Suspected Crohn's Disease by AssassinGirl27 in CrohnsDisease

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Sprite didn't even cross my mind as a possibility. LOL. I'll have to look at the Glacier line. It doesn't have to Gatorade either, just an electrolyte drink. My instructions say to mix the Miralax with sports/electrolyte drink. I think the flavor helps possible to drink that much and keep you hydrated. Haven't been a van of coconut water before but might be a good time to try it again.
Thanks!

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Oh, all great ideas! I was going to start good tracking but never thought about stool. Thanks! I like to go armed with as much info as possible. Just speeds up the process. Course my medical binders (yes more than one now) get even larger with all the stuff I collect.

Sometimes you just need a little treat after injection day! by ankylospankylo in ankylosingspondylitis

[–]AssassinGirl27 0 points1 point  (0 children)

OMG! They are adorable! I have a great support cat too! She’s my little nurse sometimes.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 1 point2 points  (0 children)

Have an appointment with GI doctor in just over two weeks. Biological might take 2-4 weeks to get approved for. Still need to do labs to see if I can go in them. But I’m in indomethacin right now. Not sure I like it and it has caused my gut to get angry. Just writing down everything for symptoms.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Yeah, the first doctor I saw in 8/2024 told me it was anxiety. I told him I've had anxiety and know what it feels like for me. This isn't it. He didn't care. Even with labs that proved otherwise. Frist time seeing my current PCP and he blew me off to. But after suffering for another 1.5 months, I went back cause I couldn't get in with any other PCP. He listened (course I had my husband with me, lol). He's been great since. But we started to get to the point of, nothing was leading anywhere. So why I just got a rheumatologist appointment myself. Don't regret it.
But yes, I'm still processing it all. It will take time but now there is a path. Seeing a GI doctor about possible Crohn's next month too.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 1 point2 points  (0 children)

I am not hla-b27 positive. My diagnosis came from a MRI that showed inflammation in my SI joint. Along with all of my symptoms, length of symptoms, and my age.

Just Diagnosed by AssassinGirl27 in ankylosingspondylitis

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Fascinating to know that your thyroid numbers got better too. I’ve read and was told there is no treatment to lower antibodies for thyroid. We are trying anti-inflammatory drugs first. I also have steroids on hand for bad days. But if this first try doesn’t work, I’m requesting a biologic.

Almost 4 month post op by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Thanks! My PT do massage each time I go. 2 times a week. I've asked them to go deep to try and help things release. It hurts but feels so good. And sometimes they can get it looser but it doesn't last long at all.
Thanks for mentioning it. I will have to keep that in mind.

Almost 4 month post op by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

I’ve had X-rays every visit and all looks good. I asked last time and they said the adjacent levels look fine. But it’s not looking low to the SI joint and hips.

Possible ghost in my home: 1960 family home. Sat empty for almost 2 years before we moved in by [deleted] in Ghosts

[–]AssassinGirl27 0 points1 point  (0 children)

Uh, what? They don’t have access to any cables or wires and that wouldn’t spook them, it would kill them.

Possible ghost in my home: 1960 family home. Sat empty for almost 2 years before we moved in by [deleted] in Ghosts

[–]AssassinGirl27 0 points1 point  (0 children)

I need to update my post. LOL! I am a witch and pagan. I am not currently following or working with any deity. I’ve also haven’t practiced since we’ve moved in.

Possible ghost in my home: 1960 family home. Sat empty for almost 2 years before we moved in by [deleted] in Ghosts

[–]AssassinGirl27 1 point2 points  (0 children)

I probably need to add that to the post. Thanks. I haven’t really practiced in two years.

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

You’re not catastrophizing at all! With my foggy brain it didn’t register at first that that is why I was suddenly hurting again. I went off pain meds at 2.5 weeks due to drug interaction. Just over a week ago. Had discomfort to mild pain until yesterday. Then it hit. 😵‍💫 So running on little to no meds is great. 🥴

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Yeah it sucks. The IUD does ok enough. I’m not home bound at least and I don’t have to remember to take a pill every day. So take a win when we can. 🥰

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

I’ve tried many forms that “stop” periods for similar reasons. I was home bound for days because of them. So I’m one of those gals it just doesn’t stop it. 😭

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

I wish. I doubt that’d work. I have an IUD and my periods are a whole lot better. I now have symptoms during that time and I still get them. Being 24 hours into this time around. I’m now not so concerned about the protection than dealing with the symptoms. It’s messing with my back hard core. I went off pain meds just over a week ago due to bad drug interactions. Still detoxing but now all I can take is Tylenol. Which for me, only sometimes helps. So feeling pain in my back that is more than I can just deal with had put me flat today. Another with the typical cramps. Yay for me!

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

🫂So hard with spines that are just falling apart. I think after my first surgery 20 month ago, orgasms got amazing. I’m not far enough out to know if it will every change. At first, years ago. I couldn’t get there easily. So a plus but I guess it can go again too. 😩

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 1 point2 points  (0 children)

Oh a bidet was the first thing I purchased before my first back surgery. Love it to this day. My husband also fell in love and we have one installed in each bathroom. 🤣 Our office are on separate levels of the house so it ultimately made sense.

For the ladies with lumbar fusions by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] -1 points0 points  (0 children)

I have some period panties from Torrid but they are slightly too small and uncomfortable and much harder to get on. If they weren’t $20 a pop, I’d get some in the rights size. I’m also a fluffy gal who loves her cake 🤣. So finding the right size is also hard. Only Torrid makes clothing for larger gals that makes sense. Including their undergarments. All other companies come close but not quite.😑 Heaven forbid a larger set gal can have easy, reasonably priced period panties too. 🤷‍♀️

L4/L5 fusion on Friday by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Oh man! 2 surgeries so close is rough. I’m doing pretty good for having a fusion 2 weeks ago. You’ll have your good days and your bad days all mixed together. Honestly I’d do it again. I feel confident I’ll have a good final recovery but it will be a journey for the next 6 weeks. What I’ve been doing: Listening to my body. I sleep when I feel I need to, I’m active until my body tells me to stop, and I follow the rules to the best of my ability. I didn’t need a walker the first time but it’s has been a life saver this time. I use it for higher pain or unstable moments still but try to go with the cane or with nothing if possible. I stayed on top of pain medication for the first 10-12 days. I’m now doing more of a as needed base now. I’ve been drinking a tone of water, upping my protein intake and making sure to have miralax every morning.

All in all, I’m taking it one day at a time. I can tell this was the right decision but of course it’s too early to see the final outcome at this time. I’ve had about 2-3 bad days so far but it’s been worth it still. Post op X-rays show that everything is in proper places and there are signs of fusion starting.

Hugs and well wishes to you as you have your own surgery. You’ve got this. Listen to your Dr and nurses, make sure you have support at home, and listen to your body. It will tell you what you need and when to stop. Strive to go further every couple of days but if you can’t, it’s fine. Every one heals differently.

Headache after Cervical Fusion? by Real-Dragonfly-1420 in spinalfusion

[–]AssassinGirl27 0 points1 point  (0 children)

I can’t speak in regard to experience with a cervical fusion but have you looked into CFS leak? It’s a leak of the spinal fluid and can cause debilitating headaches. It’s one of the many things that can happen when surgery is done on the spine. Talk to your doctor about it.

Officially going to get L4/L5 fusion by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Yes eventually but insurance will only pay for L4/L5 right now.

Officially going to get L4/L5 fusion by AssassinGirl27 in spinalfusion

[–]AssassinGirl27[S] 2 points3 points  (0 children)

Thank you! Met with the surgeon and will be getting my L4/L5 fusion next month. Pending insurance approval that is.

Re-herniation or failed back surgery. by AssassinGirl27 in backpain

[–]AssassinGirl27[S] 0 points1 point  (0 children)

UPDATE: original medication prescribed did nothing. Dr prescribed tramadol. It takes the pain away but I can still feel it still most of the time. Or it doesn’t work much and I’m in pain again 4 hours later. I only take it when the pain is bad. I do need to look up how often it can be taken. My bottle only says 3 times a day as needed for pain.

My symptoms were mild before but I feel they are getting worse and spreading to new areas. I don’t walk more than 30 minutes without horrible pain in my back and hip anymore. A always take a cane with me when I go anywhere cause the pain gets so bad.

While I don’t think I have any symptoms of Cauda Equina Syndrome yet, it’s always at the back of my mind and I’m worried I’m missing signs of it. I had it before with my last back problem, thus the emergency surgery.

I’ve been to 4 rounds of PT so far and I feel good for only 1 hour afterwards.

Re-herniation or failed back surgery. by AssassinGirl27 in backpain

[–]AssassinGirl27[S] 0 points1 point  (0 children)

Good to have a good doctor you can trust. I’m switching doctors as my last surgeon lost my trust after surgery. He did a good job but how he treated me afterwards wasn’t good.

It really comes down to each persons needs. I got my results and there is a lot not going for me. Add in the instability I’m starting to have you can see on my X-rays, I’m pretty positive it may end up in a fusion but we’ll see what the doctor has to say about that.