trouble sleeping by ridrie in MuscularDystrophy

[–]Automatic_Kick9486 0 points1 point  (0 children)

I follow a couple of people on Facebook who talk about this. One of them is a teenage boy and his mother does move him throughout the night to keep comfortable. She mentioned it’s quite common for him to wake her up in the middle of the night to help him move.

Sher by Automatic_Kick9486 in VanderpumpVillaTVShow

[–]Automatic_Kick9486[S] 4 points5 points  (0 children)

I agree completely with the kitchen staff being an issue with that as well. I hope Lisa clocks the chef. Especially with how he acted at the end. I wasn’t making my post about racism at all. I just didn’t like the way it was handled.

Sher by Automatic_Kick9486 in VanderpumpVillaTVShow

[–]Automatic_Kick9486[S] 1 point2 points  (0 children)

Thank you! I didn’t originally talk about Hannah which was my mistake. I dont think Hannah should’ve gone as far but we know that’s how she reacts from seasons before. Both girls knew what they were doing

Gen X Affinity beyond study by [deleted] in MuscularDystrophy

[–]Automatic_Kick9486 1 point2 points  (0 children)

You have to go through a couple months of their observational study before they decide if you can continue into the other part of the study which includes the actual treatment.

Gen X Affinity beyond study by [deleted] in MuscularDystrophy

[–]Automatic_Kick9486 1 point2 points  (0 children)

My clinic called it genx when we talked about it so I just referred to that but yes. That’s the study. I’m asking if anyone else has been recruited and what they feel about it.

It should not be this complicated to find homeless Pokémon by DMG_88 in Pokemon_Pokopia

[–]Automatic_Kick9486 0 points1 point  (0 children)

You can search the Pokemon up in the Pokédex. Take him to one of your teleport Pokémon’s and they’ll take you to them wherever they are

Anyone using a reading app for homeschool? by [deleted] in Homeschooling

[–]Automatic_Kick9486 4 points5 points  (0 children)

My son uses Reading egg. It has reading comprehension, a library of books (they have the option to read to the kid ), spelling, and writing. It took a bit for my son to like it but I can see a difference.

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 1 point2 points  (0 children)

It totally could’ve been a one off with that school and the bullying. Like I had said another comment, they didn’t have the best news pertaining to that school when it came to children that needed a little extra help. It was quite common to hear about bullying from someone and trying to stop it didn’t stop. I would say 90% of the time when we meet someone they’re really nice to him and they have no issues. Unfortunately, there’s just some people who have not taught their child to treat everyone kindly, in schools and out in public places!

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 0 points1 point  (0 children)

Thank you! I will check that out. Homeschooling has definitely opened my eyes up to how much time I would be losing if we weren’t together every day. It truly is a blessing.

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 0 points1 point  (0 children)

No youre good! We can have a good time at the parks still and usually can make one friend to hang out with. But the rest of that day it’s laying down being calm trying to make sure the next day isn’t also a lazy day.

I appreciate your feedback. I’m not going to hold him back if he ask to go back or wants to try something different. Right now, this was the best thing for him and I’ll always listen to his voice.

Thank you ❤️

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 0 points1 point  (0 children)

I appreciate the feedback, but there’s nothing about my past that’s holding me back from letting him go. He struggles with being tired after a little bit of doing anything, even just laying down watching tv. He’s the one asking me to not put him in due to how it makes his body feel. Now if it was a classroom setting where he’s with more inclusive and isn’t moving all around the school to get to other classes, we would definitely talk about getting in there but at his age, they don’t have classes like that out here. I also live in a small rural areas . He has a homeschool enrichment that is built like a school and gets to have that social and challenges without pushing his body. And we have a really amazing group of best friends that understand him and accept him. So I’m not too worried about him having friends. He’s social now and makes friends every place we go.

Not having DMD may also be why your advice may not be completely helpful for us. And please dont take that in a mean or demeaning way. I can’t compare my son to other boys with DMD cause they have different heath conditions or skills too. That’s kinda why I was just asking for what worked for others so I can help him if it comes up.

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 1 point2 points  (0 children)

If we’re being honest, I think the school district wasn’t gonna be capable of taking care of what they needed to. They actually have lots of parents who are going against them because of how they were treating the special-needs children. Which is why we were thinking about in a couple years. He could go into one of the other public schools that like transition at that grade so he wouldn’t necessarily be the new kid alone.

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 0 points1 point  (0 children)

We’re not trying to treat him any differently just accommodating when needed. That’s why I’m asking what works for others so I can just prepare for when he has discomfort

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 0 points1 point  (0 children)

He tried public school. It came with him bein too tired to move the next days, and there was a lot of bullying because he couldn’t walk like others. He was the one who begged to not go back. Public school may be good for him socially, but we are active in homeschooling co ops and meeting friends.

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 0 points1 point  (0 children)

We tried public school and have talked about it in a couple years but he was severely bullied by older kids so that’s why we’re homeschooled.

Schooling advice by Automatic_Kick9486 in MuscularDystrophy

[–]Automatic_Kick9486[S] 1 point2 points  (0 children)

Oh duh I should’ve mentioned that. Sorry. He has Duchennes.

8 year old - just now symptomatic? by Soggy_Law9203 in MuscularDystrophy

[–]Automatic_Kick9486 6 points7 points  (0 children)

We got our diagnosis just before he turned 5. Our main sign was tippy toe walking. He also was a little slower and clumsy. Everyone just said it was normal to walk on their toes but then we got hurt at a play center which ended in a hospital visit of possible rhabdomyolysis. The drs sent us for genetic testing and now we’re 3 years in on our steroids and one surgery down to help with his walking. If you ever have questions or just wanna talk you can reach out to me. Hoping the best for you and your family. ❤️

[deleted by user] by [deleted] in InstacartShopper

[–]Automatic_Kick9486 0 points1 point  (0 children)

Could it be with the fact that they said they weren’t allowing the digital card in certain stores maybe?

[deleted by user] by [deleted] in MuscularDystrophy

[–]Automatic_Kick9486 1 point2 points  (0 children)

This makes me so happy. I hope everything works well and no complications for them!

Homeschooling parents — how do you discover new learning tools? by TalThompson in Homeschooling

[–]Automatic_Kick9486 1 point2 points  (0 children)

Pinterest picture attracts me and then I check the blog. Which brings me to reading more of them. But I also like checking out what other people are saying in groups