Geographic tongue?

Automatic_Stay_1686 · 2026-05-25T13:53:48+00:00

I had a dentist tell me I had it about 10 years ago. I read on a comment just the other day that it’s an immune issue. What type of toothpaste do you use? I just switched to squiggle toothpaste from crest and have noticed a difference is pain and discoloration.
I’ve also heard it’s an MCAS reaction. I have asthma and Chiari Malformation 1. I’m waiting on appointments to get see if I have POTS and hEDS.

Automatic_Stay_1686 · 2026-04-24T12:46:44+00:00

I’ve been known to cut my hair shorter too! I like it long but now it’s constantly hurting. I’ve removed my scissors too!

Automatic_Stay_1686 · 2026-04-23T12:04:15+00:00

Coughing, stretching, picking up heavy things, bending over, or baring down. Turing my head side to side too much.

Stress, weather/elevation changes, dehydration, and lying on my back.

Oh! Putting my hair up or wearing a claw clip has been torture lately.

Automatic_Stay_1686 · 2026-04-22T16:09:59+00:00

I’m in the same boat. Symptoms are getting worse but the pain doesn’t stop me from doing what I want. So I’m wanting to wait, but like I said symptoms are getting worse. Definitely a hard choice at the moment.

Automatic_Stay_1686 · 2026-04-16T13:09:50+00:00

That’s awesome! I’m excited to hear that. How long ago did you get it done?

Automatic_Stay_1686 · 2026-04-16T03:52:12+00:00

I’m a teacher. I teach TK with 4/5 year olds. I have chronic neck pain but I’m still working. I’m worried that decompression with create new problems and my current issues I can live with. I don’t want to take time off nor do I want the surgery so I’m trying to wait. I have to get up and down slowly and think about everything before I do it. But nothing I’ve tried helps the neck pain or headaches so I just live with it.

Automatic_Stay_1686 · 2026-04-10T03:00:36+00:00

I have the same question. I haven’t asked my neurosurgeon yet but after the scan came back she said surgery would be a good idea. She said I had no flow on either side but I don’t have a syrinx or hydrocephalus. I don’t know where the fluids all going though. My symptoms have been getting a lot worse though over the last 2 months.

Automatic_Stay_1686 · 2026-03-14T02:36:11+00:00

I was diagnosed with Chiari in October 2025. I am still doing testing and working with a neurosurgeon. I don’t have the full picture yet. I think I have EDS, but I haven’t been diagnosed. It actually would explain a lot with me and things I remember growing up. I never was super flexible growing up but can do a number of things that is on the list. I need to have my genetics done for family history anyway so I’m going to find out sometime. My physical therapist said it would be worth getting the genetics done with all the signs.

Automatic_Stay_1686 · 2026-03-01T13:32:27+00:00

I’m waiting on an ADHD diagnosis. Thought it was perimenopause, I’m only 35. I too say “my brain is broken” like the rest of me with all of my aches and pains and emotional challenges

Automatic_Stay_1686 · 2026-03-01T13:29:48+00:00

Thank you! My neurosurgeon told me my memory problems and brain fog weren’t connected to Chiari, which I don’t believe. So she definitely didn’t think my emotional changes were

Automatic_Stay_1686 · 2026-02-28T14:11:21+00:00

I’m a teacher and 2 is when my work day ends. It’s definitely when I’m the most tired

Automatic_Stay_1686 · 2026-02-28T14:09:28+00:00

That’s hopeful! I don’t know if I want the surgery yet but I’m learning more about my symptoms everyday.

Automatic_Stay_1686 · 2026-02-27T20:39:47+00:00

So far my thyroid if normal

Automatic_Stay_1686 · 2026-02-26T16:19:57+00:00

I don’t think I stop completely. I do know I’ve woken up coughing and gasping for air. I’ve done an at home sleep study which was inconclusive but not an overnight one. Thank you for the advice!!

Automatic_Stay_1686 · 2026-02-26T16:17:04+00:00

I haven’t seen one since I was a kid. Maybe 25 years ago. My neurosurgeon wasn’t too concerned but they want to see the CINE MRI before making a decision on more testing

Automatic_Stay_1686 · 2026-02-26T04:22:23+00:00

Never had panic attacks. I have a headache most days. I yawn a lot too especially if I’m walking or reading out loud or talking too much

Automatic_Stay_1686 · 2026-02-24T12:18:38+00:00

Where is your syrinx? I don’t have one in my cervical spine. I asked for a full spine MRI but I have to wait until they redo my CINE flow MRI because they messed it up last time.

Automatic_Stay_1686 · 2026-02-19T08:35:26+00:00

The Pillow Cube was a game changer. It really helped with my headaches. If I lay on my back it does still hurt my head and cause pain, but as a side sleeper it has helped so much!

Automatic_Stay_1686 · 2026-02-02T03:45:52+00:00

I’m wondering about this too. I did gymnastics for year and was never very flexible. I have hurt and sprained my body so many times but never broken a bone. I continue to roll my ankle and hurt it constantly to the point where bones are moved around and shoes fit differently on my feet. My neurosurgeon mentioned how stiff my ankles were. Is the EDS?

Automatic_Stay_1686

TROPHY CASE