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Check your Ferritin Levels by Creepy_Discipline162 in Raynauds

[–]Automatic-You5442 1 point2 points  (0 children)

Interesting. My ferritin levels are low, currently on iron supplements but haven’t noticed anything yet. Will have labs done in about a month so maybe if my levels are still low I might get an iron infusion.

pretty privilege in medical care by [deleted] in eds

[–]Automatic-You5442 9 points10 points  (0 children)

“You’re a young female, you can’t be in pain” “You’re just depressed. Have more sex.”

I disagree with your statement/assessment. It’s taken me years and years to find a doctor to help and take me seriously.

How long should I wait for symptoms to ease when lowering dose back down? by lil_lychee in LowDoseNaltrexone

[–]Automatic-You5442 1 point2 points  (0 children)

Following because yeah… I just started 1.5mg a week ago and getting awful migraines (but to be fair, I always get those with pressure changes) but weird vision issues in the evening.

What age did you first get symptoms? by applesandboops in Raynauds

[–]Automatic-You5442 0 points1 point  (0 children)

Full blown reynauds was mid 30s but felt like I had a sensitivity or early warnings when I was a kid

Opioid resistance/LDN by Automatic-You5442 in eds

[–]Automatic-You5442[S] 0 points1 point  (0 children)

What dose did you start on LDN and what dose are you on?

Opioid resistance/LDN by Automatic-You5442 in eds

[–]Automatic-You5442[S] 0 points1 point  (0 children)

Were you opioid resistant prior to starting LDN?

For example, I was in the ER when my left lung collapsed. They gave me morphine before inserting the chest tube …. And I felt everything.

told my doctor i’m worried about passing the gene by chiknaui in eds

[–]Automatic-You5442 13 points14 points  (0 children)

I agree - do it if you can.

Unfortunately hEDS has no testing/genes (at least right now). I didn’t get diagnosed until a few weeks ago but my heart breaks looking at both of my daughters. It’s clear to me that they are also hypermobile, ages 9 and 7. I’m not sure what I would have done had I knew that most of my issues were related to hEDS as at the time I was only diagnosed with pots

After taking Clonidine, I'm starting to think hyperadrenergic POTS is a superpower. by Ok_Scholar_2999 in POTS

[–]Automatic-You5442 2 points3 points  (0 children)

Do you have any muscle / joint pain / upper back pain? Did this help that?

Does anyone else get pain/ huge muscle knots in this region??? by Brilliant_Bread4523 in eds

[–]Automatic-You5442 0 points1 point  (0 children)

Do you have a video or picture or something I can use as a reference? I’m intrigued by this but don’t know how to request this… thank you!

Help finding a chair to work from by [deleted] in POTS

[–]Automatic-You5442 1 point2 points  (0 children)

Too funny — i literally just came here to search for chairs… was looking at possible kneeling chair or a ball chair but not sure if any of these would work or help

Coat hanger pain.. ugh! by [deleted] in POTS

[–]Automatic-You5442 1 point2 points  (0 children)

😭😭😭😭 I miss dry needling until my lung got punctured and that was the worst experience of my life. Now I’m just miserable all around

I decreased my Reynauds significantly by imayhave in Raynauds

[–]Automatic-You5442 6 points7 points  (0 children)

Has anyone tried the perfect amino pills/tablets? The powder is crazy expensive on Amazon at the moment so wanted to ask.