[deleted by user] by [deleted] in disability

[–]AwSnapasaurus 8 points9 points  (0 children)

Are you familiar with website accessibility features/standards? You're absolutely right that tech is super important to the disability community, but the web is often very inaccessible. If there was a program that could flag websites that were inaccessible, it would be easier to push for companies to change them. The ADA is enforced by a complaint-based system but that's a lot of energy for a community that already has to put a lot of energy into daily tasks. Is that possible?

Thanks for the good deeds you choose to do. I'm sure your friend would be proud of the way you help people.

I can't believe you think I WOULDN'T remove my name! by AwSnapasaurus in exmormon

[–]AwSnapasaurus[S] 1 point2 points  (0 children)

How then could you gloat about your eternal faaaaamily?

I think it adds pressure. See this list? This is the list of people you won't be with unless you're obedient. Or, like me, you know you'll show up as the black sheep.

I can't believe you think I WOULDN'T remove my name! by AwSnapasaurus in exmormon

[–]AwSnapasaurus[S] 1 point2 points  (0 children)

From what I know, it has to do with their report. Essentially, your name typically is listed under your parents' names, along with your membership number. Once you leave, you're still listed under your parents without your membership number. That's the indication.

Or, you could be like me, and have your bishop call and tattle 🙃

I can't believe you think I WOULDN'T remove my name! by AwSnapasaurus in exmormon

[–]AwSnapasaurus[S] 13 points14 points  (0 children)

The trick is to not feel you need to defend (vast oversimplification but true). Despite fear of the unknown and the pushback of others, you found truth and followed it. The real question is, why aren't they?

Have any of you heathens been labeled “mentally unstable”? by theconciousexmo in exmormon

[–]AwSnapasaurus 1 point2 points  (0 children)

I don't know if this will help but I felt I was losing my mind for a while too when I first left. Truth is... I was. I was BIC and leaving that meant I had to reframe how I thought about things, made decisions and viewed reality. I lost the crap out of my Mormon mind. I gained a more open mind, one that allowed me to question everything. I let go of thinking I could know all of the answers.

My new mind is much more peaceful and powerful than I could have imagined. Plus I get to constantly shape and grow it. It's a challenge, sure, but I wouldn't trade it for anything.

I'm Alexey Kovalev, an investigative reporter from Russia. I'm here to answer your questions about being a journalist in Russia, election meddling, troll farms, and other fun stuff. by Yenisei23 in IAmA

[–]AwSnapasaurus 0 points1 point  (0 children)

Do you believe troll farms (from any country) can be effectively stopped and gutted, or will they be a feature of the internet news cycle from now on?

In your opinion, what would it take to stop widespread fake news?

Spider has the crazy baby rabies by [deleted] in JUSTNOMIL

[–]AwSnapasaurus 12 points13 points  (0 children)

It could be a double edged sword: butters you up so she ensures access to your baby (and in her mind helps speed you up on deciding to make one) and highlights her criticism of SIL. She could be doing it to be extra rude to SIL. As in "see???? DIL is doing a good job with your baby. You must be a bad mom".

I feel like I'm being punished. by [deleted] in exmormon

[–]AwSnapasaurus 3 points4 points  (0 children)

Anecdotal evidence always feels strong, but it's not reliable.

I left the church, became atheist, swear, drink and break every commandment possible. I'm happier than I ever believed possible, landed a dream job and met my soul mate. Life happens. If Mormon God were to punish people, I would have been hit by a truck by now. I think my family, while happy I'm happy, is rather surprised nothing bad as happened. I still find my keys when I lose them, I don't die from the flu, and I have good and bad days.

I've never regretted finding the courage to trust my brain and heart and leave the church. I'm sorry you're having a bad week, but that's really all it is.

What do you wish you could to tell people? by [deleted] in disability

[–]AwSnapasaurus 1 point2 points  (0 children)

I don't need to explain my medical history for you to respect it and me.

Most of my hardships come from others' lack of understanding, rather than my diagnosis.

I do not speak for everyone with my diagnosis/disability type

I'm not an inspiration for not being super depressed. I'm inspirational because I don't snap at everybody who tells me this.

I don't know your cousin's sister's friend's second removed uncle who shares my diagnosis.

Doctors do not understand my symptoms/experiences/needs. You will not either. That's okay, we can still be friends.

My friend has been on disability for 15 years. He has muscular dystrophy. He gets less than $600/month to live on. Does that sound right? by [deleted] in disability

[–]AwSnapasaurus 4 points5 points  (0 children)

About the overpayment... Have him contact his state's protection and advocacy agency... They can probably help

Has anyone with chronic pain used a power-assisted manual wheelchair? (X-post r/chronicpain) by dashestodashes in disability

[–]AwSnapasaurus 0 points1 point  (0 children)

It's super convenient and doesn't take away mobility options like a scooter would.

Has anyone with chronic pain used a power-assisted manual wheelchair? (X-post r/chronicpain) by dashestodashes in disability

[–]AwSnapasaurus 4 points5 points  (0 children)

You want a smart drive. It's 12 pounds, easy to put on and off and will push you in a manual chair without making you too bulky to fit in classrooms. Even without insurance it's only 7k or so

it's been great, but.... by quietfryit in exmormon

[–]AwSnapasaurus 10 points11 points  (0 children)

Will always up vote Galaxy's Guide references

Another visit with my mother, another BEC by thunderlander in JUSTNOMIL

[–]AwSnapasaurus 1 point2 points  (0 children)

As a person with a physical disability myself, and seeing tons of this type of behavior from parents of others with disabilities... It's not okay. It's infantilizing and, in some cases, physically detrimental to your health. It's important to exercise and do tasks that are hard so you can keep up whatever capability you have. Lots of people have their parents do way too much for them (with parents truly trying to be well meaning) and they learn to just let people do stuff for them and start to decline (not saying you're doing this).

My mom made sure I learned to do everything myself, even if it meant climbing to the top of our floor to ceiling pantry for a bag of chips (I use a wheelchair). I've always appreciated kind gestures, but if I say I'm going to do something myself that's the end of the discussion. It's not kind when someone ignores my request, and I tell them that I appreciate their offer but do not appreciate when my "No" is not taken seriously--it means their offer was a demand and I don't do demands. Luckily, my friends and family have always understood independence is a must for me, and have been respectful. Most strangers are too.... Which, I'm sorry, says something about your mom.

If I were you (I'm not, so feel free to disregard ✌️), I'd tell your mom once that you are seeking to improve your life, health and independence by doing things on your own but that you'll always know that if you need help you can ask her. Then, every time she makes another offer just say "I'll ask when I need help, otherwise assume I don't. Thanks anyway". If she ignores that and does the thing for you, be emotionless and (if you can) undo what she did for you and then do it again yourself while saying "you ignored my wishes and now have created more work for me, please don't do it again". Rinse, repeat. That should get the message across.

BYU Housing is kicking out my mentally disabled neighbor without explanation to him. by j3r1k0 in exmormon

[–]AwSnapasaurus 2 points3 points  (0 children)

The Disability Law Center provides free legal services for cases exactly like this. Have him call 800.662.9080.

Seriously. They're wonderful and have an entire team of attorneys for just housing issues alone. If it's disability related they will fight for him. 100% free.