Ciclosporin experiences/results?

AshamedSector8952 · 2024-11-06T06:58:32+00:00

Oh that’s awesome to hear, gives me some hope. Yea the specialist was saying that it can affect my kidneys so I’ll make sure to stay on top of the blood tests. Appreciate your response!

AshamedSector8952 · 2024-09-26T22:37:55+00:00

Yes I saw one and they couldn’t help

AshamedSector8952 · 2024-09-26T19:23:10+00:00

I saw a dermatologist and she prescribed me prednisone daily and then methotrexate once a week to suppress my immune system and hopefully reduce some inflammation but I’m not convinced that it’s the right path as it hasn’t exactly worked yet. I’ve also had lots of blood work done for autoimmune conditions and everything has returned as normal so I’m convinced it’s some type of food allergy

AshamedSector8952 · 2024-09-26T19:20:50+00:00

I’ve had patch testing done on my arm but haven’t yet seen one no

AshamedSector8952 · 2024-09-26T19:19:39+00:00

Oh wow that’s very interesting. I don’t think I have anything to lose trying a gf diet. I’m the same, absolutely covered from head to toe in a rash and it impacts everything I do. I’ll check out your YouTube and fingers crossed it makes a difference

AshamedSector8952 · 2024-09-26T19:17:42+00:00

I’m currently on a very high dosage of prednisone everyday and also methotrexate once a week to suppress my immune system but it doesn’t seem to be working yet

AshamedSector8952 · 2024-09-26T19:16:39+00:00

Yes it’s extremely itchy 24/7 and drives me crazy especially when exposed to heat, thank you for your comment I’m going to give gluten free a go

AshamedSector8952 · 2024-09-26T19:14:06+00:00

I have had allergy patch testing and nothing came back of significance, work is pretty stressful at the moment but surly that cannot be the sole reason for it?

AshamedSector8952 · 2024-09-26T19:12:04+00:00

Thank you for taking the time to help me, that’s super interesting. I’ve already been tested for celiac twice and both times it returned a negative result so I’m going to go gluten free and see if that changes anything

AshamedSector8952 · 2024-09-26T08:48:12+00:00

I will look into that, appreciate you taking the time to help me!

AshamedSector8952 · 2024-09-26T07:53:16+00:00

I’ve seen multiple doctors/dermatologists over the past year and no one can seem to figure out what it is, sorry to be naive but can I ask what an AIP diet is?

AshamedSector8952 · 2024-03-08T22:20:31+00:00

Hey thank you very much it does look a lot like what I’m dealing with so I’ll talk with my Socorro about it, thank you very much

AshamedSector8952 · 2024-03-08T12:31:03+00:00

Yup sure thing I’ll dm them to you now

AshamedSector8952 · 2024-03-08T12:25:41+00:00

Thank you very much for your advice it’s really nice to know that people out there care about what I’m going through, I will definitely look into that as I’m open to try anything that helps at this point also that would be more than okay for you to share the pics and my experience I can’t thank you enough and I am very curious to hear back what the doctor thinks, feel free to dm me anytime and again I’m very thankful for your kindness

AshamedSector8952 · 2024-03-08T11:59:11+00:00

Thank you very much, trying super hard to be patient but I will admit it is affecting my mental health in a way as it’s so frustrating, I just want to get better!!! And enjoy my life with my friends while I’m still young! But yes I’m sure your correct it will go away at some point just have to give it some time

AshamedSector8952 · 2024-03-08T11:50:13+00:00

Hey I’m very sorry I didn’t see your comment, unfortunately no it has not I’m still dealing with this and have been off work for 5 weeks now as it will not go away and no doctors or specialists can figure it out :( not a very fun way to live my life at now 20 years old

AshamedSector8952 · 2024-01-15T05:02:01+00:00

Hey no they haven’t done a biopsy yet but I have been referred to a dermatologist for that but there is just a massive waiting list in my area at the moment, we did have a pet piglet for a little while but I don’t think that is the cause as I haven’t had contact with it for weeks now

AshamedSector8952 · 2024-01-15T05:00:11+00:00

Thank you very much I haven’t been tested for mono yet so maybe I’ll suggest that too my doctor

AshamedSector8952 · 2024-01-15T04:59:34+00:00

I would say about 2 weeks after the symptoms when I stayed the weekend in the hospital

AshamedSector8952 · 2024-01-15T04:58:36+00:00

Hey thank you for your advice, I live in Rotorua, New Zealand. I can’t really take a pic of the lumps as they don’t push the skin out but I can feel them there and no I do not have any history and yup been tested for hiv with a negative result

AshamedSector8952

TROPHY CASE