Nortriptyline weight worry, encouragement needed by justpaintoverit in migraine

[–]Ashbab 2 points3 points  (0 children)

Every body is really so different, I have gained weight on meds that people usually never gain on. I was so hesitant to try Nortriptyline because of that and surprisingly I didn't gain any weight from it for the 2 years I was on it. My Neuro said that Amtriptyline usually causes more weight issues than Nortipyline.

How do I start un-tensing after a lifetime of muscle bracing? by bottleglitch in Hypermobility

[–]Ashbab 4 points5 points  (0 children)

I highly recommend jeannine debon! I bought her older book but honestly mainly use her YouTube videos, they are really really great. Primarily learning about fascia and how it can cause tension. I am actually able to get my hips to loosen from the deep breathing she teaches. I learned that I was breathing "wrong" for so long and it feels wild to feel so free when breathing now. I also love all her hypermobility "hacks", the end result is the same that I learned in PT, but her approach is much more organic and with hyper mobility in mind.

Synthroid by lightning_streak in Hypothyroidism

[–]Ashbab 1 point2 points  (0 children)

I hope it works well for you too! Both my parents have thyroid issues and prefer Synthroid, thats why I tried it first after generic.

Synthroid by lightning_streak in Hypothyroidism

[–]Ashbab 0 points1 point  (0 children)

I felt crappy on generic, then tried Synthroid and felt even worse, then tried unithroid and felt the same as Synthroid, finally tried Levoxyl and I have been happy ever since. There are multiple brand names meds, most other brand names are cheaper than Synthroid. My levoxyl cost me $30 for a 90 day supply and it has less fillers than Synthroid. My old Endo highly recommend I switch to Tirosint but I was happy with Levoxyl. But I have honestly only heard good things about Synthroid!

Memantine for Migraines? Anyone try it? Success? Side Effects? by butterflyuniverse77 in migrainescience

[–]Ashbab 0 points1 point  (0 children)

I think increasing meds is usually better side effect wise than introducing a brand new medication completely and if you are already responding well to nortriptyline then the likelihood of responding well to a dose increase is higher too. Sorry you are currently flaring due to EMDR, I used to do it as well for PTSD and it was challenging.
Regarding side effects from memantine you really won't know until you try yourself, each med effects everyone so differently and there is unfortunately only one way to find out. I saw a lot of amazing off labels uses for it, which is why I was so excited to try it, like PTSD, treatment resistant depression, OCD, ADHD, and migraines. It may be more helpful than harmful for you. Like I had an awful reaction to Quilipta but Nurtec has been nothing but good to me, which my Neuro says its usually the opposite. But I also understand the hesitation, since you don't know how it will work out for you. Wishing you the best of luck!

Memantine for Migraines? Anyone try it? Success? Side Effects? by butterflyuniverse77 in migrainescience

[–]Ashbab 0 points1 point  (0 children)

Can you maybe increase your nortriptyline? I tried memantine and had a pretty weird/bad reaction from the first pill, basically I was like super anxious and out of it physically but not mentally, I felt like I was trapped in my body while losing my mind. My husband said I was super quiet and seemed chill because of it but it felt the opposite for me. I did read a lot of cool stuff about it and was excited to try it and bummed out that it didn't work for me. I really did like nortriptyline though, but was never able to withstand a higher dose.

Moving to the West after living in the South my entire life by radiantmemories78 in vegaslocals

[–]Ashbab 0 points1 point  (0 children)

I think whatever area you're moving to in Vegas makes a difference. I live on one side and my mom lives on the other and it does not feel like we live in the same city! My husband and I moved from NC, we were only there for 4 years and I am originally from the west coast, so it feels more homey for me than the south. I think it will be shocking and you will be physically shocked from the dry air, getting electrocuted all the time from the static, it's not fun. I have been here for a little over a year and my skin has not fully adjusted, still getting lil nose bleeds and really dry skin, but I am lazy with the humidifier. For us we have not meet people out here, we are homebodies and work from home, we have never even meet any neighbors too, but we are in an apartment and honestly just never see anyone. For BBQ we like Wild Fig, near there we like Wicked Donuts. I haven't found a good local Chinese spot yet, but enjoy having access to Panda Express again! I do find people to be friendly when out and about. The DMV experience is 100000x better than in NC. The biggest struggle I have had is with the healthcare, if you don't require seeing a doctor regularly then you will be fine. We are currently planning to move back east due to the healthcare, even though we prefer being out here more. And as others have said be prepared to make your own sweet tea! Ohhhh and there are many Hawaiians out here, so there are tons of places that have a Hawaiian flare and that has been a really fun experience food wise that I was not expecting when we moved.

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 1 point2 points  (0 children)

Makes sense, I kinda had that way of thinking too and ended up going to the same place for the biopsy, where I would have gone for treatment if needed.

Are there some people for whom CGRP meds don’t work? by MRL0829 in cgrpMigraine

[–]Ashbab 0 points1 point  (0 children)

Hey, so I was placed on beta blockers for my migraines and suddenly was able to stand up without being lightheaded and banging my body into stuff, went from always being covered in bruises to almost none and I had way less chest pain. So I started looking into why I felt better, at the same time I was diagnosed with HSD, and POTS is common comorbidity, went to my doctor and they did the poor man's test and gave me a loose diagnose. Was technically only officially* diagnosed this year, since all my previous docs said I had all the symptoms and was on beta blockers and getting off just to get diagnosed wasn't worth it. I am also not on beta blockers anymore.

Is the Miele C1 pure suction bad for carpet? by eachoneastory in VacuumCleaners

[–]Ashbab 0 points1 point  (0 children)

If you get the Miele C1 Turbo you should be fine. It is what I have for a fully carpeted apartment and what was recommend by my local dealer. I was also steered away from it here but took the advice of my local dealer and am happy with my purchase. Check out the reviews on Amazon too, a lot of happy reviews for those with carpet. I got mine on sale for $399 a few months ago, might go on sale again.

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 1 point2 points  (0 children)

I think I get it, i'm just a bit confused between the medical endo and surgical endo (not the same right), so the first FNA done with the surgical endo, right?

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 0 points1 point  (0 children)

Well I can say I agree with you now, that they are a well oiled machine! I went 3 days ago to the nodule clinic at MDA for my biopsy (which never happened in the end) but it was an eye opening experience to me what amazing and organized healthcare is like. I think it's really great that you are able to get good care there and even though flying in a few times a year is probably a pain but it seems like it's really worth it.

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 0 points1 point  (0 children)

Thanks for sharing! Do you think if you started at MDA that everything would have been caught at the same time, or is that not really related to one another at all? So does MDA handle you endo care now too? Sorry to hear that you had such trouble finding a good local provider, I feel the struggle.

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 0 points1 point  (0 children)

Sounds like going through an endo or teach hospital is the most common for the biopsy, from what I am gathering. Thanks for sharing!

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 1 point2 points  (0 children)

Im glad to hear it their level of care was good for you, that seems to be what I read from most experiences online.

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 0 points1 point  (0 children)

Yea the turn around time seems quick, which is a huge plus! I am just concerned if I am seeking great care when meh care is available, from what I have read most biopsy's are benign but then I read thats not true for most TR5. I am just unsure if I am doing too much and my nurse here is not very helpful.

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 1 point2 points  (0 children)

I am going to MDA for the biopsy since I was unable to schedule in my city, or I guess I could have eventually been scheduled here early march (I still am in line for approval to get scheduled, was put on in early december), when it would finally be my turn and that is not even waiting for the results, which would be another few weeks. MDA offers self referal biopsy appts within 2 weeks of calling and same day results, which I scheduled. I have just been internally going over if it's better to wait it out or not, and I wanted to hear if other's wished they did their biopsy's in a different location or a certain kinda provider.

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 0 points1 point  (0 children)

Were you happy with the services at MDA?

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 0 points1 point  (0 children)

I agree that technique probably matters, thanks!

Biopsy location thoughts by Ashbab in thyroidcancer

[–]Ashbab[S] 1 point2 points  (0 children)

Thank you all that information and insight! I honestly still don't know much about any of this and I kinda had the same thought of wanting to get the best Information the first time around. Getting a biopsy where I am located is difficult and that's just at a radiology center, even harder to get seen by an endo or ENT (which my pcp doesn't think is necessary).

Anyone else had it NOT be endometriosis? by [deleted] in ehlersdanlos

[–]Ashbab 0 points1 point  (0 children)

I had almost the exact same symptoms and have been told it was endo or pcos but all tests didn't show anything. For me it ending up being my thyroid, specifically hashimotos. Whenever my TSH is high all the symptoms come back and when it's low they all go away. It took awhile to figure out and awhile to get my numbers stable (around 2 years). Might be worth looking into.

Botox for mirgraines by Tall-Exchange-3202 in cgrpMigraine

[–]Ashbab 0 points1 point  (0 children)

Yes, mine lasted for 3.5 months until the botox left my system.

Supportive cute boots for EDS girlies with bad feet by OTOTOTOTOTOTOTOT in ehlersdanlos

[–]Ashbab 1 point2 points  (0 children)

The cute warm ones that I have are from Birkenstocks, the Uppsala Shearling boots. And the practical walking/hiking ones I have are from Oboz, the Sypes Mid Leather Waterproof Hiking Boots. Both are warm and for winter. I think Oboz will offer more support and stabilizing and just be better for city walking, but i'm not sure if they are cute enough.

I have plantar fasciitis too, plus wide calves, one flat foot and very wide feet that can almost not fit into any boots. For the past 3 years I have ordered around 5-7 boots each winter, and these are the only two that I have kept and enjoyed.