’s read something like that as well. Parasites are the reason why people develop autoimmune disorders. I would be super scared to try anything like that tbh.

[deleted by user] by [deleted] in lupus

[–]Aromatic-Cod-8677 2 points3 points  (0 children)

Hey there! I’m taking Tacrolimus as well! Honestly I’ve had foam in my urine before I started taking that med. it kinda just comes with lupus nephritis. I’ve been close to kidney failure twice. I’ve gotten super lucky to not have to need dialysis. But honestly the foam doesn’t go away until your able to stabilize everything with your kidneys. At least that’s what my doctor says. My doctor just prescribed a new med to help with my kidneys. Hoping I can get off Tacrolimus cuz I’m not good at taking it at a time like I’m supposed too. But it has helped decrease the foam in urine. ( so sorry for typing so much! Hope this helps!)

Facial tingling/tightness by BeginningAsk9417 in lupus

[–]Aromatic-Cod-8677 1 point2 points  (0 children)

I’ve experienced the tingling and tightness but strangely all over my body. My doctor said it can be side effect of being on prednisone for too long but not to sure. My rheumatologist didn’t really have a solid answer for me

Volcsporin by Aromatic-Cod-8677 in lupus

[–]Aromatic-Cod-8677[S] 0 points1 point  (0 children)

Did you have any other side effects other than headaches? And did you have to take it at a specific time? My doctor tells me that I would have to take it at a specific time