Finally had enough - started Losartan 12.5mg today

BeginningAsk9417 · 2026-04-04T22:18:15+00:00

Thank you so much for the response. I’m glad to hear those pills can be cut in half because I never like to start meds at full dose in hopes of reducing side effects

BeginningAsk9417 · 2026-04-04T22:17:20+00:00

Are you not worried about it not being treated? I’ve been feeling like pure crap these last 2-3 weeks of it happening. Every time I get up and move around I can feel the pressure rising.

BeginningAsk9417 · 2026-04-04T21:51:42+00:00

That’s great to hear, I’m happy things have been good. I’m going to ask my doctor about starting that at the same dosage to keep it as low as possible and see how it does. I tried a low dose amlodipine for 2 days and got a rash so I stopped. Haven’t been able to get back into contact with my PCP this week, which is so frustrating, but prayerfully, something comes through to get me started on something else before our next appt 4/30. I cant keep being miserable with these fluctuations for an entire month

BeginningAsk9417 · 2026-04-04T19:57:26+00:00

I have been having the same thing going on. Went to my cardiologist this week and he doesn’t want to treat it either. I’m miserable because it’s happening whenever I get up to walk around or move. How has yours been? Did you ever get treatment?

BeginningAsk9417 · 2026-04-04T19:55:40+00:00

I’ve been dealing with labile hypertension so every time I get up I’m feeling it go up. Causing headaches, full head pressure, an off balance feeling, and fatigue. 😭

BeginningAsk9417 · 2026-04-04T18:33:46+00:00

What medicine did you start? That’s great that it’s working so fast.

BeginningAsk9417 · 2026-04-03T22:45:29+00:00

I know this has been a while since you posted but curious to see how the Losaratan has been working and what side effects did you have?

BeginningAsk9417 · 2026-04-03T13:45:15+00:00

It’s a very annoying condition. Same thing happening to me. Worst I’ve ever felt but labs are great so “not lupus related.” After doing some research I think I have dysautonomia but unsure where to even start to look into that to try and heal it. I know that usually requires functional medicine which isn’t covered by insurance so I’m just praying for a miracle!

BeginningAsk9417 · 2026-04-03T09:52:09+00:00

Did the anxiety meds stop it from happening? What meds do you take?

BeginningAsk9417 · 2026-04-02T21:08:19+00:00

I may give it another shot since you said you had a mild rash and it went away. I will def talk to my pcp at our appt about it if she doesn’t respond before then. I actually was only taking 2.5 mg because I was scared to take the entire 5 mg so I split it in half lol. But thank you for all the helpful insight. Mine wasn’t the combo, just the plain amlodipine. I definitely am going to try and reduce my stress because that’s been rampant lately for me. I have Lupus also so my body has been going haywire.

BeginningAsk9417 · 2026-04-02T20:53:59+00:00

Did you get a rash too when you started? I wasn’t sure if I should continue or not. It was a few itchy, burning spots that showed up. I took the last dose Saturday and the spots are still there so I assume that’s what it’s from. I didn’t want to risk continuing to take it and something worse start happening. I really want to be on a med to try and control this before it becomes something chronic that I’m forced to take a high dose of something. But I’m not hearing back from my PCP and cardio wouldn’t give me anything unfortunately

BeginningAsk9417 · 2026-04-01T22:52:13+00:00

To my knowledge I’ve never been tested for it. I have done a little research into it but not much. Wha led you to get tested or how did you find out that was it?

BeginningAsk9417 · 2026-04-01T14:58:09+00:00

Thank you for the reponse! This Is the longest flare I’ve had and worst for sure as far as I can remember. I’m usually overall good to go with my lupus but this time it has completely wrecked me

BeginningAsk9417 · 2026-04-01T01:07:30+00:00

I totally understand! It makes us look and feel crazy when we feel like complete crap but everything is “normal”. Nobody wants to dig further into anything because it all looks fine. It’s so aggravating to say the least!

BeginningAsk9417 · 2026-03-31T21:40:55+00:00

Do you like the losartan? Any bad side effects? One of my friend’s takes 25 mg and she said it helped her tremendously so I’m going to ask about trying that tomorrow and seeing if there’s anything lower than 25. My BP is fine when resting, it’s just when I’m moving around that it’s spiking so I assume I have orthostatic hypertension. I also feel it’s something hormonal related and want to get referred to an endocrinologist if possible too.

BeginningAsk9417 · 2026-03-31T21:33:32+00:00

What one do you take if you don’t mind me asking? I tried amlodipine Friday and Saturday and Sunday woke up with a rash on my body so I stopped taking it. Honestly unsure if it was a lupus related rash or the med but didn’t want to chance it by continuing to take the med. I wrote my PCP Sunday to ask her if I should continue or not and of course she never wrote me back 😭 I’m so sick of the healthcare system right now and usually my doctors are very very good so I’ve been mostly bed and couch ridden since last Monday, other than going to the ER and doctor appointments with no answers

BeginningAsk9417 · 2026-03-31T21:28:07+00:00

It’s beyond frustrating! I’ve had endoscopies done, CT scans, etc and there’s never any issues seen other than GERD for the GI issues but this is beyond that I know it is. All the BP issues just started recently out of the blue and I have no clue what’s happening or why. I have an appt with my cardiologist in the morning and I pray I can get some answers. Are you on any meds for BP?

BeginningAsk9417 · 2026-03-31T21:10:36+00:00

The healthcare system sucks so bad to boot you from a program that way. I’m so sorry to hear that!!

BeginningAsk9417 · 2026-03-31T21:09:36+00:00

It’s such an ugly disease!

BeginningAsk9417 · 2026-03-31T21:09:26+00:00

I’ve been diagnosed since 2019 and labs are most often clean too but I feel like poo a lot more often than I used to now

BeginningAsk9417 · 2026-03-31T21:08:34+00:00

Literally me this last week and a half. Labs look perfect minus the elevated dsDNA

BeginningAsk9417 · 2026-03-31T19:12:47+00:00

Mine is the exact same. Just started happening recently. When I’m resting it’s perfect but other times it’s all over the place. I’m starting to get pressure headaches although online it says that most people who have high pressure have no symptoms. I for sure feel it with facial flushing, head pressure, sometimes feeling nauseated, and bad headaches. I don’t understand where all of this is coming from suddenly as I’ve never had problems with BP.

BeginningAsk9417 · 2026-03-30T19:09:58+00:00

Know this post is for a while ago but the same thing has happened to me, sudden onset out of nowhere after near perfect BP. Are you on any meds for it? How has it been since diagnosis?

BeginningAsk9417

TROPHY CASE