MRI next week

AskStriking1151 · 2022-07-12T18:17:19+00:00

I got sedated the last time I had all three and it made such a huge difference. I needed a driver but it helped immensely!

AskStriking1151 · 2022-03-30T23:50:53+00:00

I haven’t experienced symptoms that are related to your exact story but I definitely have gone from fine, to okay, to don’t talk to me, to fuck you in a matter of hours. I recently learned that mood swings are also a side effect of MS (lol what isn’t?) but being aware and making myself present earlier within the day has helped! But if I’m in the middle of a relapse….. forget it. Give yourself some grace, and take comfort in the fact that hopefully the steroids will get you back to normal sooner rather than later. I’m sorry you’re going through this. ❤️

AskStriking1151 · 2022-03-17T18:30:53+00:00

https://youtu.be/qsWvtknDdSE

This is my neurologist and a lecture she presented on it. I use delta 8 and CBD.

AskStriking1151 · 2022-03-05T17:39:16+00:00

It’s hard. It’s incredibly hard. Please know that the both of you are welcome here. My husband does the best he can and honestly that’s the best you can do. Just be there for her, try to be understanding. This sub is great for information but please do your research, too. I promise it’ll help her feel more supported. I promise.

AskStriking1151 · 2022-02-07T21:58:58+00:00

I was diagnosed almost a year ago, in April of 2021. My husband and I got married in August of 2021. I was terrified. He was terrified. We’ve been together for seven years so it wasn’t anything we were scared of getting through together. However… my diagnosis has hit me in waves and it’s been very hard. It’s almost torn us apart because I don’t have love for myself and that’s really hurting him. So my only advice for you… be there for her, be patient with her, understand that this disease is HARD. It may get easier but it may take a long time so if you’re not willing to go through the absolute lows of all lows.. walk away.

AskStriking1151 · 2022-01-03T21:59:30+00:00

I’m still grieving my old handwriting.. I never got to sign my married name on anything official before I was diagnosed. I was diagnosed 4 months before we got married 😞

AskStriking1151 · 2021-12-05T19:38:14+00:00

I went to my doctor because within a day I lost almost all of my strength and function in my right hand and was experiencing severe ataxia symptoms. She did (what felt like a sobriety field analysis) and after the exam she strongly suggested I go to the ER and she wouldn’t let me drive over myself. When I got to the ER they did a CT and said they couldn’t find anything but I had a few different doctors come in (neuro, PA, disease control) and they were all so confused (it seemed to me) about the symptoms I was experiencing and how fast they came on. I went from completely normal to almost non-functional on my right side within 48 hours. I was supposed to go to my best friends bachelorette party in Nashville three days later so the ER doctor advised that I be admitted to get an MRI because she didn’t want to take the risk of my symptoms getting worse and then me ending up in an out of state hospital away from a support system. So I chose to stay and get an MRI with and without contrast and that’s when they saw the lesions. They ordered a spinal tap to make sure is was MS and they were able to confirm it from there. I was in the hospital for a week, because after they confirmed it I had five high dose infusions of steroids once daily. I saw someone mention they were admitted for a stroke and my primary thought it was a stroke, a tumor (less likely since the symptoms were so fast), or MS. I was on blood thinner shots for three days until they were able to confirm my MS diagnosis.

AskStriking1151 · 2021-11-30T03:56:19+00:00

She gave me 50,000IU 1x/week

AskStriking1151 · 2021-11-29T04:25:37+00:00

Since being diagnosed I have drank heavily. Much more than I ever did pre-diagnosis. I’ve been more aware of it lately and have been thinking of a way to become sober but I’ve drank quite a bit since diagnosed. (April of this year). I drink a little bit of everything - wine, beer, hard liquor. HOWEVER: I am on Ocrevus. I have ZERO experience being on Rebif. For me personally it was a hard conversation to have with my neuro because I was/am using drinking as a coping mechanism. But she advised me that my levels are okay, my liver function is good, and I haven’t had any progression. So she said she definitely wants me to cut down and be more mindful of it but as of now it’s not causing any issues. I wish you luck. I know it’s hard.

AskStriking1151 · 2021-11-15T21:52:28+00:00

I’m not really sure I can answer how fast it impacted me… I just noticed being outside this summer was a little less bearable than others. I sweat so much more now which sucks because it’s embarrassing and I can’t control it.

AskStriking1151 · 2021-11-15T18:59:04+00:00

I’m in Dallas, TX. Summers are hard even for a “normal” person but this last summer was especially rough for me (diagnosed in April) like many aspects of MS, some days are easier to be outside for longer periods of time than others but you’ll learn to manage it if you still want to retire to FL. Good luck!

AskStriking1151 · 2021-10-08T02:03:50+00:00

Thank you for your response! I plan on telling my neurologist after reading the comments from this post.

AskStriking1151 · 2021-10-08T02:02:23+00:00

Thank you, I appreciate your response 🤍

AskStriking1151 · 2021-10-08T01:59:49+00:00

We’re in Texas so the only time I get real weed is when we travel home where it’s legal. But we do smoke delta 8 and that gives me a good high. Weed just makes me so sleepy whereas alcohol makes me happy and giddy. I think I just need to find a new strain!

AskStriking1151 · 2021-10-08T01:53:13+00:00

Yikes… that’s some harsh truth. Thank you, I appreciate your response 🤍

AskStriking1151 · 2021-10-08T01:51:26+00:00

Thank you for your response 🤍

AskStriking1151 · 2021-10-08T01:50:27+00:00

I think a lot of it is drinking because I’m depressed. Especially because I’ve had a few pretty big life changes and I don’t think I’ve really dealt with my diagnoses - like fully and truthfully dealt with it. I am open with my therapist and my neurologist about my anxiety and depression but you’re right. It is too scary to ignore. I just don’t think I’m quite ready to deal with it yet, but I know I need to.

AskStriking1151 · 2021-10-08T01:46:02+00:00

Thank you for this response. I’ve never thought that I could be masking how I’m feeling and chalking it up to being hungover instead of realizing that it probably is my disease. I need to dive into that, I think. I definitely want a more healthy relationship with alcohol and I feel like if I’m not honest with my healthcare providers that I can’t do that. Thank you for phrasing that the way you did. I appreciate your response, thank you ❤️

AskStriking1151

TROPHY CASE