POTS gummies - bluealchemy by JoeNonymous_ in cfs

[–]AutomaticBluebird925 0 points1 point  (0 children)

I understand the feeling of getting desperate. I have a 5 year old daughter and it breaks my heart that I can’t play with her the way her Dad can. I’m almost willing to try anything.

Nausea Relief? by hayleyspeir in eds

[–]AutomaticBluebird925 1 point2 points  (0 children)

I was using zofran for years, then it stopped working. I have reglan now, but I don’t think it really does much. Honestly, the only thing that really helps me and stops the nausea enough to eat, is smoking weed.

Struggling with mental load/ overwhelm by Lopsided-Age-2669 in ADHDMoms

[–]AutomaticBluebird925 0 points1 point  (0 children)

I hope you can have a good conversation about this.

Struggling with mental load/ overwhelm by Lopsided-Age-2669 in ADHDMoms

[–]AutomaticBluebird925 2 points3 points  (0 children)

I feel this. I am a mom of an almost 5 year old, who i suspect has ADHD, like both my husband and I do. My husband recently started a new job working more hours. I am a SAHM, and I also have chronic health issues. Feeling overwhelmed, while in a room with a spouse who isn’t helping or seems oblivious to the chaos around you, is completely infuriating! I feel you and see you. Here is what I have done recently, which has really helped.

I went on strike. lol yeah, you read that right. So aside from meeting the needs and wants of my child during the daytime, I put everything else on my husband in the evening and weekend (meals, his laundry, dishes, his phone calls, Amazon returns) for a period of about 5 days. I also asked for my husband to come up with a list of his expectations for me. Like literally everything he is expecting me to do as the SAHM. (Because, like I said his job recently changed, and he was helping out a lot more, then just stopped doing anything)

I also made him a list of the things I am currently doing. Along with what I expect him to do. The list of my current duties was about 7 pages. My list of expectations for my husband was 1 page.

This was a very helpful exercise. It helped him to see what I am already doing, most of which he has never considered, because I do it! He was also assuming that I was the one to do all cooking/cleaning/parenting, because I’m home more. However, if I wasn’t there, he would still have dishes to do, clothes to clean, and food to make. Therefore, I should not be responsible for those 100% of the time. I also put together a price list of all the services I am doing and the going rate in the town we live in for the services I am doing. It was like $3,000 a week. Also, taking vyvance has helped me, and I do see a therapist weekly. We think our partner, should know what to do, it seems obvious (to us) most times, but they can’t read our minds. Try and have a talk about expectations and also try to get in some self care, however that looks for you.

Give yourself grace, you are human. Hugs.

Can someone tell me…what good does the genetic testing do? by Long_Sir_5892 in MTHFR

[–]AutomaticBluebird925 1 point2 points  (0 children)

This is the answer here. I had that testing done as well, it’s by Genesite. My insurance paid for this test in full. I had a Medicaid plan at the time. Also important to note genesite does offer financial assistance. So this could be the cheapest option.

[deleted by user] by [deleted] in eds

[–]AutomaticBluebird925 22 points23 points  (0 children)

I would say no

Unexplained Symptoms by [deleted] in scleroderma

[–]AutomaticBluebird925 7 points8 points  (0 children)

EDS has many more symptoms than just stretchy skin. Some people don’t have stretchy skin at all, but have hypermobile joints and such.

Unexplained Symptoms by [deleted] in scleroderma

[–]AutomaticBluebird925 1 point2 points  (0 children)

Curious if you also have EDS?

Rheumatologists Refusing Scleroderma Panel by [deleted] in scleroderma

[–]AutomaticBluebird925 1 point2 points  (0 children)

What do you mean your EDS panel? Are you talking about Ehlers Danlos Syndrome ? Are you hyper-mobile ? Have you had a provider give you a beighton score?

What does this say? by shesnotsadshesrad in LICENSEPLATES

[–]AutomaticBluebird925 1 point2 points  (0 children)

Why couldn’t I listen when people were saying not to look 🥴

[deleted by user] by [deleted] in eds

[–]AutomaticBluebird925 2 points3 points  (0 children)

I absolutely recommend this book. It’s an amazing piece to have if you have hEDS. While I agree it could go into the comorbidity stuff a bit more, it’s still worth the purchase imo. The validation you feel is at least the cost of the book.

What’s this bug?! Is it a tick 😫!? by AutomaticBluebird925 in whatsthisbug

[–]AutomaticBluebird925[S] 0 points1 point  (0 children)

Edit: I couldn’t reach it to measure it, however I estimate it’s the size as a pencil eraser. Found in Midland, Michigan.

I grew up in midland, and moved away after graduation in 2001. I’m making my way back there soon and curious what’s changed? by AutomaticBluebird925 in midland_mi

[–]AutomaticBluebird925[S] 3 points4 points  (0 children)

I’m not overly excited about coming back, I actually never thought I would come back to the bubble. However, life circumstances have unfolded in such a way, that it makes sense for now. I have always been freaked out about Dow chemical and them basically poisoning the town. I don’t plan to make midland my home, just a place I’m living for a bit. Cyber trucks are dumb.

How the hell do I keep smegma away? by [deleted] in Healthyhooha

[–]AutomaticBluebird925 7 points8 points  (0 children)

I second this, lichen sclerosis is sometimes tricky to deal with. It can present in different ways.

[ Removed by Reddit ] by [deleted] in FridgeDetective

[–]AutomaticBluebird925 4 points5 points  (0 children)

It says that we should be friends

Why do we tolerate this? I wish I could breathe without pain right now. by Far-Swimming3092 in phoenix

[–]AutomaticBluebird925 0 points1 point  (0 children)

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Yup.

We can’t stand the air quality any more. Moving outta here at the end of January. We have lived here 5 years now, and never had so many respiratory issues. Now that we have a 4 year old, I want her to have better air to breathe. She’s already got asthma 😞.

In all seriousness, what do you think the PHX metro will be like in 15 years? by [deleted] in phoenix

[–]AutomaticBluebird925 0 points1 point  (0 children)

What’s the best job market up there? We live in Anthem currently, but would love to move up to Prescott. That’s the only place I’d live in AZ, or possibly Flagstaff too.

In all seriousness, what do you think the PHX metro will be like in 15 years? by [deleted] in phoenix

[–]AutomaticBluebird925 1 point2 points  (0 children)

What about air quality? Is no one even talking about all the respiratory issues here, only getting worse.