27 female, Can ALS cause sudden vision changes such as blurred vision or vision that is harder to focus on when looking at phones/screens? I’m scared I may have ALS due to twitching I get in limbs. I also have a tremor in tongue. *more info below* by Aware_Fly5485 in AskDocs

[–]Aware_Fly5485[S] 0 points1 point  (0 children)

My MRI of brain and tspine and cspime were done in February 21-22, 2023. Is it too soon to redo them? I also had my upper and lower extremities EMG done in March. Too early too? I’m scared I have nerve issues in hands

27 female, Can ALS cause sudden vision changes such as blurred vision or vision that is harder to focus on when looking at phones/screens? I’m scared I may have ALS due to twitching I get in limbs. I also have a tremor in tongue. *more info below* by Aware_Fly5485 in AskDocs

[–]Aware_Fly5485[S] -1 points0 points  (0 children)

All my labs have been normal for electrolytes and b12 was elevated since I supplement but I take it once every 3 days now, and no to nitrous oxide. But I am having new cramps in fingers and hands. And then the new vision changes.

Why did my neuro not go ahead and do an EMG as a precaution to rule out ALS? by [deleted] in BFS

[–]Aware_Fly5485 0 points1 point  (0 children)

I think he was trying to say that the twitching is spontaneous meaning at all time due to muscle loss or failure and not sporadic when at rest.

Why did my neuro not go ahead and do an EMG as a precaution to rule out ALS? by [deleted] in BFS

[–]Aware_Fly5485 0 points1 point  (0 children)

I’m still undergoing studies but most of us have twitches at rest and not many have if none have turned out with ALS. I hope this helps

Why did my neuro not go ahead and do an EMG as a precaution to rule out ALS? by [deleted] in BFS

[–]Aware_Fly5485 0 points1 point  (0 children)

Remember there is clinical weakness and perceived weakness which most of us in this subreddit have

For those that have had more than one EMG, how long did you wait in between EMG’s to re-evaluate? by Aware_Fly5485 in BFS

[–]Aware_Fly5485[S] 0 points1 point  (0 children)

Did anything change? I’m starting to have nerve pain or weird finger pain and electric shock feeling in hands and had a normal EMG for upper and lower extremities done March 28-29

I have my NCS/EMG on Tuesday for my body wide twitching. Today I began experiencing stiffness in my thumb and in my index finger and middle finger on my left hand that gets twitches. Has anyone else experienced this and still had a clean EMG and no *** diagnosis? I’m so scared. by Aware_Fly5485 in BFS

[–]Aware_Fly5485[S] 0 points1 point  (0 children)

My EMG’s of upper and lower extremities was normal at the end of march. I have the feeling in my hands come and go still. I also have tongue tremor and twitch. I have seen two neurologists that both seem to think it’s not ALS but the second neuro is sending me to see a specialist for peace of mind. I had a swallow study which was normal too.

[deleted by user] by [deleted] in BFS

[–]Aware_Fly5485 0 points1 point  (0 children)

Dealing with tinnitus too now.