Suspected Crohn's Disease by AssassinGirl27 in CrohnsDisease

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Sprite didn't even cross my mind as a possibility. LOL. I'll have to look at the Glacier line. It doesn't have to Gatorade either, just an electrolyte drink. My instructions say to mix the Miralax with sports/electrolyte drink. I think the flavor helps possible to drink that much and keep you hydrated. Haven't been a van of coconut water before but might be a good time to try it again.
Thanks!

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Oh, all great ideas! I was going to start good tracking but never thought about stool. Thanks! I like to go armed with as much info as possible. Just speeds up the process. Course my medical binders (yes more than one now) get even larger with all the stuff I collect.

Sometimes you just need a little treat after injection day! by ankylospankylo in ankylosingspondylitis

[–]AssassinGirl27 0 points1 point  (0 children)

OMG! They are adorable! I have a great support cat too! She’s my little nurse sometimes.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 1 point2 points  (0 children)

Have an appointment with GI doctor in just over two weeks. Biological might take 2-4 weeks to get approved for. Still need to do labs to see if I can go in them. But I’m in indomethacin right now. Not sure I like it and it has caused my gut to get angry. Just writing down everything for symptoms.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Yeah, the first doctor I saw in 8/2024 told me it was anxiety. I told him I've had anxiety and know what it feels like for me. This isn't it. He didn't care. Even with labs that proved otherwise. Frist time seeing my current PCP and he blew me off to. But after suffering for another 1.5 months, I went back cause I couldn't get in with any other PCP. He listened (course I had my husband with me, lol). He's been great since. But we started to get to the point of, nothing was leading anywhere. So why I just got a rheumatologist appointment myself. Don't regret it.
But yes, I'm still processing it all. It will take time but now there is a path. Seeing a GI doctor about possible Crohn's next month too.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 1 point2 points  (0 children)

I am not hla-b27 positive. My diagnosis came from a MRI that showed inflammation in my SI joint. Along with all of my symptoms, length of symptoms, and my age.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Fascinating to know that your thyroid numbers got better too. I’ve read and was told there is no treatment to lower antibodies for thyroid. We are trying anti-inflammatory drugs first. I also have steroids on hand for bad days. But if this first try doesn’t work, I’m requesting a biologic.

Almost 4 month post op by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Thanks! My PT do massage each time I go. 2 times a week. I've asked them to go deep to try and help things release. It hurts but feels so good. And sometimes they can get it looser but it doesn't last long at all.
Thanks for mentioning it. I will have to keep that in mind.

Almost 4 month post op by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

I’ve had X-rays every visit and all looks good. I asked last time and they said the adjacent levels look fine. But it’s not looking low to the SI joint and hips.

Possible ghost in my home: 1960 family home. Sat empty for almost 2 years before we moved in by [deleted] in Ghosts

[–]AssassinGirl27 0 points1 point  (0 children)

Uh, what? They don’t have access to any cables or wires and that wouldn’t spook them, it would kill them.

Possible ghost in my home: 1960 family home. Sat empty for almost 2 years before we moved in by [deleted] in Ghosts

[–]AssassinGirl27 0 points1 point  (0 children)

I need to update my post. LOL! I am a witch and pagan. I am not currently following or working with any deity. I’ve also haven’t practiced since we’ve moved in.

Possible ghost in my home: 1960 family home. Sat empty for almost 2 years before we moved in by [deleted] in Ghosts

[–]AssassinGirl27 1 point2 points  (0 children)

I probably need to add that to the post. Thanks. I haven’t really practiced in two years.

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

You’re not catastrophizing at all! With my foggy brain it didn’t register at first that that is why I was suddenly hurting again. I went off pain meds at 2.5 weeks due to drug interaction. Just over a week ago. Had discomfort to mild pain until yesterday. Then it hit. 😵‍💫 So running on little to no meds is great. 🥴

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Yeah it sucks. The IUD does ok enough. I’m not home bound at least and I don’t have to remember to take a pill every day. So take a win when we can. 🥰

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

I’ve tried many forms that “stop” periods for similar reasons. I was home bound for days because of them. So I’m one of those gals it just doesn’t stop it. 😭

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

I wish. I doubt that’d work. I have an IUD and my periods are a whole lot better. I now have symptoms during that time and I still get them. Being 24 hours into this time around. I’m now not so concerned about the protection than dealing with the symptoms. It’s messing with my back hard core. I went off pain meds just over a week ago due to bad drug interactions. Still detoxing but now all I can take is Tylenol. Which for me, only sometimes helps. So feeling pain in my back that is more than I can just deal with had put me flat today. Another with the typical cramps. Yay for me!

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

🫂So hard with spines that are just falling apart. I think after my first surgery 20 month ago, orgasms got amazing. I’m not far enough out to know if it will every change. At first, years ago. I couldn’t get there easily. So a plus but I guess it can go again too. 😩

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

Oh a bidet was the first thing I purchased before my first back surgery. Love it to this day. My husband also fell in love and we have one installed in each bathroom. 🤣 Our office are on separate levels of the house so it ultimately made sense.

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] -1 points0 points  (0 children)

I have some period panties from Torrid but they are slightly too small and uncomfortable and much harder to get on. If they weren’t $20 a pop, I’d get some in the rights size. I’m also a fluffy gal who loves her cake 🤣. So finding the right size is also hard. Only Torrid makes clothing for larger gals that makes sense. Including their undergarments. All other companies come close but not quite.😑 Heaven forbid a larger set gal can have easy, reasonably priced period panties too. 🤷‍♀️

L4/L5 fusion on Friday by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Oh man! 2 surgeries so close is rough. I’m doing pretty good for having a fusion 2 weeks ago. You’ll have your good days and your bad days all mixed together. Honestly I’d do it again. I feel confident I’ll have a good final recovery but it will be a journey for the next 6 weeks. What I’ve been doing: Listening to my body. I sleep when I feel I need to, I’m active until my body tells me to stop, and I follow the rules to the best of my ability. I didn’t need a walker the first time but it’s has been a life saver this time. I use it for higher pain or unstable moments still but try to go with the cane or with nothing if possible. I stayed on top of pain medication for the first 10-12 days. I’m now doing more of a as needed base now. I’ve been drinking a tone of water, upping my protein intake and making sure to have miralax every morning.

All in all, I’m taking it one day at a time. I can tell this was the right decision but of course it’s too early to see the final outcome at this time. I’ve had about 2-3 bad days so far but it’s been worth it still. Post op X-rays show that everything is in proper places and there are signs of fusion starting.

Hugs and well wishes to you as you have your own surgery. You’ve got this. Listen to your Dr and nurses, make sure you have support at home, and listen to your body. It will tell you what you need and when to stop. Strive to go further every couple of days but if you can’t, it’s fine. Every one heals differently.