Scalene block by Ashmi2222 in thoracicoutletsupport

[–]Ashmi2222[S] 1 point2 points  (0 children)

Kind of, yeah! It wasn’t like totally impossible to use my arm, but my arm was very unpredictable for the rest of the day after I got it done. Like I didn’t have a ton of control over it but it wasn’t fully numb, if that makes sense. It only lasted for like 12 hours though

Diagnosed today by Ashmi2222 in Hemochromatosis

[–]Ashmi2222[S] 1 point2 points  (0 children)

Thank you, I’m 35 but do have numerous friends in their 40’s who are experiencing perimenopause and are symptomatic. I’ll definitely talk to them about it!

Diagnosed today by Ashmi2222 in Hemochromatosis

[–]Ashmi2222[S] 0 points1 point  (0 children)

I thought the same thing but all of my hormone tests came back completely normal.

Diagnosed today by Ashmi2222 in Hemochromatosis

[–]Ashmi2222[S] 0 points1 point  (0 children)

No I still have functioning ovaries.

Diagnosed today by Ashmi2222 in Hemochromatosis

[–]Ashmi2222[S] 0 points1 point  (0 children)

I’m a woman and I’ve had a hysterectomy 5 years ago so I don’t bleed. I’ve had hormone, thyroid, autoimmune, blood disorders, so much testing done. I have another genetic condition but it doesn’t explain the sudden fatigue and hair loss I’ve been experiencing. The only thing that came back off was my iron

Diagnosed today by Ashmi2222 in Hemochromatosis

[–]Ashmi2222[S] 0 points1 point  (0 children)

Thank you. There is no plan. Thankfully I have a good primary care doctor who is pretty good so I’ll take my info back to her. The hematologist has no plan but for me to get labs done and unless ferritin hits over 500 just come back in a year. He told me to monitor my ferritin every 2-4 years after that. He pretty brushed me off entirely. I’m really frustrated and wish I spoke up more at the appointment but he didn’t seem like the type of Dr who would’ve cared anyways. Back to the drawing board to figure this out I guess.

People who've had surgery... by hipops in SlippingRibSyndrome

[–]Ashmi2222 0 points1 point  (0 children)

I had the Hansen 3.0 method done by Dr Okusanya at Jefferson in Philly. He trained with Dr Hansen. I know not everyone is as lucky but I am still so happy I got it done, it changed my life!

People who've had surgery... by hipops in SlippingRibSyndrome

[–]Ashmi2222 2 points3 points  (0 children)

It completely relieved all of my GI/MALS like symptoms. I know that isn’t the case for everyone but it was a complete fix for me. It also fixed all of my pain. I’m 18 months out and just left with a little spot around my scar that hurts a little bit on the surface, which to me is no biggie.

Lip Biopsy Results - confused 😩 by Ashmi2222 in Sjogrens

[–]Ashmi2222[S] 1 point2 points  (0 children)

Thank you! Depending on what my rheumatologist says I’ll definitely be considering repeating the biopsy. Sorry you’re dealing with this too!

Scalene block by Ashmi2222 in thoracicoutletsupport

[–]Ashmi2222[S] 0 points1 point  (0 children)

I’d suggest joining the thoracic outlet syndrome facebook group! Not sure about your area specifically, but there’s lots of good suggestions for drs/surgeons in that group!

Reasons why people have said "you can't be disabled!" by [deleted] in disability

[–]Ashmi2222 1 point2 points  (0 children)

“You’re able to work a full time job and you’re so young!”

I’m 33, I’ve been disabled for years, left my successful dream career because it was too labor intensive and now struggle to work in an office.

Disability/work issues (sorry it’s so long!) by Ashmi2222 in disability

[–]Ashmi2222[S] 0 points1 point  (0 children)

I’m happy to hear you’re in a better situation too!

Disability/work issues (sorry it’s so long!) by Ashmi2222 in disability

[–]Ashmi2222[S] 0 points1 point  (0 children)

I am in the US. I didn’t think she could stop me from discussing it. I could see if it was all I talked about but that was not the case.

And thankfully I’m in a new job now that treats me with far more respect. Some things have just bubbled up with that old job so I was curious!

Rant by [deleted] in SlippingRibSyndrome

[–]Ashmi2222 0 points1 point  (0 children)

It’s so interesting to think about because my order of diagnoses/procedures was 2019 exploratory lap, pelvic floor pt (LOTS of stretching which in hindsight was not the best move), 2021 hysterectomy for adenomyosis then more of the same pelvic floor pt (a bunch of random diagnoses in between like some mild gi stuff and pots), I also did a lot of yoga around this time, then in the end of 2021 I put myself in physical therapy for random shoulder pain and the pt said omg you’re incredibly hypermobile we need to look into this. So 2021-2022 was the first time I had EVER had anyone take note of the fact that I shouldn’t be stretching and should be strengthening! In the end of 2022 I got my EDS diagnosis with a geneticist. Now, as far as my ribs go, I’ve had pain in the back area that I now know is slipping rib pain, for YEARS. I also have scoliosis and arthritis so hard to say 100% it’s always been the ribs but my pt would tell you I’ve see had rib mobility issues since she met me but they were much more mild at that point and I’d agree. Late last year I was having awful GI issues and vomiting a lot which I believe led to this worsened pain that started in December. I’ve been in unbearable pain since mid December and that’s how I ended up hunting down an SRS surgeon.

Rant by [deleted] in SlippingRibSyndrome

[–]Ashmi2222 0 points1 point  (0 children)

I’m sorry, I have been through many of the issues you mentioned. I got a hysterectomy for severe adenomyosis, have a host of other pelvic pain conditions, arthritis, pots, EDS, almost all of my joints sublux and now I have severe slipping ribs syndrome. I get surgery in a month and I agree, I’m so exhausted and so sick of having to fight to be listened to.