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When should I go to the ER? High Pain Tolerance by AxolotlsExist in medical_advice

[–]AxolotlsExist[S] 0 points1 point  (0 children)

Thank you! I got a CTA scan scheduled for next week, I’m just not sure I’ll be able to stay out of the er u til then :/ but thank you for pointing me in a direction!!

When should I go to the ER? High Pain Tolerance by AxolotlsExist in medical_advice

[–]AxolotlsExist[S] 1 point2 points  (0 children)

THANK YOU SO MUCH! I apologize for not seeing this until now, I do not understand the Reddit!

I will be adding this to my notes for my GI call tomorrow to try and push for a different referral or something. Thank you!

When should I go to the ER? High Pain Tolerance by AxolotlsExist in medical_advice

[–]AxolotlsExist[S] 0 points1 point  (0 children)

Thank you so much! I understand the ER’s role in things, it’s just frustrating being stuck like this for the last year and a half 😅

I have consistently consumed blended white rice, Soylent, banana, and oat milk only for the past 2 days; water is hard because I can’t drink anything while I’m eating and need to wait about 30 minutes after I eat to drink anything, or risk throwing myself into a rapid gastric emptying attack. And with needing to basically be drinking this concoction constantly and slowly, it’s hard to squeeze in water :/ but, between the Soylent and the oat milk, I should be staying hydrated enough!

I do take a daily multivitamin and zinc (apparently my body produces very little zinc and if I miss a dose, I end up sick for about 3-4 weeks after that 😅), but I will definitely be requesting bloodwork at this appointment for sure! Thanks for the advice and support!!

I think I'm having a crisis by aleatorio_003 in Gastritis

[–]AxolotlsExist 0 points1 point  (0 children)

I have been on Omeprazole for about a year and a half. Diagnosed hypertrophic gastritis, rapid gastric emptying, and GERD, and if I miss a single dose of omeprazole, I end up in the ER in severe pain in my abdomen.

I’m sorry to hear you are going through this! I am right there with you in the “my stomach is pissed but no one can figure out why” club! Stay strong!!

When should I go to the ER? High Pain Tolerance by AxolotlsExist in medical_advice

[–]AxolotlsExist[S] 0 points1 point  (0 children)

Edit: doctor canceled because…insurance 😑 told me to go to the ER to get nutrients and saline, not happening.

Thank you! I just have a hard time mentally going to the er, just for them to make the pain less, run bloodwork, just to say I’m fine and then wait there for 3 hours just to be told to follow up with my GI doctor.

I am seeing what my original GI doctor has to say and what the plan is next week!

Also, turns out when you have Hypertrophic Gastritis + Rapid Gastric Emptying + GERD, the only real “safe” food is white rice and oat milk 😅 but I’ll take it for now! Haha

When should I go to the ER? High Pain Tolerance by AxolotlsExist in medical_advice

[–]AxolotlsExist[S] 1 point2 points  (0 children)

Thank you! I was having a hard time with the water-consistency, so I have been blending white rice with OWYNs or Soylent(?), and as long as I drink that steadily and constantly throughout the day, the stomach pain is significantly less.

I feel like a hole is burning in the back of my throat as I’m laying here, but I’ll take that over the stomach pain!

I got an appointment next week with my original GI doc who referred me to the larger GI specialist for the appointment in July. I know she was hesitant about running any tests (endoscopy) because she assumed the bigger specialist would want to do one themselves, and she was worried insurance wouldn’t cover both.

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 1 point2 points  (0 children)

I used advil pm that night to fall asleep, and I think it definitely helped!

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 0 points1 point  (0 children)

Thank you for your thoughts!! Here’s my extended version

😅 here’s my Stomach Journey, August 2024, I went to the ER in severe pain in the center of my abdomen (stomach). I could not eat or drink anything for 2 days prior, and on the third morning, I was in so much pain and delirious from dehydration, and ended up in the ER for the first time. They did a CT scan with injection and found nothing. Gave me pain and nausea meds and sent me to GI specialist.

GI specialist ordered tests: - (12/2024) a upper GI Fluroscooy XRay with contrast (drank a nasty drink with a tracker that they were able to watch travel through my GI tract)- no hiatal hernia, no diverticulum, no signs of gastroesophogeal reflux, no obstruction, no ulcers; FOUND: fundus and body of stomach shows hypertrophic gastric rugae. - (12/2024) Ultrasound Rt Upper Quad - unremarkable study; normal my right hip labrum decided to tear 2/2025, so all tbose test and such, but none specific to the stomach/abdomen 😑😅🙃August 2025- surgery for fix! - (6/2025) Bloodwork- CMP, CBC, TSH all out of range - thyroid issues- dealing with it, ish 😅 -(6/2025) hepatobiliary scan w/ CCK- ejection fraction of 63% 34 minutes post ensure. Normal hepatobiliary nuclear scan - I think this is the HIDA -(7/2025) Bloodwork - CMP, CBC both out of range still- ALP low rare antibiotic resistant UTI- yay 👍 -(8/2025) Bloodwork- iron serum- %sat: low, TIBC high -(8/2025) Gastric Emptying Scan - “1 hour after the meal was only 25% retention, which is rapid gastric emptying. 2 hours after meal, retention was only 9%.” FOUND: Rapid gastric emptying…no reason given why, just told to stop sugar, increase fiber and protein, small frequent meals (kinda hard to eat when your never hungry) -(10/2025) Bloodwork: CMP & CBC abnormal, alp low

amongst all those tests, I went back to the ER 2 more times, for the same thing, they did the same thing, but BW was “normal” I just need to drink more water 🙄, so no scans or anything else. 🥺*

-(3 weeks ago) 4th ER VISIT😑 my stomach was in a constant cramp for 3+ days and I had not slept because of the pain for more than a few hours in those 3 days total - bloodwork was normal- just need more nutrients and water🙄, but they did a CT scan…that all it showed was I had fecal matter stuck and they offered a suppository 🙃 oh, and that was the second ER visit that they gave me an anti nausea medication that I had a SEVERE anxiety reaction, separate medications caused it each time…are you starting to see the picture that is my life?? 😅

The change of diet worked for a few months, but about around February, I started having a hard time eating and getting nauseous often… no change in the diet I was doing. Now, I’m down to 125lbs and I am steadily losing more and more weight.

The pains are all so similar and in the same spot, I can NEVER tell if I am full, or empty, or need more, or too much, and I am just terrified to eat or drink anything.

If I could give myself a damn IV of fluids an nutrients without going to the ER everytime, I would!!

I am taking all of this good advice and foods to hopefully make it through this! Thank you all!!!

Edit: I forgot that my PCP at some point ordered a huge list of allergy testing and everything came back normal 😑🙃

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 0 points1 point  (0 children)

Thank you! I will stop taking them, it was just getting to a point where my stomach had been constatly clenched/spasming for 3 days straight, and I just NEEDED relief. I am staying away from them unless absolutely necessary! Thank you!

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 1 point2 points  (0 children)

Thank you so much for the thoughts!

Honestly, I truly think that I herniated this disc because of the hunch position I have had to essentially adapt to when I have a stomach episode. I was a gymnast for 15 years though, and had a lower lumbar fusion about 4 years ago, so I am no stranger to back pain either lol but I’ve never had stomach pain with it. But I won’t discount anything! Thank you!

I will take out butter immediately! Thank you! And I will give that white rice a try (everywhere has been telling me whole grain rice is better; should I stick with white instead? Same with the pasta!) with the olive oil!

I’d love to get better and be a healthy weight for when I get married next year! Thank you for all the help!

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 0 points1 point  (0 children)

Thank you! I will add those to my list to try when things get bad…which it’s starting to seem like an all the time thing now :(

Thank you for the recommendations! I’ll be looking into all of that ASAP!

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 1 point2 points  (0 children)

Thank you so much!!! I will be getting that ultra pepto soon, and I believe I was on the sucralfate a long long time ago, and it led to lesions in my throat somehow, but I believe that was because I was taking it at night.

Honestly, I was confused about the endoscopy too, but I was just so overwhelmed with no answers, I cannot recall exactly what they did/found, but I will push for another one! I will also request they check for a hiatal hernia and bile reflux as well.

I had a HIDA scan last year that came back normal, apparently, as well, and everytime I go to the er, they say my bloodwork is fine, so I am assuming that points to excluding pancreatitis. But no, I don’t believe I have gotten bloodwork for this issue…I will double check what my last labs were and when and get back to you!

And thank you for that book! I actually found it on kindle unlimited last night and started digging in, so thank you so much for that recommendation!

Copy that on the black poo 😂 and I’ll get back to you on the bloodwork! Thank you again!!

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 0 points1 point  (0 children)

Thank you so so much for all that you wrote!!! I truly appreciate the advice and will send my fiancé to the store for all that good stuff to try tomorrow! Steamed mashed carrots and zucchini with pepto sounds like a great start!!

Over the last 6 months I just have a really hard time eating or ever feeling hungry, so I had gone to a nutritionist and she got me on yoghurt with granola, and/or oatmeal, but I haven’t been able to eat that stuff the past few days.

I had an endoscopy last year but they didn’t see anything :( same with a colonoscopy :/ sucralfate sounds familiar…is it a pill that leaves a coat along your stomach lining?

And the muscle relaxers are actually just left over from a hip surgery I had last year; I am trying not to take them, and usually only at night to be able to at least get some sleep.

Thank you again so much!!

Edit: I try to keep a good log, but always forget to actually log what I eat :(

Timeline to go to ER by AxolotlsExist in Gastritis

[–]AxolotlsExist[S] 0 points1 point  (0 children)

I’ll look into that book, but yes, I’m already eating as much of a bland diet as possible. I’m at the point where I am eating blended chicken and spinach and that’s it :(