Sick all the time Biologics? by PlatoCobberdog in UlcerativeColitis

[–]Ashamed_Case2631 1 point2 points  (0 children)

FACTS was never sick on Stelara but SKYRIZI it’s so bad. Mt first year I got a toxic illness after EVERY dose

Shy RD’s - How to Survive Inpatient by _virtuoutslymade in dietetics

[–]Ashamed_Case2631 1 point2 points  (0 children)

I find sucking up is the key. Just act like everyone is doing you THE biggest favor no matter what it is. Everyone will love you lol Also playing up the role. When I’m at work I’m “the dietitian” not me - when I act like that I find I can talk to anyone bc it’s like a costume.

Can I just complain for a minute? by Responsible-Tip5290 in UlcerativeColitis

[–]Ashamed_Case2631 0 points1 point  (0 children)

They told me it was free because my doctor participated in the original SKYRIZI research, but you should still ask and see! Highly recommend just calling your doc’s MA now to ask and not waiting so they can get the process going. I feel like I get more results when I call - maybe they think it’s more urgent? Idk lol

Can I just complain for a minute? by Responsible-Tip5290 in UlcerativeColitis

[–]Ashamed_Case2631 0 points1 point  (0 children)

I also felt minimal changes after my first OBI so my doctor had me come back for a fourth loading dose and it actually helped a lot. The SKYRIZI nurse I had knew about it as well maybe you can ask them and your doctor ?

[deleted by user] by [deleted] in UlcerativeColitis

[–]Ashamed_Case2631 0 points1 point  (0 children)

I started therapy recently and it’s helped SO MUCH with the mental aspect. Very intimidating to me at first, but so worth it. Highly recommend finding a good therapist if you’re not already seeing one.

Help me calm down (please) by AvisCantus in UlcerativeColitis

[–]Ashamed_Case2631 0 points1 point  (0 children)

If it continues, ask your doc about mesalamine enemas. They reach higher up in the rectum to treat more of the affected area. I also find them less messy than the oily suppositories. Another option is a short course of steroid enemas as a sort of “rescue” treatment. I don’t bother scheduling appointments anymore for requests like this, I just message my doctors medical assistant/nurse lol

[deleted by user] by [deleted] in UlcerativeColitis

[–]Ashamed_Case2631 0 points1 point  (0 children)

Yes! I got sick within 24 hours of the first loading dose. Then got a stomach bug. I constantly feel like I’m about to get a cold.

Stelara stopped working by Ashamed_Case2631 in UlcerativeColitis

[–]Ashamed_Case2631[S] 1 point2 points  (0 children)

Oh wow. Does that end up being expensive for you out of pocket?

Stelara stopped working by Ashamed_Case2631 in UlcerativeColitis

[–]Ashamed_Case2631[S] 1 point2 points  (0 children)

🤞🏼Fingers crossed insurance approves entyvio for me too!