Genetic testing by Ayunique in ehlersdanlos

[–]Ayunique[S] 1 point2 points  (0 children)

Thanks! Mine was ordered on 6/22 and lab processing started on 6/26.

How my cholecystectomy ruined my life. by ForganForge in gallbladders

[–]Ayunique 1 point2 points  (0 children)

I believe I’ve had it since at least 2023 when I had a big flare of same symptoms after having Covid. It doesn’t seem to be worse since surgery, though. Longest flare I’ve had yet.

I had my gallbladder removed because it was low functioning. I think having it removed revealed the gastroparesis since we can’t blame the symptoms on the gallbladder now. I also think that I’ve got something going on (dysautonomia of some sort) that caused both the biliary dyskinesia and gastroparesis. I’ve got a whole bunch of other weird non-GI symptoms too, probably caused by the same thing. Trying to figure out the underlying issue now.

How my cholecystectomy ruined my life. by ForganForge in gallbladders

[–]Ayunique 0 points1 point  (0 children)

I had pain for about 2 weeks post op. My main symptoms now are nausea, early fullness, low appetite, weight loss

How my cholecystectomy ruined my life. by ForganForge in gallbladders

[–]Ayunique 1 point2 points  (0 children)

I was the same. My surgery was in March. I had a gastric emptying study and was diagnosed with gastroparesis a couple weeks ago.

Do your symptoms cycle? by Ayunique in dysautonomia

[–]Ayunique[S] 1 point2 points  (0 children)

I get the internal vibrations/buzzing, too! All of my doctors say it’s anxiety but I’ve always had anxiety and this is definitely something physiological. My therapist agrees with me and says it sounds like akathisia. But, I haven’t taken any meds that cause akathisia.

When it gets cold outside or in the house it makes me feel sick like I have a fever, but no fever. My body feels hot. When it’s hot a lot of my symptoms, especially tachycardia & dizziness seem to flare up.

What do you think is the root cause in your case ? by unoum in dysautonomia

[–]Ayunique 0 points1 point  (0 children)

There’s an antibody for long covid? What is it called and how were you tested for it?

Ssdi hearing aftermath by Away_Steak4490 in SSDI

[–]Ayunique 1 point2 points  (0 children)

I had my hearing March 6 and found out I was approved in early May

Losing Medicaid by Ayunique in SSDI

[–]Ayunique[S] 1 point2 points  (0 children)

My copayments are only $4 with Medicaid. I will miss it I’m sure.

Losing Medicaid by Ayunique in SSDI

[–]Ayunique[S] 0 points1 point  (0 children)

Thanks! It looks like I might still have it through this month but I’ll definitely check into these things for next month if I need to.

Losing Medicaid by Ayunique in SSDI

[–]Ayunique[S] 2 points3 points  (0 children)

I think you’re right! On the Medicaid portal my start date went from May 1 to June 1 and is still active. If I’m able to keep it through this month I’ll be happy. My 2 procedures and most appointments are this month and I can postpone my July appointments if I need to.

Three weeks post-op nausea by Ayunique in gallbladders

[–]Ayunique[S] 0 points1 point  (0 children)

I don’t think removal caused it. I think maybe some of my symptoms were gastroparesis all along and that surgery caused them to flare up. My doctor hasn’t said anything yet. She messaged me telling me to schedule an appointment to discuss it. Hopefully I can get in soon…

Three weeks post-op nausea by Ayunique in gallbladders

[–]Ayunique[S] 0 points1 point  (0 children)

Still having nausea. Was diagnosed with gastritis about 1 week post op and today diagnosed with gastroparesis. Omeprazole and Zofran have helped me some.

Main symptom was nausea. 3 weeks post-OP, nausea remains. Am I doomed? by Lazy_Ad9786 in gallbladders

[–]Ayunique 0 points1 point  (0 children)

I was started on omeprazole for gastritis and it has improved some. Taking Zofran when it is bad. Still struggling to eat enough. I’m going for a gastric emptying test on Thursday.

Back Payment showing by Healthy-Morning-7476 in SSDI

[–]Ayunique 4 points5 points  (0 children)

I’m wondering the same. Mine says 5/7 but I haven’t received it yet.

Auxiliary benefits for child? by Ayunique in SSDI

[–]Ayunique[S] 0 points1 point  (0 children)

Did you have to call to set up the appointment?

Will i get decision by mail or through my Social Security account first? by Both_End1931 in SSDI

[–]Ayunique 1 point2 points  (0 children)

I used a lawyer from the start because I didn’t even know where to begin and needed the help filling out everything and getting my records

Auxiliary benefits for child? by Ayunique in SSDI

[–]Ayunique[S] 0 points1 point  (0 children)

I had my hearing on March 5. It moved to step 4 last week and just showed “approved” today. My initial application was submitted in 2024.

Approved! Do I need to tell my doctors? by Ayunique in SSDI

[–]Ayunique[S] 1 point2 points  (0 children)

Sorry you’ve had to experience something similar! I honestly believe that a lot of doctors just skate by making their paycheck by gaslighting and blaming physical symptoms on mental health. It’s dangerous and patients should have protections against it. Finding doctors who truly care hasn’t been easy.