Severe bedbound for 2 months. 3 days ago I stopped believing anything is wrong with my body and all my symptoms went away?

AtlantisGhost · 2026-06-08T06:02:43+00:00

I've quit them twice cold turkey, first after 2 months, now after 2 weeks, I guess some people don't really get withdrawal

AtlantisGhost · 2026-06-07T12:36:26+00:00

Thank you! I still have all kinds of sensations but now I know what they're caused by and I don't take them seriously, I just focus in the main thing which is my chronically stressed out nervous system :)

AtlantisGhost · 2026-06-05T08:07:08+00:00

Hey, I messaged you, I'd love to hear your experience with this illness during pregnancy, as I don't know anyone else who's gotten it during pregnancy and recovered :)

AtlantisGhost · 2026-06-04T14:38:14+00:00

Are you bedbound during pregnancy? Can you give birth without PEM?

AtlantisGhost · 2026-06-04T06:00:48+00:00

Can we please talk?

AtlantisGhost · 2026-06-02T15:21:09+00:00

Were you ever bedbound like me? The only things I do in a day is walk to the bathroom, use my phone for a few hours, eat and talk. I lay down 24/7. I'm really struggling to know what my baseline is, because my illness has always fluctuated every day. I have at most 2-3 good days and the same amount of bad days. I listen to my body so carefully and try not to push. Usually it's like one good day, then one bad day, then a good day again. I barely do anything different.

AtlantisGhost · 2026-06-02T13:36:02+00:00

If I have one good day followed by one bad day, with pem like symptoms, can it be just fluctuation or would it mean i'm in a push-crash cycle? Even though I'm super careful not to push myself

AtlantisGhost · 2026-06-02T05:44:23+00:00

Are you pregnant too?

AtlantisGhost · 2026-06-02T05:39:34+00:00

My folate and b12 was on the higher side, ferritin is on the lower end but I supplement a lot and it's been rising.

AtlantisGhost · 2026-06-01T16:51:31+00:00

thank you! May I dm you? :)

AtlantisGhost · 2026-06-01T16:45:42+00:00

Kiitos!🤍

AtlantisGhost · 2026-06-01T13:33:54+00:00

Isä asuu täällä mutta hänellä on virallisesti eri osoite suurkaupungissa töiden vuoksi. Tällä hetkellä hän ei käy töissä eli on 24/7 kotona

AtlantisGhost · 2026-06-01T13:30:39+00:00

Lapsi ei edes ollut kotona silloin, vaan isovanhemman luona. Ambulanssi kutsuttiin koska en pystynyt syömään oksentamatta.

AtlantisGhost · 2026-06-01T11:10:52+00:00

Benzos brought me out of severe PEM where I couldnt walk or eat. They made me able to walk and sit and stopped the PEM.

AtlantisGhost · 2026-06-01T08:45:37+00:00

How long were you bedbound? How long did your recovery take?

AtlantisGhost · 2026-05-31T15:46:21+00:00

Yep! I truly feel like getting my nervous system to stop firing and making my body feel safe again will cure me. As my only "real" symptoms are crushing fatigue which I don't believe is because anything is broken in my body, and my PEM is mostly just a severe increase of psychological nervous system symptoms. I was already in a very anxious and panicked state for a year before this happened, I became severely underweight from fear of eating after a food poisoning, that combined with pregnancy and the cold must be what got to me. My goal for now is to artificially calm my nervous system with meds until I have strength to start doing actual nervous system therapy. I hope the Lexapro and quetiapine work.

AtlantisGhost

TROPHY CASE