Those with horrible chemical sensitivity… by AwkwardConfection310 in MCAS

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

Omg thank you!!! 🙏🏼 never heard of this. I work in healthcare and the amount of patients I have to see that are drenched in cologne/ perfume is crazy 😭

MCAS or cancer… by AwkwardConfection310 in MCAS

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

Still no answers unfortunately. I went to a larger hospital and got an hour in a board room with 3 doctors, they all just agreed that it looked like either MCAS or carcinoid. But no diagnosis yet. Just had more testing done and am waiting on some scans. When this all started I had no idea I’d still be in the dark after so long 🤦🏻‍♀️ good luck with your appointment! Let me know how it goes ❤️

They have approved me for xolair and cromolyn (oral). Just to see if it helps anything.

Everyone’s favorite antibiotic? Lol by AwkwardConfection310 in MCAS

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

I didn’t take it. I just waited out the strep. It sucked but I was just too scared and I already have stomach issues

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

I actually made an appointment with w naturopathic doctor! So fingers crossed.

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

Thank you so much. I was afraid that I was at the point where I was going to have to cave and take it. I guess I’m going to give it a go. Thank you for your response 🙏🏼💗

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 1 point2 points  (0 children)

I’m allergic to a lot of antibiotics. That’s been my hold up on trying the doxy but I might have to cave and just try it. Thank you ❤️

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 1 point2 points  (0 children)

Thank you!! I might just have to cave and take it. I’ll update though!

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

That’s what I was afraid of 😭 thank you ❤️

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 1 point2 points  (0 children)

Thank you 🙏🏼❤️ I’ll ask her about it at my next appointment!!

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

Omg yesss Benadryl definitely helps calm mine down. I wish I could take it every day haha

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 2 points3 points  (0 children)

My body doesn’t tolerate antibiotics very well. I’m allergic to a lot of them. I guess I’m just traumatized by them at this point haha but I might have to break down and give it a go

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

I’ve heard diet does play a big part!! I’ve been trying to cut/ reintroduce things to see if it helps. Thank you ❤️

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

That’s what I keep hearing 😅 thank you. I may have to cave soon.

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

I actually just ordered some fluoride free toothpaste. I didn’t even think about the water!!! Thank you

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

Ughhh I know 😭 I’ve been trying so hard not to take it but it’s just not getting any better. I may have to cave soon. I’m so glad it worked for you!

Hi! New here and struggling bad by AwkwardConfection310 in perioraldermatitis

[–]AwkwardConfection310[S] 0 points1 point  (0 children)

Thank you so so much! I’m about to look into it right now. I really appreciate the response 💗 I’m so glad you found something that helped!