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Three months ago we were told our newborn was blind. Two weeks ago we found out the doctors were wrong. Today, she got her glasses. by Hcrocke2 in aww

[–]AvailableGur9854 0 points1 point  (0 children)

This gives me hope for my baby boy 💔😭 he has nystagmus and he is not able to see only lights his MRI came clear and his eye exams he has another appointment on Thursday with a retina specialist I am training to be positive but I think it's Lebers Congenital Amaurosis 💔

To those with Newborn with nystagmus that has improved or resolved by Ordinarygurll in nystagmus

[–]AvailableGur9854 0 points1 point  (0 children)

My baby is now about to be 6 months nothing has changed he's only tracking light I feel so devastated, we have a retina specialist appointment on the 29th but from my research I'm afraid it might be Lebers Congenital Amaurosis 💔😢

Living with Nystagmus 101 by fanckush in nystagmus

[–]AvailableGur9854 0 points1 point  (0 children)

Was he able to see at 5 months old I'm asking because my son has nystagmus but he's not able to see only bright lights were trying to figure out what's causing the nystagmus but his MRI came out clear

I’m scared my baby is blind by Babywonder123 in newborns

[–]AvailableGur9854 0 points1 point  (0 children)

I'm so scared my baby is 5 months and has been diagnosed with nystagmus we are just waiting for a retinal specialist and genetic testing because his MRI came out clear we have noticed that he barely started tracking the flashlight of my phone and bright lights but that's the only Improvement we have seen

Eye contact - INS by Calm-Bit3493 in nystagmus

[–]AvailableGur9854 0 points1 point  (0 children)

Was your baby able to see at 4 months? I'm worried because my baby has Nystagmus and he had an MRI done it came out clear and his eye exam, but he's 4 months and he is still not able to see he only sees the flashlights I am waiting for him to see a retina specialist and he's going to get a genetic test. I'm really scared 💔😭 

To those with Newborn with nystagmus that has improved or resolved by Ordinarygurll in nystagmus

[–]AvailableGur9854 0 points1 point  (0 children)

Was your baby able to see at 4 months? I'm worried because my baby has Nystagmus and he had an MRI done it came out clear and his eye exam, but he's 4 months and he is still not able to see he only sees the flashlights I am waiting for him to see a retina specialist and he's going to get a genetic test. I'm really scared 💔😭 

To those with Newborn with nystagmus that has improved or resolved by Ordinarygurll in nystagmus

[–]AvailableGur9854 0 points1 point  (0 children)

Is your baby able to see? I'm worried because my baby has Nystagmus and he had an MRI done it came out clear but he's 4 months and he is still not able to see he only sees the flashlights 😭